A consensual qualitative research analysis of the experience of inmate hospice caregivers: Posttraumatic growth while incarcerated

Depner, Rachel M.; Grant, Pei C; Byrwa, David J.; Breier, Jennifer M.; Lodi‐Smith, Jennifer; Kerr, Christopher; Luczkiewicz, Debra L.

doi:10.1080/07481187.2016.1237591

Cited by 13 publications

(26 citation statements)

References 36 publications

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“…The review identified 23 articles, 16 reporting qualitative methods2 3 29–42(table 3), six reporting quantitative methods8 9 43–46(table 4) and one reporting mixed methods4(table 3). Methodological diversity was high across all groups.…”

Section: Resultsmentioning

confidence: 99%

“…Thirteen articles reported findings from six studies based in the USA,8 9 29–33 36 39–43 four articles reported findings from three studies based in the UK,4 35 38 45 three articles reported findings from two studies based in Switzerland,3 34 37 two articles reported findings from one study in France2 46 and one article reported findings from a study in India 44. The articles reported on a broad range of areas, including prison healthcare facilities,43 45 the health of dying prisoners and causes of death,8 9 44 46 elderly and dying prisoners views on issues related to palliative and end of life care in prisons3 4 34 36 40 and inmate volunteer caregivers 30–33 42. Of the 19 studies which sampled prisoners (or their case records),2–4 8 9 29–34 36–38 40–42 44 46 12 dealt exclusively with male prisoners,4 8 29 30 32 33 36–38 40–42 and seven with male and female prisoners 2 3 9 31 34 44 46…”

Section: Resultsmentioning

confidence: 99%

“…The articles reported on a broad range of areas, including prison healthcare facilities,43 45 the health of dying prisoners and causes of death,8 9 44 46 elderly and dying prisoners views on issues related to palliative and end of life care in prisons3 4 34 36 40 and inmate volunteer caregivers 30–33 42. Of the 19 studies which sampled prisoners (or their case records),2–4 8 9 29–34 36–38 40–42 44 46 12 dealt exclusively with male prisoners,4 8 29 30 32 33 36–38 40–42 and seven with male and female prisoners 2 3 9 31 34 44 46…”

Section: Resultsmentioning

confidence: 99%

“…Prisoners’ general thoughts on death and dying were widely represented across the qualitative studies,3 4 32 34 36 40–42 and were varied. Some were accepting of death as something inevitable and natural3 32 (median SQS=90%; range 85% to 95%, n=2 studies), others found prolonged and frequent exposure to death in prison to be demoralising36 40 42 (median SQS=88%; range 83% to 90%, n=3 studies).…”

Section: Resultsmentioning

confidence: 99%

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Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014–2018

McParland

Johnston

2019

BMJ Open

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ObjectivesTo explore current practice in relation to palliative and end of life care in prisons, and to make recommendations for its future provision.DesignA rapid literature review of studies using qualitative, quantitative and mixed-methods, with a narrative synthesis of results.Data sourcesSix databases searched between January 2014 to December 2018: ASSIA, CINAHL, Embase, MEDLINE, National Criminal Justice Reference Service Abstracts and Scopus.Eligibility criteriaPrimary research articles reporting qualitative or quantitative findings about palliative and end of life care in prisons, published in peer-reviewed, English language journals between January 2014 to December 2018.ParticipantsPrisoners, prisoners’ families, prison healthcare staff and other prison staff.Data extraction/synthesisData extracted included: citation, design, aim, setting, sample/population, methods and key findings. Data were analysed thematically then subject to a narrative synthesis in order to answer the research questions.Quality appraisalTwo researchers independently appraised articles using the Qualsyst tool, by Kmet et al (2004). Aggregate summary quality scores are included with findings. Articles were not excluded based on quality appraisal.Results23 articles were included (16 qualitative, 6 quantitative, 1 mixed methods). Top three findings (by prevalence) were: fostering relationships with people both inside and outside of prison is important to prisoners with palliative and end of life care needs, inmate hospice volunteers are able to build and maintain close relationships with the prisoners they care for and the conflicting priorities of care and custody can have a negative impact on the delivery of palliative and end of life care in prisons.ConclusionsThe key findings are: relationships are important to prisoners at the end of life, inmate hospice volunteers can build close bonds with the prisoners in their care and the prison environment and regime conflicts with best practices in palliative and end of life care. Directions for future research are also identified.PROSPERO registration numberPROSPERO ID: CRD42019118737. Registered January 2019.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014–2018

