A narrative literature review of palliative care regarding patients with idiopathic pulmonary fibrosis

Igai, Yasuko

doi:10.1002/nop2.163

Cited by 5 publications

(6 citation statements)

References 41 publications

(153 reference statements)

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“…This has led to more symptom burden, longer hospital stays, life prolonging treatments and lower level of patient satisfaction. 8,21,22 Symptom Burden Is High in Patients With ILD Irrespective of the cause or histological pattern; patients with chronic ILD suffer from cough, dyspnea, fatigue and risks leading to reduced emotional well-being. All, if untreated, will lead to a severely impaired quality of life.…”

Section: Patients With Ild Have Unmet Palliative Care Needsmentioning

confidence: 99%

“…It has not however changed the likelihood that the patient will die in an acute care facility. 21,23,33 Based on the British Thoracic Society, national institute for health and care excellence (NICE) and the WHO, palliative care teams should be involved in management of any patient who suffers from IPF to ensure symptom control and psychological support. Palliative care should be involved if a patient suffers from the progressive fibrotic form of the disease, disease that is advanced and irreversible, more than 70 years of age, prior disease exacerbations, radiographic findings consistent with usual interstitial pneumonia and an increased dependence in daily life activities and reduced functional autonomy.…”

Section: Clinical Recommendations For Providing Palliative Care To Pa...mentioning

confidence: 99%

“…This has led to more symptom burden, longer hospital stays, life prolonging treatments and lower level of patient satisfaction. 8,21,22…”

Section: Patients With Ild Have Unmet Palliative Care Needsmentioning

confidence: 99%

“…It has not however changed the likelihood that the patient will die in an acute care facility. 21,23,33…”

Section: There Are Barriers To Meeting the Palliative Care Needs Of P...mentioning

confidence: 99%

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Palliative Care for the Interstitial Lung Disease Patient a Must and Not Just a Need

Chaaban

McCormick

Gleason

et al. 2021

Am J Hosp Palliat Care

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Patients with interstitial lung disease (ILD) have many unmet palliative care needs. The majority of patients with chronic ILD have poor access to a specialist in palliative medicine and that is due to several barriers. The mortality for the ILD patient is high and reaches up to 80% if admitted to the ICU with respiratory failure. Palliative care addresses symptoms in diseases where cure is unlikely or impossible. Palliative care consultation also ensures communication among patients, caregivers and providers regarding treatments, prognosis, and end of life planning. Methods: We performed a literature review on palliative care and ILD, accessing articles published since 2002. We found 71 articles related to the topic. We chose 37 that were most relevant and with no redundancy of information to include in this review. Objectives: Summarize the palliative care needs of patients with ILD, discuss the barriers to receiving palliative care, and summarize clinical practice for providing palliative care to this patient population.

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Section: Patients With Ild Have Unmet Palliative Care Needsmentioning

confidence: 99%

Section: Clinical Recommendations For Providing Palliative Care To Pa...mentioning

confidence: 99%

“…This has led to more symptom burden, longer hospital stays, life prolonging treatments and lower level of patient satisfaction. 8,21,22…”

Section: Patients With Ild Have Unmet Palliative Care Needsmentioning

confidence: 99%

“…It has not however changed the likelihood that the patient will die in an acute care facility. 21,23,33…”

Section: There Are Barriers To Meeting the Palliative Care Needs Of P...mentioning

confidence: 99%

See 2 more Smart Citations

Palliative Care for the Interstitial Lung Disease Patient a Must and Not Just a Need

Chaaban

McCormick

Gleason

et al. 2021

Am J Hosp Palliat Care

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“…A systematic narrative literature review about palliative care for those with IPF found that the study designs were mostly qualitative or retrospective studies and were very limited (Igai, 2018 ). All nine retrospective studies reported that end‐of‐life discussions were less common with patients with IPF than with patients with cancer (41% vs 59%, respectively).…”

Section: Introductionmentioning

confidence: 99%

Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study

Igai

Porter

2022

Nursing Open

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Idiopathic pulmonary fibrosis (IPF) is a rare, intractable and fatal disease (Mei et al., 2022). Maher et al. (2021) target literature review covering 2009 to 2020 found 22 studies covering 12 countries. The adjusted incidence was from .09-1.30 per 10,000. The adjusted prevalence was from 3-4.51 per 10,000. The lowest incidence and prevalence were found in the Asia-Pacific countries with the exception of South Korea with the highest of all countries. Globally, the incidence is increasing (Maher et al., 2021;Strongman et al., 2018). Japanese people with IPF have a faster illness progressive course; deaths due to acute exacerbations are 40%, although, in other countries 25% died due to respiratory failure (Natsuizaka et al., 2014).

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European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease

Janssen,

Bajwah,

Boon

et al. 2023

Eur Respir J

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There is increased awareness of palliative care needs in people with chronic obstructive pulmonary disease (COPD) or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration of palliative care into the respiratory care of adult people with COPD or ILD.The ERS task force consisted of 20 members, including representatives of people with COPD or ILD and informal caregivers. Eight questions were formulated, four in the ‘Population, Intervention, Comparison, Outcome’ (PICO) format. These were addressed with full systematic reviews and application of Grading of Recommendations Assessment, Development and Evaluation (GRADE) for assessing the evidence. Four additional questions were addressed narratively. An ’evidence-to-decision’ framework was used to formulate recommendations.The following definition of palliative care for people with COPD or ILD was agreed: A holistic and multidisciplinary, person-centred approach aiming to control symptoms, and improve quality of life of people with serious health-related suffering because of COPD or ILD, and to support their informal caregivers. Recommendations were made regarding people with COPD or ILD and their informal caregivers to: consider palliative care when physical, psychological, social, or existential needs are identified through holistic needs assessment; offer palliative care interventions, including support for informal caregivers, in accordance with such needs; offer advance care planning in accordance with preferences; and integrate palliative care into routine COPD and ILD care. Recommendations should be reconsidered as new evidence becomes available.

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A narrative literature review of palliative care regarding patients with idiopathic pulmonary fibrosis

Cited by 5 publications

References 41 publications

Palliative Care for the Interstitial Lung Disease Patient a Must and Not Just a Need

Palliative Care for the Interstitial Lung Disease Patient a Must and Not Just a Need

Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study

European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease

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