A longitudinal study of the life histories of people with spinal cord injury

Sullivan, Mike; Paul, Charlotte; Herbison, Peter; Tamou, Peina; Derrett, Sarah; Crawford, Matthew D.

doi:10.1136/ip.2010.028134

Cited by 7 publications

(9 citation statements)

References 77 publications

(53 reference statements)

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“…Participants differed from non-participants in relation to ethnicity only; when self-reported ethnicity was asked, the proportion reporting Māori ethnicity met our prior expectations 1. Fewer participants reported non-traumatic SCI than anticipated.…”

Section: Discussionmentioning

confidence: 58%

“…Our longitudinal study was funded within a (previous) Health Research Council of New Zealand grant aimed at developing New Zealand's research capacity among people with disability. The principal investigator (MS), study interviewers (including CB), advisors and others, are people with SCI, as called for by people with SCI in the developmental phase of the project 1 19 20…”

Section: Discussionmentioning

confidence: 99%

“…The longitudinal study aims to investigate how entitlement to rehabilitation and compensation affects socioeconomic and health outcomes for working-age people potentially able to access earnings-related compensation or invalid's benefits 1. Therefore, the longitudinal study recruited people aged 16–64 years, admitted to either spinal unit with SCI during a 2-year period.…”

Section: Methodsmentioning

confidence: 99%

“…A longitudinal cohort study of people with spinal cord neurological impairment (SCI) in New Zealand is underway 1. New Zealand has no SCI register, and little is known about people with SCI in New Zealand—despite previously reported high rates of traumatic SCI and the impact on individuals and their families 1 2…”

Section: Introductionmentioning

confidence: 99%

“…New Zealand has no SCI register, and little is known about people with SCI in New Zealand—despite previously reported high rates of traumatic SCI and the impact on individuals and their families 1 2…”

Section: Introductionmentioning

confidence: 99%

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Traumatic and non-traumatic spinal cord impairment in New Zealand: incidence and characteristics of people admitted to spinal units

et al. 2012

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This paper estimates the incidence (all ages) of spinal cord neurological impairment (SCI; traumatic and non-traumatic) in New Zealand and describes pre-SCI characteristics and early post-SCI outcomes for participants (16–64 years) in this longitudinal study. Demographic and clinical data on all people admitted to New Zealand's two spinal units (mid-2007 to mid-2009) were included for the estimate of incidence. Participants in this longitudinal study were asked at first interview about pre-SCI socio-demographic, health and behavioural characteristics, and about post-SCI symptoms, general health status (EQ-5D) and disability (WHODAS 12-item). Age-adjusted incidence rates (95% CI) for European, Māori, Pacific and ‘Other’ ethnicities were 29 (24–34), 46 (30–64), 70 (40–100) and 16 (9–22) per million, respectively. Interviews with 118 (73%) participants (16–64 years), occurred 6.5 months post-SCI. Most reported bother with symptoms, and problems with health status and disability. Compared with Europeans, the incidence of SCI is high among Māori and particularly high among Pacific people. Six months after SCI, proximate to discharge from the spinal units, considerable symptomatic, general health and disability burden was borne by people with SCI.

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Section: Discussionmentioning

confidence: 58%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Traumatic and non-traumatic spinal cord impairment in New Zealand: incidence and characteristics of people admitted to spinal units

et al. 2012

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Methodological Issues in Work Disability Prevention Research

Hogg‐Johnson

MacEachen

2013

Handbook of Work Disability

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Life satisfaction 18 months and 10 years following spinal cord injury: results from a New Zealand prospective cohort study

et al. 2023

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Purpose To examine the life satisfaction outcomes after spinal cord injury (SCI) and to identify the factors associated with life satisfaction at 18 months and 10 years post-SCI in New Zealand (NZ). Methods Adults (16–64 years) were recruited between 2007 and 2009 from NZ’s two spinal units following first admission for SCI. Interviews at 6 months, 18 months, and 10 years post-SCI examined demographic, physical, psychosocial, economic, and environmental characteristics. Multivariable regression models were used to identify predictors of life satisfaction at each timepoint. Results Overall, 118 people participated at 6 months, 103 at 18 months, and 63 at 10 years post-SCI. Pre-SCI, 90% of participants were satisfied with life, 67% were satisfied at 18 months, and 78% at 10 years. At 18 months post-SCI, participants who reported: never or sometimes using a wheelchair, no problems with self-care, no problems with anxiety or depression, no/lesser disability, or fewer secondary health conditions (SHCs) at 6 months post-SCI were more likely to be satisfied (p < 0.05), compared to those without these characteristics. Participants who experienced considerable disability at 6 months post-SCI were 22% less likely to be satisfied 10 years post-SCI compared to those experiencing no/lesser disability (p = 0.028). Conclusions A higher proportion of participants were satisfied at both 18 months and 10 years post-SCI than not satisfied. To improve the likelihood of satisfaction with life, increased focus on reducing disability and providing supports for those using wheelchairs, experiencing anxiety/depression or problems with self-care, and effects of SHCs are promising for future potential interventions.

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A longitudinal study of the life histories of people with spinal cord injury

Abstract: Descriptive statistics; differences tested by paired t tests or McNemar tests; multiple regression and mixed models. Qualitative analysis will be interpretive.

Cited by 7 publications

References 77 publications

Traumatic and non-traumatic spinal cord impairment in New Zealand: incidence and characteristics of people admitted to spinal units

Traumatic and non-traumatic spinal cord impairment in New Zealand: incidence and characteristics of people admitted to spinal units

Methodological Issues in Work Disability Prevention Research

Life satisfaction 18 months and 10 years following spinal cord injury: results from a New Zealand prospective cohort study

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