A Study of the Association Between Multidisciplinary Home Care and Home Death Among Thai Palliative Care Patients

Nagaviroj, Kittiphon; Anothaisintawee, Thunyarat

doi:10.1177/1049909116631550

Cited by 8 publications

(16 citation statements)

References 31 publications

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“…In addition, evidence suggests that hospital visits are reduced when community-based palliative care is practiced, where caregivers provide companionship to the patient especially in duration longer than 30 days. 20 This study had a number of limitations. First, not all of the patients in this study were confirmed by genetic testing to have SCA.…”

Section: Discussionmentioning

confidence: 95%

Advance Care Plan and Factors Related to Disease Progression in Patients With Spinocerebellar Ataxia Type 1: A Cross-Sectional Study in Thailand

Gomutbutra

Brandeland

2019

Am J Hosp Palliat Care

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Background: Spinocerebellar ataxia type 1 (SCA1) is an autosomal dominant progressive neurodegenerative disease. Few studies have been conducted regarding advance care planning in this population. Objective: This study explores advance care planning preferences of patients with SCA1 and their association with disease progression and quality of life. Methods: The study examined 12 Thai patients with SCA1 from 2 families living in Thailand. The advance care plan followed a Gold Standards Framework. The 12 patients were interviewed and recorded in video. The research team evaluated neurocognitive functions as measured by the following tests; Scale for the Assessment and Rating of Ataxia (SARA), Berg Balance Score, Mini-Mental Status Examination, and Digit Span and Category Fluency. The quality of life was measured by a Short-Form Health Survey-36 (SF-36). Results: Seven of 12 patients with SCA1 rated communication ability as most important for their quality of life. Patients identified becoming a burden on their family members and ventilator dependence as the most undesirable situations. Half of the patients preferred a hospital as their last place of care. Comparing patients prefer hospital to home has significantly high median SARA (23 vs 11.5; P = .03) and low SF-36 (41.4 vs 72.4; P = .02). Conclusions: Those patients preferring a hospital for end-of-life care exhibited more physical disability and lower quality of life than those who preferred home care. Making assisted living health-care services in the home more readily available and affordable may alleviate concerns of patients facing more severe physical challenges.

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Section: Discussionmentioning

confidence: 95%

Advance Care Plan and Factors Related to Disease Progression in Patients With Spinocerebellar Ataxia Type 1: A Cross-Sectional Study in Thailand

Gomutbutra

Brandeland

2019

Am J Hosp Palliat Care

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“…The studies were from Japan, 26 China, 27 Malaysia, 28 Singapore, 29,30 Thailand, 31 and South Korea. 32 Three studies were retrospective, [29][30][31] one RCT 27 and the…”

Section: Characteristics Of the Included Papermentioning

confidence: 99%

“…No limit apply 29 Cohort 55 18 27 0 Devi et al 28 Cross-sectional 62.5 0 37.5 0 Kim et al 32 Cross-sectional 75 25 0 0 Li et al 27 Randomized control trial 73 0 27 0 Nagaviroj and Anothaisintawee 31 Cohort 73 27 0 0 Tan et al 30 Cohort 64 18 18 0 remaining 3 studies were observational, 26 descriptive, 28 and cross-sectional. 32…”

Section: Pubmedmentioning

confidence: 99%

“…All studies, except one, 29 identified that there was a combination of doctors and nurses who were involved in the palliative home care. Apart from the physician and nurses, 5 studies mentioned other health care professionals (HCPs) who were also involved, who were psychologist 27,31 ; dietitian, physical therapist 27 ; pharmacist 28 ; and social worker. [30][31][32] The majority of the included studies did not mention the payment systems in palliative home care.…”

Section: Description Of Palliative Home Carementioning

confidence: 99%

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The Implementation of Palliative Home Care in Southeast Asian Countries: An Integrative Review

