Background:The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world.Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias.Results: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). "Fear of the cancer returning" (39%) and "dry mouth" (37%) were most common. Twenty-five percent (524) reported less than good QOL.Conclusion: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables.There was a strong progressive association between the number of PCI items and QOL.
K E Y W O R D Shead and neck cancer, patient concerns inventory, patient prompt list, quality of life
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