A visual approach to providing prognostic information to parents of children with retinoblastoma

Panton, Rachel L.; Downie, Robert; Truong, Tran; MacKeen, Leslie; Kabene, Stefane; Yi, Qilong; Chan, Helen S. L.; Gallie, Brenda L.

doi:10.1002/pon.1397

Cited by 25 publications

(22 citation statements)

References 15 publications

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“…10 Methods used to communicate with patients in developed countries such as graphic tools and electronic multimedia-based programs may not be applicable to indigent populations in the developing world. 11,12 In addition, written pamphlets and electronic programs can be prohibitively expensive in financially limited clinics. We aimed to determine whether a poster presentation combined with a verbal informed consent would be an effective means for educating cataract patients in rural South India.…”

mentioning

confidence: 99%

The effect of a visual aid on the comprehension of cataract surgery in a rural, indigent South Indian population

Karan¹,

Campbell²,

Mayer³

2011

Digit J Ophthalmol

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Purpose-To determine whether a visual aid improves the understanding and retention of information presented during informed consent for rural, indigent patients presenting for cataract surgery.Materials and Methods-This was a randomized, unmasked, interventional study. We recruited patients who presented to the Hande Surgical Hospital in Chennai, India, for cataract surgery. Patients were randomized into two groups: verbal consent alone (group A) and verbal consent plus a poster (group B). Both groups completed an 11-question true/false quiz immediately before and after informed consent and one day after surgery.Results-A total of 60 patients were recruited for the study, with 30 randomly assigned to each group; 23 patients from group A and 17 from group B completed the study. Informed consent improved patient scores in both groups; however, group B had significantly higher mean scores on postoperative day 1 (7.4 vs 8.7, P = 0.005) and significantly greater improvement in mean scores from pre-informed consent to postoperative day 1 (1.3 vs 3.6, P = 0.002).Conclusions-Informed consent improves patient understanding of cataract surgery. Using a visual aid during informed consent for cataract surgery improves understanding and retention of information more than verbal consent alone in a rural South Indian population.Multiple barriers to high-quality care exist for millions of indigent patients with pressing medical conditions. [1][2][3][4] Ineffective communication between health care providers and patients is a major factor in reduced care. [5][6][7] Roadblocks to effective communication can include limited formal education, illiteracy, and misinformation or misunderstanding among the population being served regarding medical interventions. 5,7 Informed consent is a critical component of invasive medical procedures, helping to establish a healthy doctor-patient relationship by educating patients about the methods, risks, and benefits of procedures. 8 Moseley et al 9 examined the use of a poster and video presentation combined with a verbal informed consent in a highly educated population and demonstrated a significant increase in patient understanding of cataract surgery. In another study, the use of written pamphlets in addition to verbal discussion prior to cataract surgery showed an increase in information retention among patients. 10 Methods used to communicate with patients in developed countries such as graphic tools and electronic multimedia-based programs may not be applicable to indigent populations in the developing world. 11,12 In addition, written pamphlets and electronic programs can be prohibitively expensive in financially limited clinics. We aimed to determine whether a poster presentation combined with a verbal informed

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mentioning

confidence: 99%

The effect of a visual aid on the comprehension of cataract surgery in a rural, indigent South Indian population

Karan¹,

Campbell²,

Mayer³

2011

Digit J Ophthalmol

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“…Based on our previous study demonstrating a mean comprehension score of 86% (95% confidence interval [CI] 81.3-90.6), 11 it was estimated that with increased complexity of the design the mean comprehension score would be 80%. A sample size of 39 patients completing the task would provide a power of 0.80 and 95% CI.…”

Section: Sample Size and Data Analysesmentioning

confidence: 99%

“…[8][9][10] Therefore, our group developed a visual tool named Diseasespecific electronic Patient Illustrated Clinical Timelines (DePICT) that summarizes treatment histories of patients with retinoblastoma for clinicians to access point-of-care information and has been validated among parents in a previous study. 11 The study demonstrated that parents of patients with retinoblastoma were able to interpret timelines for treatment of 1 eye with retinoblastoma achieving a mean comprehension score of 86%. However, the study did not distinguish between unilateral and bilateral disease, and evaluated understanding of treatment choices pertaining to 1 eye instead of 2 eyes at once.…”

mentioning

confidence: 97%

Breaking down barriers to communicating complex retinoblastoma information: can graphics be the solution?

Chiu¹,

Dimaras²,

Downie³

et al. 2015

Canadian Journal of Ophthalmology

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“…Due to the early age of Rb diagnosis, parents become the primary decisions makers and therefore, seek an active advocacy role in their child's health care needs [54]. Confronted with information that is difficult to digest and poorly communicated, such as treatment options, risks and outcomes, parents can become easily overwhelmed and misunderstand what is being asked of them.…”

Section: The Parentsmentioning

confidence: 99%

“…Confronted with information that is difficult to digest and poorly communicated, such as treatment options, risks and outcomes, parents can become easily overwhelmed and misunderstand what is being asked of them. This can sometimes result in delayed treatment decisions that may put the child at a disadvantage [54]. General and disease-specific information that is presented at a level each parent is able to understand, improves parental adjustment, increases their understanding of risk, and potentially improves outcomes and compliance with treatment [55].…”

Section: The Parentsmentioning

confidence: 99%

Retinoblastoma: Identifying the Diagnostic Signs for Early Treatment

Thompson¹

2015

Int J Neurorehabilitation Eng

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Retinoblastoma is a rare but significant cause of childhood eye cancer world-wide. The prognosis depends upon early diagnosis and treatment but also upon accurate classification of the tumours. Unilateral incidence is normally non-hereditary compared with bilateral incidence where secondary tumours are more common. Survivorship is much better for unilateral compared with bilateral and trilateral retinoblastoma. Early signs are important to detect and photography can assist in identifying no return of "red-eye" during flash photography and yellow appearance of the tumour. Treatment options are discussed together with new psycho-oncology approaches that address potential trauma in the survivor as well as in the family of the survivor.

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A visual approach to providing prognostic information to parents of children with retinoblastoma

Abstract: Provision of information at diagnosis concerning long-term treatment complexity helps parents of children with cancer. DePICT effectively transfers knowledge of treatments, risks, and prognosis in a manner that offsets parental educational disadvantages.

Cited by 25 publications

References 15 publications

The effect of a visual aid on the comprehension of cataract surgery in a rural, indigent South Indian population

The effect of a visual aid on the comprehension of cataract surgery in a rural, indigent South Indian population

Breaking down barriers to communicating complex retinoblastoma information: can graphics be the solution?

Retinoblastoma: Identifying the Diagnostic Signs for Early Treatment

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