Amish family care for children with chronic illnesses

Kueny, Angela

doi:10.17077/etd.tzjodhy2

Cited by 5 publications

(5 citation statements)

References 121 publications

(206 reference statements)

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“…When asked to describe why caregiving is important to them, all participants described the role of caregiver from a responsibility perspective and as a manifestation of their cultural values. Schuldigekeitt is a German word meaning duty or to do one's duty (Kueny, 2011), and participants typically paired one-word statements such as "privilege" and "gift " with a defi nition of what Schuldigekeitt means to the Amish (e.g., "responsibility, when we were young they took care of us and now that they are older…we should take care of them"). Th roughout the interviews, there was a clear declaration that participants "want to take care of our old people, not put them in a home" and "if at all possible, you want to keep at home. "…”

Section: Lived Experience Caring For Amish Older Adultsmentioning

confidence: 99%

“…Th e exact numbers of Amish older adults and chronic disease prevalence is unknown, but most Amish individuals live in rural areas and are thought to have a similar health profi le to their rural counterparts. Evidence exists that Amish individuals are increasingly seeking health care outside of their community, especially for care of individuals with illness (Farrar, 2014;Kueny, 2011).…”

Section: Introductionmentioning

confidence: 99%

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Older Adult Caregiving in an Amish Community

Farrar¹,

Kulig²,

Sullivan-Wilson³

2018

Research in Gerontological Nursing

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Amish older adults represent a growing and understudied population whose current health practices, interactions with health care systems outside of their community, and care needs are unknown. Limited research exists on why, when, and how Amish older adults and their caregivers experience health care services outside of their family and community. The purpose of the current study was to describe and explore the perspectives of Amish caregivers caring for older adults and their experiences with health care services outside of their community. A qualitative phenomenological research design was used in combination with a community-based participatory framework with caregivers in a small, rural Amish settlement. Amish caregiving of older adults is a complex phenomenon that is influenced by cultural characteristics. Caregivers place significant cultural value on home caregiving, emphasize the experience as a blessing, and relate misunderstandings between themselves and outside health care providers as significant concerns. [Res Gerontol Nurs. 2018; 11(1):29-38.].

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Section: Lived Experience Caring For Amish Older Adultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Older Adult Caregiving in an Amish Community

Farrar¹,

Kulig²,

Sullivan-Wilson³

2018

Research in Gerontological Nursing

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“…Critical ethnographers usually depend on coding data into descriptive or functional categories to identify, compare, and transfer findings relating to a group of people beyond its local context. Also known as "ethnographic analysis," this analytical method is a free-form, inductive approach that requires the ethnographer to immerse themselves in the data, get to know and understand it, and then develop coding schemes that move from a descriptive level to a more analytic level (Atkinson, 2007;Kueny, 2011). Although critical ethnographers may borrow from other analytical traditions to meet their study objectives, such as interpretive phenomenological analysis (Walby, 2013), thematic analysis (Sharp et al, 2018), narrative analysis (Jobling, 2019), and Leininger's method for qualitative data analysis (Salman et al, 2018), their underlying goal remains the same; namely, to better understand culture for purposes of emancipation.…”

Section: Critical Clinician-researchers In Mental Healthmentioning

confidence: 99%

Combining Critical Ethnography and Critical Discourse Analysis in Mental Health Nursing Research

Jager,

Domingue,

Perron

et al. 2024

Nursing Research

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Background It is uncommon to combine critical ethnography with critical discourse analysis (CDA) in health research, yet this combination has promise for managing challenges inherent in critical mental health nursing research. Objectives This article describes a methodologically innovative way to address issues that arise in the context of critical mental health nursing research Methods This article draws on two studies that each employed a combination of critical ethnography and CDA in the context of mental health nursing research, discussing the challenges and implications of this approach. Results Although the combination critical ethnography and CDA presents several challenges, it also provides a framework for researchers to sustain a critically reflective stance throughout the research process. This facilitates the process of reanalyzing and reflecting on how healthcare practices and knowledge both support and are constrained by hegemonic discourses. Discussion This combination has the potential to facilitate the production of new, emancipatory knowledge that will assist nurses in understanding issues of structural inequity within the healthcare system.

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“…These prescriptive to‐do lists fail to acknowledge the socioeconomic, historic, and political contexts and the potential ethnocentric perspective of the health care provider, as recommended by a conceptual position of cultural safety. Recently, researchers observed that the Amish are increasingly seeking health care services outside of their communities, particularly for people with chronic illnesses (Cates, ; Farrar, ; Gillum, Staffileno, Schwartz, Coke, & Fogg, ; Kueny, ). There is little scientific research with the Amish about their relationship with the Western health care system.…”

Section: Amish and Lg Mennonite Communities’ Historical Context And Ementioning

confidence: 99%

Applying cultural safety beyond Indigenous contexts: Insights from health research with Amish and Low German Mennonites

et al. 2017

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People who identify as members of religious communities, such as the Amish and Low German Mennonites, face challenges obtaining quality health care and engagement in research due in part to stereotypes that are conveyed through media and popular discourses. There is also a growing concern that even when these groups are engaged in research, the guiding frameworks of the research fail to consider the sociocultural or historical relations of power, further skewing power imbalances inherent in the research relationship. This paper aims at discussing the uses of cultural safety in the context of health research and knowledge translation with groups of people that are associated with a specific religion. Research with the Amish and Low German Mennonites is provided as examples to illustrate the use of cultural safety in this context. From these examples, we discuss how the use of cultural safety, grounded in critical theoretical perspectives, offers new insight into health research with populations that are traditionally labeled as minority, vulnerable, or marginalized, especially when a dominant characteristic is a unique religious perspective.

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Amish family care for children with chronic illnesses

Cited by 5 publications

References 121 publications

Older Adult Caregiving in an Amish Community

Older Adult Caregiving in an Amish Community

Combining Critical Ethnography and Critical Discourse Analysis in Mental Health Nursing Research

Applying cultural safety beyond Indigenous contexts: Insights from health research with Amish and Low German Mennonites

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