A new biopsychosocial and clinical questionnaire to assess juvenile idiopathic arthritis: JAB-Q

Ünal, Edibe; Batu, Ezgi Deniz; Sönmez, Hafize Emine; Arıcı, Zehra Serap; Arın, Gamze; Karaca, Nur Banu; Sağ, Erdal; Hakli, Duygu Aydin; Özçadırcı, Aykut; Oflaz, F.B.; Alpar, Reha; Bilginer, Yelda; Özen, Seza

doi:10.1007/s00296-018-4075-4

Cited by 8 publications

(3 citation statements)

References 40 publications

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“…A statistically significant relationship was found between the education levels of the parents and the results of the CHAQ—general evaluation and JAB‐Q family evaluation. Low scores on these scales indicate that patients and their families are in better condition in terms of daily living activities—functionality and biopsychosocial [ 12 , 13 ]. Obtaining lower scores as the education level of the parents increases draws attention to the importance of education in combating the disease and its effects.…”

Section: Discussionmentioning

confidence: 99%

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Health Literacy Levels of Patients With Juvenile Idiopathic Arthritis and Their Parents

Doğan,

Karaca,

Buran

et al. 2024

Health Expectations

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BackgroundThe aim of this study was to reveal the relationship between the health literacy (HL) levels of children with juvenile idiopathic arthritis (JIA) and their parents, and the general health status and physical performance of the children.MethodsThis study included 79 children aged 9–18 years with a diagnosis of JIA and one of their parents. HL levels were evaluated with the Turkish version of the Health Literacy for School‐Aged Children and Turkish Health Literacy‐32 (THL‐32) for children and Adult Health Literacy Scale (AHLS) for their parents. The Childhood Health Assessment Questionnaire (CHAQ), 6‐minute walk test (6‐MWT), 10‐meter walking test (10‐MWT) and 10‐stair climbing test (10‐SCT) was used to evaluate the children. Juvenile Arthritis Biopsychosocial Questionnaire (JAB‐Q) was used to assess the children's and parents' psychosocial status and perception of health.ResultsHL levels of patients with JIA were 16.5% low HL, %55.7 moderate HL and 27.8% high HL. According to THL‐32 scale score, HL level of parents were as follows: inadequate, 3.8%; problematic, 22.8%; sufficient, 34.2%; and excellent, 39.2%. Children's HL levels increase positively as they get older, and no significant relationship was found with other parameters. The AHLS, CHAQ and JAB‐Q scores were better in the group with higher education levels of the parents. No statistically significant association was found between the HL of the children and that of the parents.ConclusionIn our study, it was found that the high education levels of the parents positively affected the quality of life and physical condition of their children and parental HL levels. In addition, it was shown that the HL levels of children with JIA were not statistically related to other parameters.Patient or Public ContributionChildren diagnosed with JIA and one of their parents actively participated in the study. Feedback from children and families provided important information about obtaining and using HL information before and during the study. The importance of therapy programs and information focusing on the patient and their family, as well as the inter‐multidisciplinary approach, in combating a chronic disease at an early age was reinforced by the feedback received from patients and their families.

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Section: Discussionmentioning

confidence: 99%

“…This questionnaire evaluates the problems experienced by both the child and the parent from a biopsychosocial perspective [ 13 ]. It includes two separate forms for the child (patient) and parent (family) to complete.…”

Section: Methodsmentioning

confidence: 99%

Health Literacy Levels of Patients With Juvenile Idiopathic Arthritis and Their Parents

Doğan,

Karaca,

Buran

et al. 2024

Health Expectations

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“…The JAB-Q was used to assess the biopsychosocial status of the patients and their parents. 22 The JAB-Q is a multidimensional questionnaire, and it has 3 parts: clinician, child (patient), and parent (family) forms. Both Turkish (original) and English versions of the questionnaire are available (supplementary file).…”

Section: Methodsmentioning

confidence: 99%

Comparison of Biopsychosocial Characteristics of Children with Juvenile Idiopathic Arthritis According to Common Disease Subtypes

2023

Turk Arch Pediatrics

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Objective: In this study, we assessed the functional and biopsychosocial characteristics of juvenile idiopathic arthritis (JIA) patients according to disease subtypes. Materials and Methods: Child Health Assessment Questionnaire (CHAQ), Juvenile Arthritis Disease Activity Score-71 (JADAS-71), and Juvenile Arthritis Biopsychosocial Questionnaire (JAB-Q) scales were administered to 304 JIA patients, and the subscale of JAB-Q was administered to their families. Results: The median age of JIA patients at diagnosis was 7.9 (5.5-13) years (female/male = 1.3). Most patients were under treatment (68.7%) and had inactive disease (69.3%). While there was no significant difference between JADAS-71 scores according to the JIA subtypes, total CHAQ scores in polyarticular JIA patients were higher than in systemic JIA patients ( P = .005). Enthesitis-related arthritis (ERA) patients had higher JAB-Q fatigue total scores compared to systemic JJIA patients ( P = .001). Juvenile Arthritis Biopsychosocial Questionnaire—child psychosocial status scores were higher in polyarticular JIA patients than oligoarticular and systemic JIA patients ( P = .004 and P = .003, respectively), and they had higher JAB-Q child form total scores than systemic JIA patients ( P = .006). In addition, systemic JIA patients’ parents had higher JAB-Q family total scores compared to oligoarticular JIA patients’ parents ( P = .03). Conclusion: Our results suggest that polyarticular JIA patients had higher CHAQ, JAB-Q psychosocial status, and child form total scores, and the JAB-Q fatigue score was higher in ERA patients. Also, JAB-Q—parent scores were higher in systemic JIA patients’ parents. Biopsychosocial characteristics should be evaluated in both JIA patients and their parents.

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Pediatric rheumatology in Turkey

Adroviç

Kasapçopur

2019

Rheumatol Int

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A new biopsychosocial and clinical questionnaire to assess juvenile idiopathic arthritis: JAB-Q

Cited by 8 publications

References 40 publications

Health Literacy Levels of Patients With Juvenile Idiopathic Arthritis and Their Parents

Health Literacy Levels of Patients With Juvenile Idiopathic Arthritis and Their Parents

Comparison of Biopsychosocial Characteristics of Children with Juvenile Idiopathic Arthritis According to Common Disease Subtypes

Pediatric rheumatology in Turkey

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