Craniosynostosis is a congenital malformation of the sutures of the scull which fuse too early in childhood which does not allow the scull to expand appropriately. The cognitive and physical consequences of this fusion can last a lifetime. There are several types of craniosynostosis depending on what suture fuses and these have a variety of long-term consequences. The diagnosis is typically made after birth and some of the sequela can be appended if surgery is completed in a quick manner. The children born with craniosynostosis will have long-term complications of which the author, Ms. Peters, is readily aware given her family connection. Working with someone with this disorder can be challenging, but rewarding.