A guide to differences/disorders of sex development/intersex in children and adolescents

Vora, Komal; Srinivasan, Shubha

doi:10.31128/ajgp-03-20-5266

Cited by 10 publications

(14 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Out of the final 12 articles, 6 were theoretical, [11][12][13][14][15][16] 5 were empirical [17][18][19][20][21] and 1 was a mixed-method study. 9 Onethird (4) of the articles were published in the UK, 9 11 12 18 the other third in the USA 13 15 17 20 and the remaining third came from Switzerland and Germany, 21 Sweden and UK, 19 Australia 16 and Germany 14 (see tables 2 and 3).…”

Section: General Characteristics Of Included Studiesmentioning

confidence: 99%

“…Ideal and actual composition of MDT According to most theoretical studies MDT ideally consist of an endocrinologist, an urologist and a surgeon. [11][12][13][14][15][16] Some papers also include geneticists, [11][12][13][14] psychologists, 11-15 gynaecologists 12-14 16 and radiologists. 11 13 14 However in practice, the core team was composed of endocrinologists, 9 17-21 accompanied almost always by urologists/surgeons, 9 17 19-21 geneticists, 9 18-20 gynaecologists 9 19-21 and psychologist/psychiatrists.…”

Section: Open Accessmentioning

confidence: 99%

“…In most studies, [11][12][13][14][15][16][17][18][19][20][21] the model of collaboration-multidisciplinary, interdisciplinary or transdisciplinarywas not explicitly mentioned. Still most of the papers seemed to indicate a multidisciplinary approach in MDTs described as the simultaneous but independent contribution of two or more team members.…”

Section: Models Of Collaboration and Barriersmentioning

confidence: 99%

“…In most empirical [17][18][19][20][21] and theoretical [11][12][13][14][15][16] articles the model of collaboration was not explicitly mentioned but most of the papers seem to indicate that MDTs take a multidisciplinary approach insofar the teamwork was described as the simultaneous and independent contribution of two or more team members. Only the mixedmethods study of Sanders and colleagues 9 included an interprofessional team approach where patients, parents and members of the MDT actively cooperate in the treatment process in order to cocreate knowledge and improve the care of people with VSC and help parents cope with their child's condition.…”

Section: Models Of Collaboration and Barriersmentioning

confidence: 99%

“…19 Only one study 21 pointed out the emotional distancing and difficulties of medical professionals to distinguish facts from assumptions as obstacle to collaboration process. One-fourth [15][16][17] of the papers did not specify any barriers to collaboration process.…”

Section: Models Of Collaboration and Barriersmentioning

confidence: 99%

See 4 more Smart Citations

Multidisciplinary teams caring for people with variations of sex characteristics: a scoping review

Gramc

Streuli

Clercq

2021

bmjpo

View full text Add to dashboard Cite

BackgroundIn 2006 the Chicago consensus statement on the management of people with variations of sex characteristics (VSC) acknowledged the importance of a multidisciplinary team (MDT) approach. The consensus update from 2016 reinforced the call for multidisciplinary collaborations between medical professionals, parents and support groups, and proposed guidelines to improve shared decision making and patient-centred care embedded in ethical principles of self-determination and child participation. But there is little evidence that successfully MDTs have been implemented in clinical practice.Methods and aimsA scoping review was conducted to identify studies that address the collaboration and decision making process of MDTs providing care of people with VSC to identify ideal and actual (1) team composition; (2) models of collaboration and (3) ethical principles that MDTs follow. Six databases were systematically searched: CINAHIL, Medline, Psychinfo, Scopus, Socindex and Web of Science. No restriction was placed on the type of methodology used in the studies. To frame the research, the Preferred Reporting Items for Systematic Reviews and Meta-Analyses was used.ResultsThe MDTs in the literature include mainly medical professionals: endocrinologists, urologists and surgeons. The collaboration among medical professionals in MDTs lacks cooperation as one team member sets the tasks of the team while each professional works separately. Despite the importance of psycho-social support the involvement of psychologists remains secondary. The implementation of ethical principles tends to exclude people with VSC.ConclusionThe care of people with VSC described in the papers is medically oriented as the team members are mainly medical professionals working separately. MDT tend to exclude people with VSC despite references to shared decision making processes and informed consent. There was no mention of adult care and lack of inclusion of patient’s perspective in the care process. The future research should do more empirical research of MDTs.

show abstract