Bakas Caregiving Outcomes Scale

Bakas, Tamilyn

doi:10.1007/978-94-007-0753-5_143

Cited by 5 publications

(4 citation statements)

References 300 publications

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“…The score here is converted on a scale ranging from 1 to 7 with four being the response equivalent to 0 because positive numbers facilitate statistical analysis. The advantage of this scale over other scales is its ability to measure positive changes in the lives of caregivers as a result of providing care to family members . The Cronbach's α in a recent study was 0.94while the Cronbach's α in this study was 0.82.…”

Section: Methodsmentioning

confidence: 52%

“…The Bakas Caregiving Outcomes Scale is a 15‐item scale that addresses changes in “social function,” “subjective wellbeing,” and “health specifically” as a result of caring for a family member . The items assess caregivers’ response to the extent of life changes for the worse or for the better on a 7‐point scale on which 1 = “change for the worse” ; 4 = “no change” ; and 7 = “change for the better” .…”

Section: Methodsmentioning

confidence: 99%

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Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder

Alnazly

Abojedi

2019

Perspect Psychiatr Care

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Purpose To investigate psychological distress among parents of children with autism spectrum disorder and the associated sociodemographic factors influencing parents’ distress. Design and Methods A cross‐sectional design with a sample of 123 Jordanian parents providing care to children with autism spectrum disorder was used. A sociodemographic questionnaire, the Oberst Caregiving Burden Scale, the Bakas Caregiving Outcomes Scale, and the Hospital Anxiety and Depression Scale were utilized for data collection. Findings Parents reported moderate levels of burden, negative life changes, and borderline depression and anxiety. The perceived burden related to caregiving task difficulty positively correlated with that related to time spent on tasks and negatively correlated with caregivers’ caregiving‐related outcomes. The perceived burden of caregiving tasks was negatively correlated with depression and anxiety and anxiety levels were positively correlated with depression (P < 0.001). Practice Implication Healthcare providers, advanced practice nurses, and policy makers should be aware of the burden, anxiety, and depression experienced by caregivers of children with autism spectrum disorder.

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Section: Methodsmentioning

confidence: 52%

Section: Methodsmentioning

confidence: 99%

Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder

Alnazly

Abojedi

2019

Perspect Psychiatr Care

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“…The survey instrument was designed to take 20-30 min to complete and incorporated pre-existing validated tools, namely, Bakas Caregiving Outcomes Scale © (16), PedsQL TM Eosinophilic Esophagitis Module Standard Version 3.0 Parent Reports © (17), and PedsQL TM Infant Scales © (18), along with other adapted survey items (see Table 1). In addition to the preexisting instruments, the survey items were drafted to confirm eligibility [mandatory questions included: "Did your child have an endoscopy to assist with EoE diagnosis?"…”

Section: Survey Designmentioning

confidence: 99%

Health Service Use and Treatment Choices for Pediatric Eosinophilic Esophagitis: Findings From a Cross-Sectional Survey of Australian Carers

et al. 2020

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Objectives: The incidence and the prevalence of eosinophilic esophagitis (EoE) are increasing, and healthcare utilization among children with EoE is high. This study provides novel insights into the health services and the treatments, including complementary medicines (CMs), used by carers to manage their children's EoE as well as the carers' beliefs and attitudes toward these treatments. Methods: A national cross-sectional online survey was conducted in Australia between September 2018 and February 2019. The survey included questions about health service and treatment utilization, health insurance and government support, health-related quality of life of children with EoE and their carers, views and attitudes toward CM use, and perceived efficacy of treatment. Results: The survey was completed by 181 carers (96.6% of whom were mothers) of EoE children. Most children (91.2%, n = 165) had seen a medical doctor for their EoE, and almost half had consulted with a CM practitioner (40.3%, n = 73). Pharmaceuticals (n = 156, 86.2%) were the most commonly used treatment option, followed by dietary changes (n = 142, 78.5%), CM products (n = 109, 60.2%), and CM therapies (n = 42, 23.2%). Most children received care from numerous practitioners on multiple occasions, indicating a substantial financial and treatment-related burden. Conclusions: A variety of practitioners are involved in the care of children with EoE, and a high rate of CM use warrants further attention to ensure that appropriate treatment is provided. Carer involvement and guidance, combined with individual practitioner expertise, referrals, and collaboration between providers, is essential to successfully navigate this complex disease and provide adequate care for these patients.

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“…Tamilyn Bakas developed the scale to measure life changes in family caregivers of people with chronic illnesses. The scale was initially developed to measure life changes in family caregivers of stroke survivors, but it has also been used for various chronic illnesses (Bakas, 2014). The scale consists of 16 items; the numbers indicate the degree of change from −3, “changed for the worst,” to +3, “changed for the best,” and 0 means “no change.” The total scale score ranges from 15 to 105.…”

Section: Methodsmentioning

confidence: 99%

The effect of structured education and phone follow‐up on moderate stage Alzheimer's disease caregiving: Outcomes for patient and caregivers

Ozcan,

Akyar

2023

Japan Journal Nursing Sci

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AimTo determine the effectiveness of a caregiver education (needs tailored) and telephone follow‐up intervention for caregivers of people with moderate stage Alzheimer's disease on caregiver burden, caregiving impact on life, and patients' neuropsychiatric symptoms, dependence on activities of daily living.MethodsThis quasi‐experimental study sampled caregivers of people with moderate stage Alzheimer's. Caregivers in the intervention group received education and telephone follow‐up over 12 weeks, while the control group received routine care. Caregivers were assessed for burden, changes in life, and patients for neuropsychiatric symptoms, and dependence on daily living activities.ResultsThe caregiver burden, life changes, distress, and patients' neuropsychiatric symptom scores showed apparent trend toward betterment, but no statistically significant differences were found in study outcomes between the two groups (P > .05).ConclusionThe caregiver need‐based, structured education and telephone follow‐up intervention was not empirically effective. With the promising effect from this study, managing behavioral symptoms with need‐based, structured, and skill‐oriented training has the potential to alleviate the burden on caregivers.

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Bakas Caregiving Outcomes Scale

Cited by 5 publications

References 300 publications

Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder

Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder

Health Service Use and Treatment Choices for Pediatric Eosinophilic Esophagitis: Findings From a Cross-Sectional Survey of Australian Carers

The effect of structured education and phone follow‐up on moderate stage Alzheimer's disease caregiving: Outcomes for patient and caregivers

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