McParland

Johnston

2019

BMJ Open

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“…The team coded transcripts using a deductive approach guided by the COM-B as a coding framework. The coding process was guided by consensual qualitative research (CQR) procedures [30]. First, each team member read three transcripts independently and identi ed preliminary codes.…”

Section: Qualitative Studymentioning

confidence: 99%

Hypertension Care Cascade at a Large Urban HIV Clinic in Uganda: A Mixed Methods Study Using the Capability, Opportunity, Motivation for Behavior Change (COM-B) Model

Muddu

Ssinabulya

Kigozi

et al. 2020

Preprint

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Background: Persons Living with HIV (PLHIV) receiving antiretroviral therapy (ART) have a high prevalence of hypertension (HTN) and increased risk of mortality from cardiovascular diseases. HTN and HIV care integration is recommended in Uganda, though its implementation has lagged. In this study, we sought to analyze the HTN and HIV care cascades and explore barriers and facilitators of HTN/HIV integration within a large HIV clinic in urban Uganda.Methods: We conducted an explanatory sequential mixed methods study at Mulago ISS clinic in Kampala, Uganda. We determined proportions of patients in HTN and HIV care cascade steps of: Screened, Diagnosed, Initiated on treatment, Retained, and Controlled. Guided by the Capability, Opportunity, Motivation and Behavior (COM-B) model, we then conducted semi-structured interviews and focus group discussions with healthcare providers and hypertensive PLHIV (n=45). We coded the qualitative data deductively and analyzed the data thematically categorizing them as themes that influenced HTN care positively or negatively. These denoted barriers and facilitators, respectively.Results: Of 15,953 adult PLHIV, 99.1% were initiated on ART, 89.5% were retained in care and 98.0% achieved control (viral suppression) at one year. All 15,953 (100%) participants were screened for HTN, of whom 24.3% had HTN. HTN treatment initiation, one-year retention, and control were low at 1.0%, 15.4% and 5.0%, respectively. Barriers and facilitators of HTN/HIV integration appeared in all three COM-B domains. Barriers included low patient knowledge of HTN complications, less priority by patients for HTN treatment compared to ART, sub-optimal provider knowledge of HTN treatment, lack of HTN treatment protocols, inadequate supply of anti-hypertensive medicines and lack of HTN care performance targets. Facilitators included patients’ and providers’ interest in HTN/HIV integration, patients’ interest in PLHIV peers support, providers’ knowledge and skills for HTN screening, optimal ART adherence counseling, and availability of automated BP machines. Conclusion: The prevalence of HTN among PLHIV is high, but the HTN care cascade is sub-optimal in this successful HIV clinic. To close these gaps, models of integrated HTN/HIV care are urgently needed. These findings provide a basis for designing contextually appropriate interventions for HTN/HIV integration in Uganda and other low and middle-income countries.

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Exploring the Experience of Posttraumatic Growth Following Imprisonment: A Mixed Methods Systematic Review

Gormley,

Cunningham,

McFadden

et al. 2024

Journal of Forensic Psychology Research and Practice

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A consensual qualitative research analysis of the experience of inmate hospice caregivers: Posttraumatic growth while incarcerated

Cited by 13 publications

References 36 publications

Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014–2018

Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014–2018

Hypertension Care Cascade at a Large Urban HIV Clinic in Uganda: A Mixed Methods Study Using the Capability, Opportunity, Motivation for Behavior Change (COM-B) Model

Exploring the Experience of Posttraumatic Growth Following Imprisonment: A Mixed Methods Systematic Review

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