A nonsurgical permanent contraception stakeholder advisory committee: FHI 360's experience

Katz, Karen; Nanda, Kavita

doi:10.1016/j.contraception.2015.01.016

Cited by 1 publication

(1 citation statement)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our engagement structure began with a well-established core method: the stakeholder advisory committee (SAC; Fig. 1) [13][14][15][16][17]. The SAC is five physicians and five patients/caregivers, representing six PCORnet Clinical Research Networks (CAPriCORN, GPC, INSIGHT, OneFlorida, PaTH, and REACHnet).…”

Section: Structure Of Our Stakeholder Engagementmentioning

confidence: 99%

The ACTIV-6 Stakeholder Advisory Committee: a model for virtual engagement in decentralized clinical trials

Hamm,

Arnold,

Denson

et al. 2023

J. Clin. Trans. Sci.

View full text Add to dashboard Cite

Introduction: Engaging patients, caregivers, and other stakeholders to help guide the research process is a cornerstone of patient-centered research. Lived expertise may help ensure the relevance of research questions, promote practices that are satisfactory to research participants, improve transparency, and assist with disseminating findings. Methods: Traditionally engagement has been conducted face-to-face in the local communities in which research operates. Decentralized platform trials pose new challenges for the practice of engagement. We used a remote model for stakeholder engagement, relying on Zoom meetings and blog communications. Results: Here we describe the approach used for research partnership with patients, caregivers, and clinicians in the planning and oversight of the ACTIV-6 trial and the impact of this work. We also present suggestions for future remote engagement. Conclusions: The ACTIV-6 experience may inform proposed strategies for future engagement in decentralized trials.

show abstract