A Patient‐Focused Framework Integrating Self‐Management and Informatics

Knight, Elizabeth P.; Shea, RN Kimberly

doi:10.1111/jnu.12059

Cited by 19 publications

(10 citation statements)

References 41 publications

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“…Implementation of CHIT is often driven by provider perspectives and available technologies rather than by the examined needs and motivations of users [ 5 , 9 ]. Of the largest 100 US hospitals, 66 provide mobile apps, but only 2% of patients at these hospitals are using them—an indication that health systems inadequately address the interests of patients in the CHIT design process [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

Characterization of Patient Interest in Provider-Based Consumer Health Information Technology: Survey Study

Featherall¹,

Lapin²,

Chaitoff³

et al. 2018

J Med Internet Res

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BackgroundConsumer health information technology can improve patient engagement in their health care and assist in navigating the complexities of health care delivery. However, the consumer health information technology offerings of health systems are often driven by provider rather than patient perspectives and inadequately address patient needs, thus limiting their adoption by patients. Consideration given to patients as stakeholders in the development of such technologies may improve adoption, efficacy, and consumer health information technology resource allocation.ObjectiveThe aims of this paper were to measure patient interest in different health system consumer health information technology apps and determine the influence of patient characteristics on consumer health information technology interest.MethodsPatients seen at the Cleveland Clinic Neurological Institute were electronically surveyed on their interest in using different consumer health information technology apps. A self-efficacy scale, Patient Health Questionnaire-9 depression screen, and EuroQol 5 dimensions health-related quality of life scale were also completed by patients. Logistic regression was used to determine the influence of patient characteristics on interest in consumer health information technology in the categories of self-management, education, and communication.ResultsThe majority of 3852 patient respondents had an interest in all technology categories assessed in the survey. The highest interest was in apps that allow patients to ask questions of providers (3476/3852, 90.24%) and to schedule appointments (3211/3839, 83.64%). Patient interest in consumer health information technology was significantly associated with greater depression symptoms, worse quality of life, greater health self-efficacy, and smartphone ownership (P<.001 for all listed).ConclusionsPatients should be viewed as active stakeholders in consumer health information technology development and their perspectives should consistently guide development efforts. Health systems should consider focusing on consumer health information technologies that assist patients in scheduling appointments and asking questions of providers. Patients with depression should also be considered for targeted consumer health information technology implementation. Health self-efficacy is a valid predictor of consumer health information technology interest and may play a role in the utilization of consumer health information technologies. Health systems, broadly, should put forth greater effort to understand the needs and interests of patients in the consumer health information technology development process. Consumer health information technology design and implementation may be improved by understanding which technologies patients want.

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Section: Introductionmentioning

confidence: 99%

Characterization of Patient Interest in Provider-Based Consumer Health Information Technology: Survey Study

Featherall¹,

Lapin²,

Chaitoff³

et al. 2018

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…Patients and families often manage chronic illness largely outside of the health care system, focusing on their personal concepts of health as they experience it (69), relying on idiosyncratic concepts of health (69), and selecting nonstandardized forms of treatment. For example, although asthma is more prevalent among women (70), the latter are more likely than men to experience uncontrolled asthma (71) due, in part, to lower rates of adherence to prescription controller therapies (72).…”

Section: Women's Use Of Complementary and Alternative Medicinementioning

confidence: 99%

Women and Lung Disease. Sex Differences and Global Health Disparities

Pinkerton

Harbaugh

Han

et al. 2015

Am J Respir Crit Care Med

124

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There is growing evidence that a number of pulmonary diseases affect women differently and with a greater degree of severity than men. The causes for such sex disparity is the focus of this Blue Conference Perspective review, which explores basic cellular and molecular mechanisms, life stages, and clinical outcomes based on environmental, sociocultural, occupational, and infectious scenarios, as well as medical health beliefs. Owing to the breadth of issues related to women and lung disease, we present examples of both basic and clinical concepts that may be the cause for pulmonary disease disparity in women. These examples include those diseases that predominantly affect women, as well as the rising incidence among women for diseases traditionally occurring in men, such as chronic obstructive pulmonary disease. Sociocultural implications of pulmonary disease attributable to biomass burning and infectious diseases among women in low-to middle-income countries are reviewed, as are disparities in respiratory health among sexual minority women in high-income countries. The implications of the use of complementary and alternative medicine by women to influence respiratory disease are examined, and future directions for research on women and respiratory health are provided.

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“…This can lead to frameworks where the technology is seen in the context of patient centred support, [32].…”

Section: E Hybridmentioning

confidence: 99%

Comparison of Patient Empowerment Frameworks

Akeel

Mundy

2015

2015 International Conference on Healthcare Informatics

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Frameworks offer opportunities for better understanding of the efficacy of patient empowerment. However, some of these frameworks appear to be constituted in different ways by professional body involved in healthcare and research. Through review of existing frameworks and an articulation of patient demands, weaknesses in current structures to support empowerment are explored, and distinction between the frameworks, as well as key constituents of a framework for patient empowerment are determined. Approaches to frameworks aiming at patient empowerment in the ehealth system vary in the dominant motif within the construct. Health centred, patient centred, provider centred, technology centred, and hybrid models are the most common categories of empowerment framework. Current patient empowerment frameworks are complementary concepts, which do not oppose one another but there exist a clear distinction between them.

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A Patient‐Focused Framework Integrating Self‐Management and Informatics

Cited by 19 publications

References 41 publications

Characterization of Patient Interest in Provider-Based Consumer Health Information Technology: Survey Study

Characterization of Patient Interest in Provider-Based Consumer Health Information Technology: Survey Study

Women and Lung Disease. Sex Differences and Global Health Disparities

Comparison of Patient Empowerment Frameworks

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