A Value-Added Health Systems Science Intervention Based on My Life, My Story for Patients Living with HIV and Medical Students: Translating Narrative Medicine from Classroom to Clinic

Chou, Jonathan; Li, Jennifer J.; Chau, Brandon; Walker, Tamar V. L.; Lam, Barbara D.; Ngo, Jacqueline P.; Kapetanovic, Suad; Schaff, Pamela; Vo, Anne T.

doi:10.1007/s10912-021-09714-1

Cited by 5 publications

(4 citation statements)

References 33 publications

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“…We believe that this finding is significant, not only because of the sheer number of students who referenced the desire to care for patients as whole people but also because of the potential implications for the health systems in which students train and will eventually practice. For our students, engaging with the humanities revealed the complexities of patients' lives, perhaps indicating the potential to apply or "translate" the humanities in ways that affect the healthcare system, including patient-clinician interactions, the distribution of healthcare resources, and patient outcomes (Chou et al 2021).…”

Section: Discussionmentioning

confidence: 99%

Forming Physicians: Evaluating the Opportunities and Benefits of Structured Integration of Humanities and Ethics into Medical Education

et al. 2023

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This paper offers a novel, qualitative approach to evaluating the outcomes of integrating humanities and ethics into a newly revised pre-clerkship medical education curriculum. The authors set out to evaluate medical students’ perceptions, learning outcomes, and growth in identity development. Led by a team of interdisciplinary scholars, this qualitative project examines multiple sources of student experience and perception data, including student essays, end-of-year surveys, and semi-structured interviews with students. Data were analyzed using deductive and inductive processes to identify key categories and recurring themes. Results suggest that students not only engaged with the curricular content and met the stated learning objectives but also acknowledged their experience in the humanities and ethics curriculum as an opportunity to reflect, expand their perceptions of medicine (and what it means to be “in” medicine), connect with their classmates, and further cultivate their personal and professional identities. Results of this qualitative study show how and in what ways the ethics and humanities curriculum motivates students past surface-level memorization of factual knowledge and encourages thoughtful analysis and evaluation about how the course material relates to and influences their thinking and how they see themselves as future doctors. The comprehensive qualitative approach reflects a holistic model for evaluating the integration of humanities and ethics into the pre-clerkship medical education curriculum. Future research should examine if this approach provides a protective factor against the demonstrated ethical erosion and empathy decrease during clinical training.

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Section: Discussionmentioning

confidence: 99%

Forming Physicians: Evaluating the Opportunities and Benefits of Structured Integration of Humanities and Ethics into Medical Education

et al. 2023

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“…It is heartening to see studies of greater rigor and generalizability appear in the literature as we look forward to more actionable research findings on this new approach to medical pedagogy and practice. 12,13 Among the many pedagogic methods of narrative medicine is the close observation of creative works to stimulate oral and written reflection. In a typical narrative medicine session, a trained facilitator meets with a small group of students or clinicians to examine a literary text, a work of visual art, or even a concrete object.…”

Section: Na R R Ati V E M Edici N Ementioning

confidence: 99%

“…In addition, little has been published that supports long‐term transformation of provider attitudes or behaviors. It is heartening to see studies of greater rigor and generalizability appear in the literature as we look forward to more actionable research findings on this new approach to medical pedagogy and practice 12, 13 …”

Section: Narrative Medicinementioning

confidence: 99%

Disability and narrative medicine: Challenges and opportunities

Guthrie

Charon

2023

Develop Med Child Neuro

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Despite decades of international entreaties for improvement, education about and provision of healthcare for people with disabilities remains harmfully inferior to that of the non‐disabled population. Many obstacles confound efforts to ameliorate this inequity, perhaps the most pernicious of which is negative bias on the part of providers. Narrative medicine offers a means to address healthcare attitudes towards people with disabilities, in particular negative attitudes based on ‘ableism’. Through absorbing, writing, and sharing of diverse perspectives, narrative medicine kindles imagination and empathy, promoting self‐reflection. This approach enriches the students' capacity to absorb what their patients are trying to say, and to appreciate, respect, and hopefully meet the healthcare needs of people with disability.

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“…Building on enhancing the patient–provider relationship, the ‘My Life, My Story’ (MLMS) intervention was originally designed as a veteran-centered educational intervention leveraging brief, patient life narratives shared via the electronic medical chart for review by the patient's healthcare team as well as serving as a resource to be shared with a veteran's family and friends [20 ▪ ], and was adapted for PLWH. Medical student-patient dyads co-created a 1000-word MLMS narrative featuring key aspects of the patient's life they felt were not well understood by their healthcare team; and then they were made available for the healthcare team to read via the electronic health record.…”

Section: Contributions To the Hiv Prevention And Care Continua: Healt...mentioning

confidence: 99%

The innovative use of qualitative and mixed methods research to advance improvements along the HIV prevention and care continua

Arnold

Campbell²,

Koester³

2022

Current Opinion in HIV and AIDS

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Purpose of reviewDespite enormous advances in prevention and care modalities, HIV continues to burden populations around the globe and is largely driven by social and behavioral processes. Mixed methods and qualitative research endeavors are best suited to uncovering and making sense of these dynamics, producing unique and actionable findings to alleviate the burden of HIV. We reviewed the global literature published on PubMed from 2020 to 2021 to identify studies that produced new insights into the social and behavioral dynamics that drive the HIV epidemic, focusing on mixed methods or purely qualitative study designs. Recent findingsMixed methods and qualitative studies have revealed important nuances in the social and behavioral dynamics associated with the HIV prevention and care continua, from preexposure prophylaxis uptake and adherence to engagement in HIV care and treatment, and have important implications for attaining goals for controlling the epidemic. SummaryArticles reviewed contribute to advancing our understanding of complex social dynamics, structural level factors such as healthcare systems and policy, as well as the research endeavor itself and the need to diversify and sustain research to truly represent the perspectives of those most impacted by HIV. Numerous studies represent the unique ability of qualitative and mixed methods research to expand our understanding of and empathy for individuals living with and affected by HIV, offering new insights to help alleviate the burden of HIV.

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A Value-Added Health Systems Science Intervention Based on My Life, My Story for Patients Living with HIV and Medical Students: Translating Narrative Medicine from Classroom to Clinic

Cited by 5 publications

References 33 publications

Forming Physicians: Evaluating the Opportunities and Benefits of Structured Integration of Humanities and Ethics into Medical Education

Forming Physicians: Evaluating the Opportunities and Benefits of Structured Integration of Humanities and Ethics into Medical Education

Disability and narrative medicine: Challenges and opportunities

The innovative use of qualitative and mixed methods research to advance improvements along the HIV prevention and care continua

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