Trata-se de uma revisão narrativa com objetivo de evidenciar repercussões psicossociais do câncer na vida de crianças/adolescentes adoecidos e familiares/cuidadores. Os dados encontrados na literatura científica demonstram que o câncer é um evento complexo e amplo, marcado por determinantes subjetivos e sociais, sendo os aspectos psicológicos, financeiros, disparidades no acesso ao tratamento em contexto global e a escolarização, socialização as principais dimensões que sofrem interferência do processo de adoecimento/tratamento. A compreensão das implicações psicossociais torna-se essencial para a prestação de um cuidado integral em saúde, uma vez que esse evento afeta o modo de vida da pessoa adoecida e a dinâmica familiar.
Resumen Communication in people with AbstractLa comunicación en personas con Alzhéimer y otras demencias es muy limitada, se concreta solamente entre paciente y cuidador en la mayoría de los casos. En este artículo se presenta un programa de educación artística llevada a cabo en el Centro CRE Alzhéimer de Salamanca en 2014-15. Se relatan las premisas y pautas sobre las que se diseñó e implementó el contenido del programa de educación artística y sus actividades. El equipo del Proyecto AR.S, como parte integrante del programa, pretende conectar y comunicar a los participantes con las programaciones culturales de la ciudad con el objetivo de brindarles la posibilidad de conocer el panorama artístico actual, facilitándoles su acceso y abriendo una puerta al mundo exterior. Palabras clave
This study explored the practice and spacing-of-practice effects in people living with dementia during an artistic painting activity. The video recordings of 23 participants were systematically observed during their first and fourth session of the activity. Improvements in independence, engagement, and well/ill-being expressions were analyzed from the first to the fourth session. Moreover, it was analyzed whether a group who had practiced three times a week (n = 12) improved more than a group who had practiced once a week (n = 13). Participants became more independent as they practiced, but the spacing of the sessions did not show any significant effect. Participants with severe dementia showed greater independence improvements than participants with mild to moderate dementia, although they required significantly more assistance throughout the entire study. The positive rates in active engagement and well/ill-being expressions suggest that artistic painting activities promote the motivation and well-being of participants, including those in the severe stage of dementia.
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