Data on experience living with SCD was collected from 46 y/o) and 8 (16 -18 y/o)] and 47 carers [12 (carers of 12 -15 y/o) and 6 (carers of 16 -18 y/o)].YP and carers across the age groups had similar worries:. Missed educational opportunities . Disease impact on future career . Well-being and social health .
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