A Smartphone Application for Caregivers of Children With Severe Burns: A Survey to Identify Minimum Data Set and Requirements

Abstract

Recent advances in digital health and increasing access to mobile health (mHealth) tools have led to more effective self-care. This study aimed to identify the minimum data set (MDS) and the requirements of a smartphone application (app) to support caregivers of children with severe burns. The study was carried out in three phases in a burn center in the north of Iran in 2022. In the first phase, a literature review was performed. In the second phase, interviews were conducted with 18 caregivers. The third phase was performed in two stages; first, an initial questionnaire was prepared in which the content validity ratio (CVR) and content validity index (CVI) were calculated. The final questionnaire included 71 data elements about the MDS and requirements and open-ended elements. Then, the data elements were surveyed by 25 burn experts using the Delphi technique. The minimum acceptable mean score for each item was 3.75. Out of the 71 elements in the first Delphi round, 51 were accepted. In the second Delphi round, 14 data elements were assessed. The most important elements for the MDS were a family relationship, total body surface area (TBSA), the primary cause of the burn, anatomical location, itch, pain, and infection. User registration, educational materials, caregiver-clinician communication, chat box, and appointment booking were the most highlighted functional requirements. Safe login was the most important element for the non-functional requirements. It is recommended that health managers and software designers use these functionalities in designing smartphone apps for caregivers of children with burns.

Perceived stigmatisation and reliability of questionnaire in the survivors with burns wound: A systematic review and meta‐analysis

“…[1][2][3][4][5][6][7][8][9][10][11][12][13][14] Burns can be defined as damage to the skin or any organic tissue that is mainly caused by fire, electricity, radioactive, radiation, and chemical substances. [15][16][17][18][19][20][21][22][23][24] Burn injuries produce some of the most painful patient experiences [25][26][27][28][29][30][31][32][33][34][35][36][37][38][39][40] and may result in unpleasant physical and psychological outcomes among patients. [41][42][43][44][45][46][47][48][49][50]…”

“…Burn is a health problem that happens all over the world and it has inappropriate effects on society 1‐14 . Burns can be defined as damage to the skin or any organic tissue that is mainly caused by fire, electricity, radioactive, radiation, and chemical substances 15‐24 . Burn injuries produce some of the most painful patient experiences 25‐40 and may result in unpleasant physical and psychological outcomes among patients 41‐57 .…”

A systematic review of medical science students' knowledge and related factors towards burns first aids

“…In addition to the aforementioned factors, skin damage caused by burns can occur due to radiation, electricity, and chemicals. [15][16][17][18][19][20][21][22][23][24] Most of these burns are not fatal and on the other hand, they can even be prevented. 25 Most of these burns happen inside the house, which means that family members are among the first responders to burns.…”

“…Burn injuries occur when part or all layers of the skin are damaged by factors such as hot liquids, solids, and flames, and they go out of their normal state. In addition to the aforementioned factors, skin damage caused by burns can occur due to radiation, electricity, and chemicals 15‐24 . Most of these burns are not fatal and on the other hand, they can even be prevented 25 .…”

Antibiofilm and antimicrobial activity of Lactobacillus cell free supernatant against Pseudomonas aeruginosa isolated from burn wounds

“…Burn is a health problem that happens all over the world and it has inappropriate effects on society 1–13 . Burns can be defined as damage to the skin or any organic tissue that is mainly caused by fire, electricity, radioactive, radiation, and chemical substances 14–30 . Burn injuries produce some of the most painful patient experiences 31–46 and may result in unpleasant physical and psychological outcomes among patients 47–64 .…”