Introduction Patients are increasingly turning to other sources for their health information. Social media has become mainstream, and the easy access to online communities, health professionals and shared experiences of other patients have made social media a place many patients turn to. Methods In this qualitative report, two patients who have had breast cancer describe the reasons why they use social media, what they perceive the advantages and disadvantages are, and what the impact of social media has been through their cancer treatment and beyond. Results The reasons why patients turn to social media are varied. These can include information gathering, peer support, shared experiences and advocacy. There appear to be advantages and disadvantages, however, overall, the impact seems to be a positive one when used judiciously. Discussion It is clear that social media has a role to play in healthcare, whether by providing meaningful social connections, delivery of information or psychological support. Healthcare professionals perhaps should consider the importance of social media in their practice.