A scoping review on studies about the quality of life of informal caregivers of stroke survivors

Moura, Ana Samylle Alves; Teixeira, Filipa; Amorim, Mariana; Henriques, Ana; Nogueira, Conceição; Alves, Elisabete

doi:10.1007/s11136-021-02988-x

Cited by 12 publications

(11 citation statements)

References 123 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Increasing evidence shows that psychological conditions of stroke survivors and their caregivers are inextricably linked to their dyadic health 28 29…”

Section: Introductionmentioning

confidence: 99%

Physio-psycho-social interaction mechanism in dyadic health of young and middle-aged stroke survivors and their spousal caregivers: a longitudinal observational study protocol

et al. 2023

View full text Add to dashboard Cite

IntroductionIn recent years, stroke has become more common among young people. Stroke not only has a profound impact on patients’ health but also incurs stress and health threats to their caregivers, especially spousal caregivers. Moreover, the health of stroke survivors and their caregivers is interdependent. To our knowledge, no study has explored dyadic health of young and middle-aged stroke survivors and their spousal caregivers from physiological, psychological and social perspectives. Therefore, this proposed study aims to explore the mechanism of how physiological, psychological and social factors affect dyadic health of young and middle-aged stroke survivors and their spousal caregivers. The findings of this study will provide implications for developing interventions to improve dyadic health of this growing population.Methods and analysesWe will collect data from 57 dyads of young and middle-aged stroke survivors and their spousal caregivers during hospitalisation and at 1, 3, 6, 9 and 12 months after discharge. Questionnaires will be used to collect participants’ demographic information, stress, depression, anxiety, benefit finding, social support, mutuality and quality of life. The following physiological reactions will be collected at baseline, including interleukin 6, tumour necrosis factor-alpha and salivary cortisol.Ethics and disseminationThe study was approved by the ethics review committee of life sciences of Zhengzhou University (No. ZZUIRB2020-53). Prior to being enrolled in the study, participants will be given full and detailed information about the possible risks involved, the informed consent process, confidentiality, the study procedure and secure data storage. Participants will be guaranteed that they can withdraw from the study at any time without providing a reason or leading to any consequences. Both oral and written informed consent will be obtained from all participants. The findings of this proposed study will be disseminated through peer-reviewed journals and academic conferences.

show abstract

“…Increasing evidence shows that psychological conditions of stroke survivors and their caregivers are inextricably linked to their dyadic health 28 29…”

Section: Introductionmentioning

confidence: 99%

Physio-psycho-social interaction mechanism in dyadic health of young and middle-aged stroke survivors and their spousal caregivers: a longitudinal observational study protocol

et al. 2023

View full text Add to dashboard Cite

show abstract

“…A multicenter prospective cohort study conducted in Korea found that the 5-year survival rate after stroke is 74.8%, but 23.8~38.6% of these stroke survivors experience residual disability related to motor function, cognitive function, language, and mobility [1]. These disabilities can cause financial burdens and affect the daily functioning and quality of life of both patients and their families [2].…”

Section: Introduction 1 Backgroundmentioning

confidence: 99%

“…After a stroke patient is discharged from the hospital, their cognitive and functional disability directly affects the quality of life of their family caregivers [2]. More specifically, family caregivers who provide care to patients with cognitive impairment tend to have a lower quality of life than those providing care to patients with preserved cognitive function [16].…”

Section: Introduction 1 Backgroundmentioning

confidence: 99%

Factors Influencing the Quality of Life of Family Caregivers of Stroke Patients: A Cross-Sectional Survey

