A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team

Abstract

The death of a child creates especially poignant feelings and extreme stress, distress, and devastation for family members and healthcare providers. In addition, serious or long-term illness forces a reconstruction of our experiences with time and space. In this paper, we report on a long-term ethnographic study of a Pediatric Palliative Care Team (PPCT). Using the concepts of spatiality and temporality; Deleuze's concepts of smooth and striated spaces; Innis's concepts of space and time biases; Foucault's concept of heterotopian space-places with multiple layers of meaning; and a related concept of heterokairoi-moments in time with multiple possibilities-we consider how the PPCT constructs and reconstructs meaning in the midst of chaos, ethical dilemmas, and heartbreaking choices.

Pengalaman perawat paliatif anak dalam memberikan perawatan end of life di rumah

“…Perawat yang memiliki ketakutan dan kecemasan tentang kematian akan mempengaruhi kualitas pelayanan yang diberikan kepada pasien (Nilsen et al, 2018;Peters et al, 2013). Berbicara tentang kematian akan menimbulkan perasaan stres yang mendalam, kesusahan, dan keterpurukan yang bisa terjadi pada keluarga maupun penyedia layanan khususnya perawat dan terlebih lagi jika kematian tersebut terjadi pada pasien anak (Davis et al, 2018).…”