All with You: a new method for developing compassionate communities—experiences in Spain and Latin-America

Flores, Silvia Librada; Molina, Emilio Herrera; Osuna, Jaime Boceta; Vargas, Rafael Mota; Vicuña, María Nabal

doi:10.21037/apm.2018.03.02

Cited by 26 publications

(48 citation statements)

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“…Following this premise, a specific method for the development of Compassionate Communities and Cities [ 12 ] has been developed and is being extended and evaluated in several cities. These components mainly focus on the development of partnerships with the organizations (schools, companies, universities, etc.)…”

Section: Discussionmentioning

confidence: 99%

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Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review

Flores¹,

Nabal-Vicuña

Forero-Vega

et al. 2020

IJERPH

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In the last decade, we have seen a growth of Compassionate Communities and Cities (CCC) at the end of life. There has been an evolution of organizations that help construct Community-Based Palliative Care programs. The objective is to analyze the implementation, methodology and effectiveness of the CCC models at the end of life. We conducted a systematic review following PRISMA ScR Guideline. The protocol was registered on PROSPERO (CRD42017068501). Five databases (MEDLINE, EMBASE, Web of Science, CINAHL and Google Scholar) were searched for studies (from 2000 to 2018) using set eligibility criteria. Three reviewers screened full-texts articles and extracted study data. Outcomes were filled in a registration form which included a narrative synthesis of each article. We screened 1975 records. We retrieved 112 articles and included 31 articles for the final analysis: 17 descriptive studies, 4 interventions studies, 4 reviews and 6 qualitative studies. A total of 11 studies regard the development models of CCC at the end of life, 15 studies were about evaluation of compassionate communities’ programs and 5 studies were about protocols for the development of CCC programs. There is poor evidence of the implementation and evaluation models of CCC at the end of life. There is little and low-/very low-quality evidence about CCC development and assessment models. We found no data published on care intervention in advance disease and end of life. A global model for the development and evaluation of CCC at the end of life seems to be necessary.

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Section: Discussionmentioning

confidence: 99%

“…In the last years, several organizations from different countries (United Kingdom [ 4 ], Scotland [ 5 ], Ireland [ 6 ], Austria [ 7 ], India [ 8 ], Canada [ 9 ] Australia [ 10 ], Colombia [ 11 ] and Spain [ 12 , 13 ]) have boosted the development of Compassionate Communities and Cities with different models.…”

Section: Introductionmentioning

confidence: 99%

Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review

Flores¹,

Nabal-Vicuña

Forero-Vega

et al. 2020

IJERPH

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“…Jednym z rozwiązań zalecanym przez Światową Organizację Zdrowia (World Health Organization -WHO) i z powodzeniem działającym i rozwijającym się m.in. w Wielkiej Brytanii, Hiszpanii, Indiach -stan Kerala, Australii, Nowej Zelandii, Niemczech, Szwajcarii i Austrii jest koncepcja compassionate communities -społeczności wspierające [6][7][8].…”

Section: Wstępunclassified

“…Model CC nie narzuca sztywnych ram i zasad implementacji. Każde wydanie różni się od innych i dostosowane jest do miejscowych potrzeb (przykładowo: Hiszpania i Ameryka Łacińska korzystają z modelu o nazwie All with You, Kanada i Australia z Healthy End of Life Project -w skrócie HELP) [6,10].…”

Section: Compassionate Communities -Globalna Inicjatywa Działająca Lounclassified

Compassionate communities – a modern form of organising palliative care

Frydrych¹,

Gołdys²,

Wysocka³

et al. 2019

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W pracy opisano nowe podejście do tworzenia polityk publicznych w zakresie opieki nad osobami w kryzysie zdrowotnym. Społeczności wspierające (compassionate communities) cedują działania opiekuńcze na odpowiednio zarządzane sieci ludzi i organizacji łączących mieszkańców w konkretnej społeczności. Wspólnota mobilizuje swoje zasoby do zapewnienia opieki, dzięki czemu zmniejsza się obciążenie instytucji opiekuńczych, które stają się swoistymi centrami koordynacji opieki. W kreowanie tak działających wspólnot włączone są również organizacje edukacyjne, które umożliwiają odpowiednie zarządzanie wiedzą niezbędną do wprowadzenia modelu. Compassionate communities realizują ideę nowoczesnej opieki paliatywnej, angażującej całe społeczności, wsparte przez ekspertów z różnych dziedzin, budowane na idei odpowiedzialności i społecznego zaangażowania.

