A comparative study of the impairment of quality of life in Czech children with atopic dermatitis of different age groups and their families

Jiráková, Anna; Vojáčková, Naděžda; Göpfertová, Dana; Hercogová, Jana

doi:10.1111/j.1365-4632.2011.05175.x

Cited by 24 publications

(25 citation statements)

References 26 publications

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“…We found that mothers tend to be more affected and more distressed, recording lower scores for quality of life compared with fathers. Comparing our results with those for studies of atopic dermatitis, we found that our subjects tended to be more sensitive and to have more varied parental disturbances in dealing with vitiligo (14).…”

Section: Discussionmentioning

confidence: 63%

Hidden Victims of Childhood Vitiligo: Impact on Parents’ Mental Health and Quality of Life

Amer¹,

Mchepange²,

Gao³

et al. 2015

Acta Derm Venerol

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This study aims to assess the impact of childhood vitiligo on the psychological status and quality of life of their parents, and to determine how this varies according to their children's disease condition. The study included 50 families of children with vitiligo (a total of 75 participants) and 50 families of normal children (a total of 79 participants). The psychosocial impact of the disease on parents was measured using the Self-rated Health Measurement Scale (SRHMS) and the Dermatitis Family Impact Questionnaire (DFI). SRHMS scores for parents of children with vitiligo were significantly lower than for parents with normal children. In addition, women had lower scores than men in the study group. The mean DFI score in affected families was higher than in unaffected families. Parents of children with vitiligo have significant psychological problems, and their quality of life is poorer than for parents of normal children. In conclusion, parents of children with vitiligo need as much care and attention as their affected children.

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Section: Discussionmentioning

confidence: 63%

Hidden Victims of Childhood Vitiligo: Impact on Parents’ Mental Health and Quality of Life

Amer¹,

Mchepange²,

Gao³

et al. 2015

Acta Derm Venerol

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“…The mean score of CDLQI was 3.98 in the present study. In another Swedish study performed in dermatology outpatients, the corresponding score was 7.1 (8), and in a Czech study of outpatient dermatology patients, the corresponding score was 8.58 (10). However, a study performed in a primary care setting in the uK gave a mean score of CDLQI of 4.66 among boys and 4.26 among girls (29).…”

Section: Hrqol Comparison To Previous Studiesmentioning

confidence: 84%

“…Most studies of the burden of childhood eczema have been performed in selected populations, such as dermatology outpatient clinics or hospital settings (8)(9)(10)(11), but less is known for unselected populations. This is of importance, since the majority of children with eczema have a mild disease and are generally treated within primary care; only children with severe eczema are treated at specialist clinics.…”

mentioning

confidence: 99%

Mild Eczema Affects Self-perceived Health among Pre-adolescent Girls

Ballardini¹,

Östblom²,

Wahlgren³

et al. 2014

Acta Derm Venerol

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The aim was to assess the impact of eczema on health-related quality of life in the population-based birth cohort BAMSE with 2,756 pre-adolescent children. All answered the following questions on self-perceived health; "How are you feeling?", "How healthy do you consider yourself to be?" and "How happy are you with your life right now?". Children with ongoing eczema answered the "Children's Dermatology Life Quality Index (CDLQI)" questionnaire. In total, 350 (12.7%) of the children had eczema. Girls with eczema reported impaired self-perceived health as evaluated in the 3 questions; adjusted OR 1.72 (95% CI 1.16-2.55), 1.89 (95% CI 1.29-2.76) and 1.69 (95% CI 1.18-2.42). Eczema among boys was not associated with impairment of self-perceived health. The mean CDLQI score was 3.98 (95% CI 3.37-4.58). Since eczema affects up to 20% of pre-adolescent girls, the findings have implications both for health care providers and for society as a whole.

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“…Because the lives of children alter greatly between the ages of 4 and 16 years, in the consideration of HRQoL children are not a homogenous group. Jirakova et al . divided children into two age groups, 7–13 years and 14–18 years, and found significant differences in two CDLQI items: problems in playing and doing hobbies and problems during school or holidays.…”

Section: Resultsmentioning

confidence: 99%

“…The CDLQI, originally validated for use in children from 4 to 16 years old, was used in children aged 3 years, 2 years and even 1 year of age . The IDQoL has been used in children under 6 and 7 years of age, although it is only meant to be used in infants. Using this measure in older children was explained as being necessary because of the education system in the Czech Republic .…”

Section: Resultsmentioning

confidence: 99%

Quality of life measurement in atopic dermatitis. Position paper of the European Academy of Dermatology and Venereology (EADV) Task Force on quality of life

Chernyshov

Tómas-Aragonés

Manolache³

et al. 2017

Acad Dermatol Venereol

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There is a need for researchers to have easy reference to the wide spectrum of different types of quality of life (QoL) instruments that can be used in atopic dermatitis (AD). Previous reviews on QoL in AD do not cover the full spectrum of QoL measures used in studies on AD. This study, on behalf of the European Academy of Dermatology and Venereology (EADV) Task Force on QoL, contains information on instruments available for health-related QoL and family QoL assessment in AD including information on validation, experience of QoL assessment in AD for different purposes, peculiarities of QoL assessment in different age groups, expert analysis of available instruments including data on limitations of their use and recommendations of the Task Force.

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A comparative study of the impairment of quality of life in Czech children with atopic dermatitis of different age groups and their families

Cited by 24 publications

References 26 publications

Hidden Victims of Childhood Vitiligo: Impact on Parents’ Mental Health and Quality of Life

Hidden Victims of Childhood Vitiligo: Impact on Parents’ Mental Health and Quality of Life

Mild Eczema Affects Self-perceived Health among Pre-adolescent Girls

Quality of life measurement in atopic dermatitis. Position paper of the European Academy of Dermatology and Venereology (EADV) Task Force on quality of life

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