252. Pluscare: A Mobile Platform Designed to Increase Linkage to Care for Youth Living with HIV/AIDS

Guss, Carly E.; Woods, Elizabeth R.; Cooper, Ellen; Burchett, Sandra; Fuller, Julia; Dumont, Olivia; Ho, Yun Xian; Robinson, Meryn; Swendeman, Dallas; Haberer, Jessica; Mulvaney, Shelagh A.; Kumar, Vikram Sheel

doi:10.1016/j.jadohealth.2019.11.255

Cited by 2 publications

(2 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Low mHealth usability has been found in previous studies in vulnerable, underserved populations based on other usability scales and metrics [ 54 , 55 ]; however, to the best of our knowledge, this is the first time SUS scores have been reported for a digital health app with 2 separate interfaces for 2 types of end users, CMs and AYA living with HIV participants. The usability ratings collected here were also found to be lower than the ratings collected in previous controlled, moderated usability testing conducted on an earlier prototype [ 30 ]. Qualitative feedback suggested that the features validated in usability testing may have been subject to limitations realized only when tested in naturalistic, unmoderated settings.…”

Section: Discussioncontrasting

confidence: 68%

“…Unlike adults living with HIV, AYA living with HIV likely require a more complex, individualized, youth-friendly approach provided by case management programs [ 29 ]. We designed and previously found high perceived usability of the prototype of a digital app system, PlusCare , to support HIV case management for AYA living with HIV, demonstrating its acceptability and feasibility [ 30 ]. Using a user-centered design approach, we developed a mobile and web app that can directly connect AYA living with HIV and members of their case management team by streamlining communication and facilitating comprehensive support to help overcome logistical barriers to care [ 31 ].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study

Fee¹,

Fuller²,

Guss³

et al. 2022

JMIR Form Res

Self Cite

View full text Add to dashboard Cite

Background Advances in medical treatments in recent years have contributed to an overall decline in HIV-related opportunistic infections and deaths in youth; however, mortality and morbidity rates in perinatally and nonperinatally infected adolescents and young adults (AYA) living with HIV remain relatively high today. Objective The goal of this project was to assess the use, utility, and cost-effectiveness of PlusCare, a digital app for HIV case management in AYA living with HIV. The app supports routine case management tasks, such as scheduling follow-up visits, sharing documents for review and signature, laboratory test results, and between-visit communications (eg, encouraging messages). Methods We conducted a single-group mixed methods pre-post study with HIV case management programs in 2 large urban hospitals in the Boston metro area. Case management staff (case managers [CMs], N=20) and AYA living with HIV participants (N=45) took part in the study with access to PlusCare for up to 15 and 12 months, respectively. Results The CMs and AYA living with HIV reported mean System Usability Scale scores of 51 (SD 7.9) and 63 (SD 10.6), respectively. Although marginally significant, total charges billed at 1 of the 2 sites compared with the 12 months before app use (including emergency, inpatient, and outpatient charges) decreased by 41% (P=.046). We also observed slight increases in AYA living with HIV self-reported self-efficacy in chronic disease management and quality of life (Health-Related Quality of Life-4) from baseline to the 12-month follow-up (P=.02 and P=.03, respectively) and increased self-efficacy from the 6- to 12-month follow-up (P=.02). There was no significant change in HIV viral suppression, appointment adherence, or medication adherence in this small-sample pilot study. Conclusions Although perceived usability was low, qualitative feedback from CMs and use patterns suggested that direct messaging and timely, remote, and secure sharing of laboratory results and documents (including electronic signatures) between CMs and AYA living with HIV can be particularly useful and have potential value in supporting care coordination and promoting patient self-efficacy and quality of life. Trial Registration ClinicalTrials.gov NCT03758066; https://clinicaltrials.gov/ct2/show/NCT03758066

show abstract

Section: Discussioncontrasting

confidence: 68%

Section: Introductionmentioning

confidence: 99%

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study

Fee¹,

Fuller²,

Guss³

et al. 2022

JMIR Form Res

Self Cite

View full text Add to dashboard Cite

show abstract

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study (Preprint)

Fee¹,

Fuller²,

Guss³

et al. 2022

Preprint

View full text Add to dashboard Cite

BACKGROUND Advances in medical treatments in recent years have contributed to an overall decline in HIV-related opportunistic infections and deaths in youth; however, mortality and morbidity rates in perinatally and non-perinatally infected youth living with HIV (YLWH) remain relatively high today. OBJECTIVE The goal of this project is to assess the usage, utility, and cost-effectiveness of PlusCare, a mobile/web application (app) for HIV case management for YLWH. The app supports routine case management tasks such as scheduling follow-up visits, sharing documents for review and signature, lab test results, and between-visit communications (e.g., encouraging messages). METHODS We conducted a single-group mixed-methods, pre-post study conducted with HIV case management programs in 2 large, urban hospitals in the Boston metro area. Case management staff (CMs, N=20) and YLWH patients (N=45) participated in the study with access to PlusCare for up to 15 months and 12 months, respectively. RESULTS CMs and YLWH reported System Usability Scale scores of 51 (SD=7.9) and 63 (SD=10.6), respectively. Although marginally significant, total charges billed at one of the two sites compared to the 12 months prior to app use (including emergency, inpatient, and outpatient charges) decreased by 41% (P=.046). We also observed slight increases in YLWH self-reported self-efficacy (SEMCD6) and quality of life (CDC HRQOL-4) from baseline to 12-month follow-up (P=.02 and P=.03, respectively) and increases in self-efficacy from 6-month to 12-month follow-up (P=.02). There was no significant change in HIV viral suppression or appointment or medication adherence in this small sample pilot study. CONCLUSIONS While perceived usability was low, qualitative feedback from CMs and usage patterns suggest direct messaging and timely, remote, and secure sharing of lab results and documents (including electronic signatures) between CMs and YLWH can be particularly useful and have potential value in supporting care coordination and promotion of patient self-efficacy and quality of life. CLINICALTRIAL ClinicalTrials.gov NCT03758066

show abstract

252. Pluscare: A Mobile Platform Designed to Increase Linkage to Care for Youth Living with HIV/AIDS

Cited by 2 publications

References 0 publications

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study (Preprint)

Contact Info

Product

Resources

About