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“…One of the largest and most successful models of compassionate communities in the world began in Seville, Spain. All with You [ 28 ] (a direct translation of the program’s Spanish name, Todos Contigo ) is a social innovation program created by the New Health Foundation in 2014 [ 19 ]. It seeks to transform care for people with advanced chronic conditions that require palliative care by monitoring and optimizing health care and social services, providing support to families, mobilizing community-based assets, and promoting greater awareness of the challenges and opportunities associated with palliative care and the management of complex chronic conditions.…”

Section: Introductionmentioning

confidence: 99%

Development and Management of Networks of Care at the End of Life (the REDCUIDA Intervention): Protocol for a Nonrandomized Controlled Trial

Flores¹,

Molina²,

Díez

et al. 2018

JMIR Res Protoc

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BackgroundEnd-of-life needs can be only partly met by formalized health and palliative care resources. This creates the opportunity for the social support network of family and community to play a crucial role in this stage of life. Compassionate communities can be the missing piece to a complete care model at the end of life.ObjectiveThe main objective of this study is to evaluate the REDCUIDA (Redes de Cuidados or Network of Care) intervention for the development and management of networks of care around people with advanced disease or at the end of life.MethodsThe study is a 2-year nonrandomized controlled trial using 2 parallel groups. For the intervention group, we will combine palliative care treatment with a community promoter intervention, compared with a control group without intervention. Participants will be patients under a community palliative care team’s supervision with and without intervention. The community promotor will deliver the intervention in 7 sessions at 2 levels: the patient and family level will identify unmet needs, and the community level will activate resources to develop social networks to satisfy patient and family needs. A sample size of 320 patients per group per 100,000 inhabitants will offer adequate information and will give the study 80% power to detect a 20% increase in unmet needs, decrease families’ burden, improve families’ satisfaction, and decrease the use of health system resources, the primary end point. Results will be based on patients’ baseline and final analysis (after 7 weeks of the intervention). We will carry out descriptive analyses of variables related to patients’ needs and of people involved in the social network. We will analyze pre- and postintervention data for each group, including measures of central tendency, confidence intervals for the 95% average, contingency tables, and a linear regression. For continuous variables, we will use Student t test to compare independent samples with normal distribution and Mann-Whitney U test for nonnormal distributions. For discrete variables, we will use Mann-Whitney U test. For dichotomous variables we will use Pearson chi-square test. All tests will be carried out with a significance level alpha=.05.ResultsEthical approval for this study was given by the Clinical Research Committee of Andalusian Health Service, Spain (CI 1020-N-17), in June 2018. The community promoter has been identified, received an expert community-based palliative care course, and will start making contacts in the community and the palliative care teams involved in the research project.ConclusionsThe results of this study will provide evidence of the benefit of the REDCUIDA protocol on the development and assessment of networks of compassionate communities at the end of life. It will provide information about clinical and emotional improvements, satisfaction, proxy burden, and health care resource consumption regarding patients in palliative care.Registered Report IdentifierRR1-10.2196/10515

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All with You: a new method for developing compassionate communities—experiences in Spain and Latin-America

Abstract: The All with You® method has made the development of compassionate communities and cities possible, aligning organizations and cities to promote compassionate acts, and to start creating networks involved in a global community united by a vocation for caring.

Cited by 26 publications

References 0 publications

Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review

Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review

Compassionate communities – a modern form of organising palliative care

Development and Management of Networks of Care at the End of Life (the REDCUIDA Intervention): Protocol for a Nonrandomized Controlled Trial

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