A tool to improve patient and public engagement in commissioning sexual and reproductive health and HIV services

Lorenc, Ava; Robinson, Nicola

doi:10.1136/jfprhc-2014-101007

Cited by 12 publications

(23 citation statements)

References 4 publications

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“…Patient engagement can improve the relevance of research to patients, increase uptake of results, and facilitate knowledge translation in concerned communities. [48][49][50][51][52][53] As such, four MLWH living in Canada were engaged in this review as stakeholders. The MLWH included a refugee from Africa, an asylum seeker from Africa, an international student from Asia, and an international student from Western Europe.…”

Section: Patient Engagement In Researchmentioning

confidence: 99%

Barriers and Facilitators Affecting the HIV Care Cascade for Migrant People Living with HIV in Organization for Economic Co-Operation and Development Countries: A Systematic Mixed Studies Review

Arora

Ortiz-Paredes

Engler

et al. 2021

AIDS Patient Care and STDs

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Migrants in countries affiliated with the Organization for Economic Co-operation and Development (OECD) have a higher risk of acquiring HIV, experience delayed HIV diagnosis, and have variable levels of engagement with HIV care and treatment when compared to native-born populations. A systematic mixed studies review was conducted to generate a multilevel understanding of the barriers and facilitators affecting HIV Care Cascade steps for migrant people living with HIV (MLWH) in OECD countries. Medline, Embase, Scopus, CINAHL, and the Cochrane Library were searched on March 25, 2020. Screening, critical appraisal, and analysis were conducted independently by two authors. We used qualitative content analysis and the five-level Socio-Ecological Model (i.e., individual, interpersonal, organizational, community, and policy) to categorize barriers and facilitators. Fifty-nine studies from 17 OECD countries were included. MLWH faced similar barriers and facilitators regardless of their host country, ethnic and geographic origins, or legal status. Most barriers and facilitators were associated with the individual and organizational levels and centered around retention in HIV care and treatment. Adapting clinical environments to better address MLWH's competing needs via multidisciplinary models would address retention issues across OECD countries.

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Section: Patient Engagement In Researchmentioning

confidence: 99%

Barriers and Facilitators Affecting the HIV Care Cascade for Migrant People Living with HIV in Organization for Economic Co-Operation and Development Countries: A Systematic Mixed Studies Review

Arora

Ortiz-Paredes

Engler

et al. 2021

AIDS Patient Care and STDs

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show abstract

“…10 In part, this may stem from limited advice about how to translate general PPI guidance into appropriate practices within SRH, where stigma and need for privacy may mitigate against visible involvement. [11][12][13] Particularly remarkable is lack of attention to the specific challenges of involving young people (hereafter referred to as YP) in SRH-related PPI -a surprising absence given that this age group continues to experience a high burden of poor sexual health outcomes, 14 15 and may be especially susceptible to power differentials within PPI. Opportunities to advance practice are further constrained by limited publication; despite initiatives to increase the visibility of SRH-related PPI, 16 the category for submission of articles focused on involvement often remains unclear, and likely only a fraction of PPI is "written up".…”

Section: How This Study Might Affect Research Practice or Policymentioning

confidence: 99%

Involving young people in sexual health research and service improvement: conceptual analysis of patient and public involvement (PPI) in three projects

Lewis

Boydell

Blake

et al. 2022

BMJ Sex Reprod Health

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BackgroundAlthough increasingly recognised as valuable within sexual and reproductive health (SRH) research and service improvement, examples of patient and public involvement (PPI) are underdocumented, including specific issues relating to young people’s involvement. This article aims to contribute to greater transparency about the practical, methodological and ethical considerations of SRH-related PPI with young people, and to offer recommendations for their meaningful involvement.MethodsGuided by a conceptual tool for evaluating youth participation (the ‘7P’ framework), we analysed learning from PPI within three projects (two academic studies and one service improvement project) that workedwithyoung people to shape sexual health research and practice in Scotland.AnalysisCross-project analysis of seven interconnected domains (purpose, positioning, perspectives, power relations, protection, place and process) generated productive dialogue about the nuances of meaningfully involving young people in shaping SRH research and services. Key learning includes the importance of: young people’s early involvement in agenda-setting for SRH improvement; developing trusting partnerships that can support involvement of diverse groups of young people; creating multiple ways for young people to contribute, including those that do not rely on direct conversation; and formative evaluation of young people’s experiences of involvement.ConclusionsMainstreaming young people’s meaningful involvement in shaping SRH research and services requires systems-level change. Resources are required to support SRH researchers and practitioners to share learning and build sustainable multi-sector partnerships, which in turn can increase opportunities for young people from diverse groups to engage with SRH-related PPI activities.

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“…To this end, standards have been developed on how patient and public involvement in research and clinical services have been developed, alongside efforts to audit the level of patient and public involvement in the delivery of clinical STIs services. [56][57][58][59] A series of audits on patient and public involvement plans in the United Kingdom had demonstrated how understandings of patient and public involvement varied across units, lacked goals, and were limited in their depth of soliciting participation. 60…”

Section: Wwwpublishcsiroau/shmentioning

confidence: 99%

Participatory approaches to delivering clinical sexually transmitted infections services: a narrative review

et al. 2022

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Although sexual health programming and clinical sexually transmitted infections (STIs) services have traditionally been developed through 'top-down' approaches, there is emerging evidence that participatory approaches benefit the development and implementation of such services. Although other studies have already highlighted the benefits of participation in research and implementation of clinical STIs services delivery, this narrative review focuses on how community participation in clinical STIs services delivery has been operationalised and on the various aspects of clinical STIs services delivery in which participatory processes have been implemented. A PubMed search was conducted in January 2022 using the search terms that reflected the topic of participatory processes in clinical STIs services delivery to identify relevant papers. Only peer-reviewed papers published in English were reviewed, and no timeframe was selected. After reviewing existing studies, we identified how community participation has been incorporated across stages of clinical STIs service delivery, including planning, developing, delivering, evaluating, and scaling up, as well as gaps and challenges faced in implementing such approaches. This review highlighted how a wide range of participatory processes characterised by varying depths of participation have been used in the above processes. Challenges such as funding, socio-cultural barriers, technical barriers and the digital divide, issues of quality assurance, and standardising the measurement of participation remain, which may impede the uptake of participatory processes in clinical STIs services.

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A tool to improve patient and public engagement in commissioning sexual and reproductive health and HIV services

Cited by 12 publications

References 4 publications

Barriers and Facilitators Affecting the HIV Care Cascade for Migrant People Living with HIV in Organization for Economic Co-Operation and Development Countries: A Systematic Mixed Studies Review

Barriers and Facilitators Affecting the HIV Care Cascade for Migrant People Living with HIV in Organization for Economic Co-Operation and Development Countries: A Systematic Mixed Studies Review

Involving young people in sexual health research and service improvement: conceptual analysis of patient and public involvement (PPI) in three projects

Participatory approaches to delivering clinical sexually transmitted infections services: a narrative review

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