and processors once it comes into force in the spring of 2018. Fundamentally, GDPR aims to provide a set of standardized data protection laws across EU countries. This is intended to make it easier for EU citizens to understand how their data is being used and to raise any complaints. For implementers, it has potential to reduce fragmentation and administrative burdens where business activities flow through local, regional, national and international data exchanges. A full treatment of the data protection principles that drive compliance to the GDPR is beyond the scope of this paper, but an abundance of introductory resources is available on the Internet.
We describe a prototype open source UK-scalable Health Information Exchange (HIE) to support patient-centric care, translational research and other secondary uses. It has been designed by interoperability experts to standardise information flows across the patient path—for example from home, work, mobile, clinical and community care locations. Sintero enables secure information sharing within the patient’s named ‘circle of care’ including family, third sector, social care, community pharmacy, specialist care networks and named statutory (e.g. NHS) carers. Patients may access to their own personal health records and manage consents for their sharing and secondary uses. Sintero’s infrastructure is a low-cost ‘commodity’ approach to delivering scalable DALLAS community solutions. It does this by taking a collaborative approach to capacity development, working with NHS informatics and frontline innovation centres towards efficient use of the technology by the workforce. There is a strong focus on delivery of patient value by continuous measurement and systematic feedback of outcomes. Sintero is being made available to UK DALLAS communities on a collaborative basis.
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