Kristanti

Agastiya

Kurianto

2022

Home Health Care Management & Practice

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In Asia where family caregiving is part of the culture, palliative home care becomes the most suitable service to keep patients close to their family and to reduce costs. There is a wide variety of palliative home care services due to different cultures and levels of involvement of the family. This review aims to explore the implementation of palliative home care in East and Southeast Asian countries. The articles reviewed in this study were obtained from 3 electronic databases: EbscoHost, PubMed, and Scopus. Journal articles that discussed palliative home care for patients with cancer in East and Southeast Asia countries were included. Review papers were excluded. Seven studies were used in the current review. In general, there are 6 services provided for palliative home care in this region, which are daily activity living care, planning and preparation for palliative home care, education and counseling, patients’ follow-up, symptom management, and direct care for family. Most of the programs involve family caregivers during the treatment. The palliative home care team consists of at least a doctor and a nurse. Symptom management is the most common service and direct care for family is the least offered palliative home care service in this region. Alleviating symptoms is one of the targets in palliative care, therefore involving family in symptom management for palliative home care is fundamental. Although caregiving is part of the culture, family members need to be supported to maintain their quality of life.

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“…There are factors associated with the satisfaction of care such as relieving the symptom burden, increasing the patient's self-management of the illness, increasing the receipt of enough information to handle the emergency condition, and relieving the caregiver's burden. They stressed that home PC was an important factor for the patient's home death (11). However, there are very few studies on the aspects of the physicians' ideas, conceptions, or the effects of their ideas in PC quality.…”

Section: Introductionmentioning

confidence: 99%

Perspective and conception of Thai gynecologic oncologists in palliative care

et al. 2021

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Background: Palliative care evidently increases the quality of life among the patients with advanced cancer.However, there are very few studies on the aspects of the physicians' ideas, conceptions, or the effects of their ideas in palliative care quality, especially in Asian countries. This study aimed to evaluate the conception and perspective on palliative care in Thai gynecologic oncologists. Methods:The online survey was distributed to all certificated Thai gynecologic oncologists. The survey could be accessed via working email address, hyperlink, or QR code during May 2020 and January 2021.A 5-point Likert scale captured the perspectives and concepts of palliative care. The association between respondents' characteristics and their choices of content in palliative care, together with their decision making in specified clinical scenarios was analyzed.Results: A total of 207 completed surveys from 320 Thai gynecologic oncologists were received (64.69% participation rate). They prospected a willingness to give the advices to both patients and their families (85.50%), and strongly agreed to introduce palliative care in any stage of cancer at the time of diagnosis (75.80%). The numbers of their palliative cases per year were 5-20 (57.97%) and the palliative care teams were available in their hospitals. They decided to offer early palliative care and do-not-resuscitate, especially for the elders, or patients with advance stages, or recurrent disease. We found that gynecologic oncologists who previously experienced a palliative care training did not show any difference in decision making in specified clinical scenarios, compared with who did not.Conclusions: Thai gynecologic oncologists responded to the conceptions and perspectives in palliative care. Their concepts of early and willingness to offer a palliative care especially in the elders, advanced stage, or recurrent patients were proven, regardless of the experience in palliative care training.

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A Study of the Association Between Multidisciplinary Home Care and Home Death Among Thai Palliative Care Patients

Abstract: Palliative home care was a significant factor enabling patients who want to die at home. We encourage health policy makers to promote the development of community-based palliative care programs in Thailand.

Cited by 8 publications

References 31 publications

Advance Care Plan and Factors Related to Disease Progression in Patients With Spinocerebellar Ataxia Type 1: A Cross-Sectional Study in Thailand

Advance Care Plan and Factors Related to Disease Progression in Patients With Spinocerebellar Ataxia Type 1: A Cross-Sectional Study in Thailand

The Implementation of Palliative Home Care in Southeast Asian Countries: An Integrative Review

Perspective and conception of Thai gynecologic oncologists in palliative care

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