The caregivers of people with EOD assume the role of caregiver prematurely and need to balance this activity with other responsibilities. There is a need for more studies of EOD in order to improve understanding of the impact of this disease and to enable development of adequate services for PWD and their caregivers.
Day care (DC) provides a break in daily care as a support strategy for family caregivers (FC) of people with dementia (PwD). Objective: to analyze the support strategies used by the DC for FC, their methodological and theoretical models, as well as the respective benefits for FC burden, coping strategies and quality of life. Methods: a systematic review following the Prisma methodology was performed on PubMed, PsycInfo, Scopus and SciELO electronic databases in August, 2018. The search keywords were “day care”, “dementia” or Alzheimer disease, “caregiver”, “quality of life” and “psychological adaptation”. Results: twenty-one studies were included. No randomized controlled trials were found. The provision of education, counseling and support, access to information, the professionals' expertise and the quality of their relationship with DC users were highlighted by caregivers. Compared to standard programs centering on PwD, the integrated program focused on PwD and FC activities showed increased feelings of competence and self-confidence of FC to postpone institutionalization. Heterogeneity in the structure and organization of the DC programs, intervention strategies and theoretical basis was observed. Conclusion: Integrated programs are a promising approach that addresses the needs and demands of PwD and their FC in a multidimensional manner.
Neste trabalho apresentamos alguns pressupostos teóricos que informam a preparação de cuidadores de idosos, proposta por dois cursos realizados na cidade do Rio de Janeiro. Utilizamos uma metodologia qualitativa adotando como instrumentos de coleta de dados a observação participante e gravação das aulas, entrevistas com os coordenadores e, como fontes documentais, os programas, apostilas e referências bibliográficas. Os dados, ordenados em categorias descritivas, foram analisados à luz da literatura. Concluímos com uma reflexão acerca dos pressupostos que têm referenciado a preparação dos cuidadores de idosos e suas conseqüências para o cuidar, inclusive o debate entre estes e a enfermagem. Destacamos: a oposição entre cuidados invisíveis, cuidados visíveis e cuidados técnicos; a naturalização do cuidar como um valor em detrimento de um aprendizado técnico; e as concepções de cuidado social e cuidado com a saúde. Consideramos que tanto a ênfase no cuidado social, ao afastar a figura médica da doença, quanto a ênfase no cuidado à saúde, que tem a doença como mote reflexivo, ao desconsiderarem a importância do cuidado técnico, podem, com isso, não levar em consideração a complexidade dos aspectos subjetivos e físicos ligados à existência concreta do enfermo idoso.
A longevidade é uma característica do mundo atual. O envelhecimento da população, que ocorreu ao longo de muitas décadas nos países desenvolvidos, tornou-se rapidamente uma realidade nos países menos desenvolvidos, caracterizando uma transição demográfica em um nível sem precedentes. O impacto previsto sobre os setores econômico, social e de saúde transformou a velhice em um problema social. Diante disso, a gerontologia, tendo como referência a cidadania, vem investindo na construção de novo lugar social e uma nova mentalidade de cuidado para a velhice, através de um discurso que se apóia na educação, no trabalho e na família. Neste artigo, sob a luz da psicanálise, apresentamos uma breve historicização da construção social da velhice no ocidente, considerando sua inspiração no envelhecimento biológico, e problematizamos a sua influência nos discursos atuais, nas relações familiares e suas ressonâncias no mosaico de modos pelos quais a velhice, em si mesma, será bem ou mal percebida pelos sujeitos.
The coronavirus disease 2019 (COVID-19) pandemic suspended face-to-face assistance offered by community spaces, such as day centers (DCs). People with dementia (PwD) and their families were faced with the risks posed by social detachment and suspension of treatments. Objective: This study aimed to present a virtual day center (VDC) program offered as a preventive strategy to reduce the damage caused by social isolation and interruption of treatment imposed by the pandemic. Methods: The experience report, describing the feasibility of a VDC program, offered to 26 PwD and their caregivers, during the first year of the pandemic. The VDC held individual and group meetings with PwD and their families and psychoeducational support groups for caregivers. Results: The attendance rate in group activities was 80%, and that in the caregiver group was 68%, showing a good virtual interaction. Throughout the year, three PwD interrupted the service due to difficulties of the caregivers to reconcile the schedules of the activities with their professional commitments and the absence of a support network, three others died, and two were institutionalized. PwD remained physically, socially, and cognitively active through daily virtual activities. Guidance and support for caregivers contributed to the organization of routines and adaptation to the isolation and maintenance of the bond. Family meetings made it possible to mediate conflicts and expand the support network. Conclusions: VDC is a promising modality to assist the needs and demands of PwD and their caregivers. VDC can contribute to the expansion of this intervention to individuals and families who do not have access to face-to-face treatment.
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