Aging, Disability, and Informal Caregivers: A Cross-sectional Study in Portugal

Pego, Maria Ana; Nunes, Carla

doi:10.3389/fmed.2017.00255

Cited by 19 publications

(27 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Most studies in this field to date are from countries with high ranking palliative care metrics [17] and as such an evidence gap remains around the specific role and needs of family caregivers in rural community settings [18]. The need for a deep understanding of the Portuguese sociocultural context is necessary to achieve a high standard in caring and this awareness was the trigger for this study.…”

Section: Introductionmentioning

confidence: 99%

Understanding family caregivers’ needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal

et al. 2020

View full text Add to dashboard Cite

Background: Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly outside of high-income settings. The aim of this study was to explore family caregivers' experiences of caring for a relative living with advanced progressive disease at home, and their perceptions of met and unmet care needs over time. Methods: An ethnographic study comprising observations and interviews. A purposive sample of 10 family caregivers and 10 relatives was recruited within a rural area in the north of Portugal. Data were collected between 2014 and 16 using serial participant observations (n = 33) and in-depth interviews (n = 11). Thematic content analysis was used to analyse the data. Results: Five overarching themes were yielded: (1) provision of care towards independence and prevention of complications; (2) perceived and (3) unknown caregiver needs; (4) caregivers' physical and emotional impairments; and (5) balancing limited time. An imbalance towards any one of these aspects may lead to reduced capability and performance of the family caregiver, with increased risk of complications for their relative. However, with balance, family caregivers embraced their role over time. Conclusions: These findings enhance understanding around the needs of family caregivers, which are optimally met when professionals and family caregivers work together with a collaborative approach over time. Patients and their families should be seen as equal partners. Family-focused care would enhance nursing practice in this context and this research can inform nursing training and educational programs.

show abstract

Section: Introductionmentioning

confidence: 99%

Understanding family caregivers’ needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Most studies in this eld to date are from countries with high ranking palliative care metrics [17] and as such an evidence gap remains around the speci c role and needs of family caregivers in rural community settings [18]. The need for a deep understanding of the Portuguese sociocultural context is necessary to achieve a high standard in caring and this awareness was the trigger for this study.…”

Section: Introductionmentioning

confidence: 99%

Understanding Family Caregivers’ Needs to Support Relatives with Advanced Progressive Disease at Home: An Ethnographic Study in Rural Portugal

Teixeira

Abreu²,

Costa

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly outside of high-income settings. The aim of this study was to explore family caregivers’ experiences of caring for a relative living with advanced progressive disease at home, and their perceptions of met and unmet care needs over time. Methods: An ethnographic study comprising observations and interviews. A purposive sample of 10 family caregivers and 10 relatives was recruited within a rural area in the north of Portugal. Data were collected between 2014-16 using serial participant observations (n=33) and in-depth interviews (n=11). Thematic content analysis was used to analyse the data. Results: Five overarching themes were yielded: (1) provision of care towards independence and prevention of complications; (2) perceived and (3) unknown caregiver needs; (4) caregivers’ physical and emotional impairments; and (5) balancing limited time. An imbalance towards any one of these aspects may lead to reduced capability and performance of the family caregiver, with increased risk of complications for their relative. However, with balance, family caregivers embraced their role over time. Conclusions: These findings enhance understanding around the needs of family caregivers, which are optimally met when professionals and family caregivers work together with a collaborative approach over time. Patients and their families should be seen as equal partners. Family-focused care would enhance nursing practice in this context and this research can inform nursing training and educational programs.

show abstract

“…Most studies in this eld to date are from countries with high ranking palliative care metrics [17] and as such an evidence gap remains around the speci c role and needs of family caregivers in rural community settings [18]. This paper reports on the rst phase of a study entitled "Family Caregivers of People with Advance and Progressive Disease at Home: Contributions to a Model of Supervision", developed to support community nurse in decision-making [19].…”

Section: Introductionmentioning

confidence: 99%

Understanding Family Caregivers’ Needs to Support Relatives with Advanced Progressive Disease at Home: An Ethnographic Study in Rural Portugal

Teixeira

Abreu²,

Costa

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly outside of high-income settings. The aim of this study was to explore family caregivers’ experiences of caring for a relative living with advanced progressive disease at home, and their perceptions of met and unmet care needs over time. Methods: An ethnographic study comprising observations and interviews. A purposive sample of 10 family caregivers and 10 relatives was recruited within a rural area in the north of Portugal. Data were collected between 2014-16 using serial participant observations (n=33) and in-depth interviews (n=11). Thematic content analysis was used to analyse the data. Results: Five overarching themes were yielded: (1) provision of care towards independence and prevention of complications; (2) perceived and (3) unknown caregiver needs; (4) caregivers’ physical and emotional impairments; and (5) balancing limited time. An imbalance towards any one of these aspects may lead to reduced capability and performance of the family caregiver, with increased risk of complications for their relative. However, with balance, family caregivers embraced their role over time. Conclusions: These findings enhance understanding around the needs of family caregivers, which are optimally met when professionals and family caregivers work together with a collaborative approach over time. Patients and their families should be seen as equal partners. Family-focused care would enhance nursing practice in this context and this research can inform nursing training and educational programs.

show abstract

Aging, Disability, and Informal Caregivers: A Cross-sectional Study in Portugal

Cited by 19 publications

References 20 publications

Understanding family caregivers’ needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal

Understanding family caregivers’ needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal

Understanding Family Caregivers’ Needs to Support Relatives with Advanced Progressive Disease at Home: An Ethnographic Study in Rural Portugal

Understanding Family Caregivers’ Needs to Support Relatives with Advanced Progressive Disease at Home: An Ethnographic Study in Rural Portugal

Contact Info

Product

Resources

About