There are little published data on the transition of care in EB. We conducted a survey study recruiting EB patients from the Dystrophic EB Research Association (debra) website and centers caring for high numbers of EB patients in the United States and internationally from Sept 17, 2019 to Nov 3, 2021. The majority of participants had not discussed the transition of care with their healthcare providers, nor the health-
Conradi-Hünermann-Happle syndrome is rare X-linked dominant syndrome associated with stippled epiphyseal calcifications, congenital cataracts, Blaschkoid ichthyosiform scaling, and follicular atrophoderma. This case describes a novel finding of hypocalcemia and hypoparathyroidism in an infant with Conradi-Hünermann-Happle syndrome.
The 10th Pediatric Dermatology Research Alliance (PeDRA) Annual Conference occurred November 3–5, 2022 in Bethesda, Maryland. This conference was the first in‐person PeDRA conference after 2 years of a virtual format due to COVID‐19. Fittingly, given the effects of the pandemic, the conference theme was “Reimagining Community.” The conference included presentations and panel sessions on finding individual and collective purpose, leveraging community in pursuit of a shared goal, and creating a community of resources in collaboration with NIH. The goal of this meeting was to connect clinicians, basic scientists, patients, patient advocates, and industry partners. The reimagined community of pediatric dermatology research is a synergistic space for all members to better understand, prevent, treat, and cure dermatologic diseases and conditions in children. This two‐and‐a‐half‐day conference with over 300 attendees featured educational seminars including a keynote address, didactic lecture and panel sessions, skill‐building workshops, 13 topic‐specific breakout sessions, and an interactive poster session where 108 active and finished research projects could be discussed.
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