A Concept Analysis of Uncertainty in Illness

McCormick, Kim M.

doi:10.1111/j.1547-5069.2002.00127.x

Cited by 135 publications

(101 citation statements)

References 24 publications

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“…It is recognised as a central component of any illness experience (Babrow and Kline 2000) where a number of components including unpredictability, and lack of information are considered to underlie the process (McCormick 2002). Developments in medical technologies have made it increasingly possible to detect disease at progressively earlier stages and provided information about the probability of disease development.…”

Section: Uncertainty Managementmentioning

confidence: 99%

An Uncertain Future: Infertility and Chlamydial Infection

Piercy¹

2009

Emotions in Midwifery and Reproduction

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IntroductionThis chapter considers the extent to which women regard an episode of genital chlamydial infection as a threat to their reproductive capabilities and the ways in which they manage the resultant anxieties. This discussion is founded upon the findings from a qualitative research study undertaken in central England which explored the experiences of women who were diagnosed with genital chlamydial infection and the ways in which they made sense of that experience.

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Section: Uncertainty Managementmentioning

confidence: 99%

An Uncertain Future: Infertility and Chlamydial Infection

Piercy¹

2009

Emotions in Midwifery and Reproduction

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“…(70,71) As evidências deste estudo destacaram que a família vive a experiência da incerteza devido ao próprio diagnóstico, devido à insegurança na efetividade do tratamento, por não conseguir ter pistas em relação ao prognóstico, o que gera muito sofrimento para os membros da família. "A incerteza do prognóstico é inerente ao câncer.…”

Section: Discussionunclassified

“…Para Frank (70) , o sofrimento é o que faz a doença ser uma questão a ser estudada, assim como a doença é o que faz o cuidado em saúde um tema de interesse.…”

Section: Considerações Finaisunclassified

“…Outros estudos na área de investigação da experiência da doença em contextos diferentes que o do câncer pediátrico têm destacado a importância das narrativas para aliviar ou diminuir o sofrimento da pessoa acometida por uma doença grave ou crônica. (5,15,68,70) Foi possível perceber que a família encontrou espaço no momento da entrevista para contar suas histórias, ressaltando seus medos e incertezas, expressando sentimentos e sensações que as faziam sofrer. Ao final da entrevista era comum notar que a família mostrava-se mais aliviada, mesmo que ainda após a entrevista muito do que foi falado perpetuasse em seus pensamentos.…”

Section: Considerações Finaisunclassified

“…É uma experiência intensa realizar o que Frank (70) recomenda acerca do uso de narrativas para acessar o sofrimento do outro, ou seja, pensar menos sobre as histórias e mais com as histórias, o que significa dizer ouvir o silêncio, as histórias que resistem em se tornar narrativas.…”

Section: Considerações Finaisunclassified

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Incerteza e sacrifício: o sofrimento na vida familiar invadida pelo câncer da criança

Cunha¹

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Explicit prognostic disclosure to Asian women with breast cancer: A randomized, scripted video‐vignette study (J‐SUPPORT1601)

Mori

Fujimori

Vliet

et al. 2019

Cancer

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BACKGROUND: Nondisclosure of a poor prognosis to patients with advanced cancer remains a typical practice in Asia. Although the importance of prognostic communication has increasingly been recognized worldwide, little is known about whether explicit prognostic disclosure positively affects Asian patients with advanced cancer. The objective of this study was to examine the effects of explicit prognostic communication on patients with cancer recurrence. METHODS: In this randomized, video-vignette study, Japanese women with breast cancer who had undergone curative surgery viewed videos of prognostic communication between a patient with recurrent, incurable breast cancer and her oncologist. The videos differed only in the presence or absence of explicit prognostic disclosure. The primary outcome was participants' uncertainty (rated from 0 to 10), and the secondary outcomes included anxiety (measured on the State-Trait Anxiety Inventory-State: range, 20-80), satisfaction (Patient Satisfaction Questionnaire; range 0-10), self-efficacy (range, 0-10), and willingness to discuss advance care planning (range, 1-4). RESULTS: In total, 105 women participated (mean ± SD age, 53.8 ± 8.2 years). After viewing the video with more versus less explicit disclosure, participants showed significantly lower uncertainty (mean ± SE scores, 5.3 ±0.2 vs 5.7 ± 0.2, respectively; P = .032) and higher satisfaction (5.6 ± 0.2 vs 5.2 ± 0.2, respectively; P = .010) without increasing anxiety (changes in scores on the State-Trait Anxiety Inventory-State: 0.06 ± 0.5 vs 0.6 ± 0.5, respectively; P = .198). No significant differences were observed in self-efficacy (5.2 ± 0.2 vs 5.0 ± 0.2, respectively; P = .277) or willingness to discuss advance care planning (2.7 ± 0.1 vs 2.7 ± 0.1, respectively; P = .240). CONCLUSIONS: Explicit prognostic disclosure prompted better outcomes than nondisclosure in Japanese women with breast cancer. When asked about the prognosis by Asian patients with cancer, clinicians may be encouraged to respect their wishes and explicitly discuss the prognosis if deemed appropriate. Cancer 2019;125:3320-3329.

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A Concept Analysis of Uncertainty in Illness

Cited by 135 publications

References 24 publications

An Uncertain Future: Infertility and Chlamydial Infection

An Uncertain Future: Infertility and Chlamydial Infection

Incerteza e sacrifício: o sofrimento na vida familiar invadida pelo câncer da criança

Explicit prognostic disclosure to Asian women with breast cancer: A randomized, scripted video‐vignette study (J‐SUPPORT1601)

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