Lee,

Jung

2023

J Korean Acad Fundam Nurs

View full text Add to dashboard Cite

Purpose: This study aimed to explore the quality of life of family caregivers of stroke patients and investigate how resilience, uncertainty, caregiving appraisal, and patients’ cognitive and functional status affect caregivers’ quality of life. Methods: This descriptive cross-sectional study was conducted between October 2018 and November 2020. In total, 199 family caregivers completed self-reported questionnaires, while their family members who had been diagnosed with stroke within the past 6 months underwent nurse-assisted assessments. The data collected were analyzed using descriptive statistics, comparative analysis, and multiple regression analysis. Results: Most caregivers were female (82.4%) who provided care to stroke patients in the first 6 months after their diagnosis (mean duration: 65.11±34.50 days). More than half of the patients exhibited mild cognitive impairment (63.8%) and varying degrees of functional dependence (67.3%). Family caregiver’s quality of life was significantly associated with the functional dependence of the patient (β=.56), the duration since diagnosis (β=.16), support from other family members (β=-.25), the caregiver’s gender (β=.13), religious affiliation (β=-.19), employment status (β=.14), and caregiving appraisal (β=-.18). These variables explained approximately 61% of the variance in family caregivers’ quality of life. Conclusion: The findings show a decline in the quality of life of family caregivers in the first 6 months after patients had a stroke for the first time. They also emphasize the importance of considering negative caregiving appraisal, patient’s functional dependence, and limited support for caregivers in future intervention research aimed at enhancing caregivers’ quality of life.

show abstract

“…The quality of life and burden of caregivers of stroke survivors is not a virgin area of study, especially in the western world where QoL and the burden of care of individuals are mostly emphasized ( Alquwez & Alshahrani, 2021 ; Byun & Evans, 2015 ; Carod-Artal, 2012 ; Caro et al, 2017 , 2018 ; Moura et al, 2022 ; Persson et al, 2015 ). In lesser quantity, this same area has been explored in African settings ( Akosile et al, 2013 ; Badaru et al, 2017 ; Bello et al, 2021 ; Imarhiagbe et al, 2017 ; Ogunlana et al, 2014 ).…”

Section: Introductionmentioning

confidence: 99%

The Burden and Quality of life of Caregivers of Stroke Survivors with Cognitive Impairment in Selected Healthcare Facilities in Anambra State, Nigeria

Okonkwo

Agbo

Ibeneme

et al. 2022

Gerontology and Geriatric Medicine

View full text Add to dashboard Cite

Objective: To determine the burden and quality of life of caregivers of stroke survivors with cognitive impairment in selected healthcare facilities in Anambra State, Nigeria. Methods: This was a cross-sectional survey using the World Health Organization QOL-BREF and Caregiver Strain Index (CSI) as instruments. Descriptive statistics of frequency, percentage counts, mean and standard deviation were used to summarize the socio-demographics. Spearman’s ranked order correlation; Mann–Whitney U test assessed the correlation and gender and age difference in QoL and caregiver’s burden. Alpha level was set at 0.05. Results: Physical health domain of QOL was slightly moderate (53.29 ± 15.19), psychological health was low (46.33 ± 16.96), social relationship was slightly moderate (51.16 ± 0.31), environmental health was slightly moderate (51.22 ± 15.88), the burden of caregivers was high (6.35 ± 1.29). Conclusion: The quality of life of the caregivers of stroke survivors with cognitive impairment was moderate, and the caregivers’ stress was high in the sample of the population studied.

show abstract

A scoping review on studies about the quality of life of informal caregivers of stroke survivors

Cited by 12 publications

References 123 publications

Physio-psycho-social interaction mechanism in dyadic health of young and middle-aged stroke survivors and their spousal caregivers: a longitudinal observational study protocol

Physio-psycho-social interaction mechanism in dyadic health of young and middle-aged stroke survivors and their spousal caregivers: a longitudinal observational study protocol

Factors Influencing the Quality of Life of Family Caregivers of Stroke Patients: A Cross-Sectional Survey

The Burden and Quality of life of Caregivers of Stroke Survivors with Cognitive Impairment in Selected Healthcare Facilities in Anambra State, Nigeria

Contact Info

Product

Resources

About