O esophageal atresia (OA) is a rare medical condition and patients with OA must cope with issues that are common with all such conditions including, amongst others, a lack of medical protocols for care and follow-up, limited research, and limited information available both to patients with OA and to medical professionals. To address these issues, the first family support group was established in the United Kingdom (TOFS-Tracheo-Oesophageal Fistula Support) in the 1980s and more have appeared during the past 20 years.Groups from Australia,

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