12 The potential for eye donationfrom hospice and palliative care clinical settings in England – a retrospective case notes review of deceased patient records

Long-Sutehall, Tracy; Bracher, Michael; Madi-Segwagwe, Banyana Cecile; Faull, Christina; Hurlow, Adam; Mollart, Sarah; Rayment, Clare; Short, Jill; Wale, Jane; Brown, Mark; Winstanley, Emma; Jacob, Faith; Goerge, Katerina; Seaton, Naomi; Gillon, Suzie

doi:10.1136/bmjophth-2022-eeba.12

Oral Abstracts 2022

DOI: 10.1136/bmjophth-2022-eeba.12

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12 The potential for eye donationfrom hospice and palliative care clinical settings in England – a retrospective case notes review of deceased patient records

Tracy Long-Sutehall

Michael Bracher

Banyana Cecile Madi-Segwagwe

et al.

Abstract: Background One of the barriers to increasing the number of eye donors and transplants is the lack of an integrated, realtime clinical workflow platform with capabilities to secure interface with external systems. It is well understood that

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2024

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Views of admitted palliative care patients and their clinicians on corneal donation discussions: a qualitative content analysis of semi-structured interviews

Patel,

Nicmanis,

Chur-Hansen

et al. 2024

BMC Palliat Care

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Background There is a severe shortage of corneas for donation, globally, for transplantation and research purposes. One group of individuals who could potentially be donors are those who die within the inpatient palliative care unit. The aim of the study was to understand clinician and patient perceptions of corneal donations and discussion of donation in palliative care units. Methods A qualitative design was utilised with data collected through semi-structured interviews and analysed using qualitative content analysis. A total of 46 interviews were undertaken involving inpatient palliative care unit patients (19) and clinicians (27) in three major inpatient palliative care units in South Australia. Results Very few patient participants reported being asked about corneal donations during their time in palliative care. Most inpatient palliative care unit clinicians did not raise the topic as they felt other areas of care took precedence. Inpatient palliative care unit patients thought if inpatient palliative care unit clinicians did not raise the topic, then it was not important. There were some differences between patient and clinician views, such as preference about who raises the possibility of donation and when the discussion might occur. Conclusions Findings suggest that patients are receptive to discussing corneal donations, but clinicians are not initiating these. This is a missed opportunity for donors and potential recipients. We recommend that clinicians routinely discuss eye donation as part of palliative care.

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Views of admitted palliative care patients and their clinicians on corneal donation discussions: a qualitative content analysis of semi-structured interviews

Patel,

Nicmanis,

Chur-Hansen

et al. 2024

BMC Palliat Care

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show abstract

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12 The potential for eye donationfrom hospice and palliative care clinical settings in England – a retrospective case notes review of deceased patient records

Abstract: Background One of the barriers to increasing the number of eye donors and transplants is the lack of an integrated, realtime clinical workflow platform with capabilities to secure interface with external systems. It is well understood that

Cited by 1 publication

References 0 publications

Views of admitted palliative care patients and their clinicians on corneal donation discussions: a qualitative content analysis of semi-structured interviews

Views of admitted palliative care patients and their clinicians on corneal donation discussions: a qualitative content analysis of semi-structured interviews

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