Behaviour Disturbance and Other Predictors of Carer Burden in Alzheimer's Disease

Coen, Robert F.; Swanwick, Gregory; O'Boyle, Ciaran; Coakley, Davis

doi:10.1002/(sici)1099-1166(199703)12:3<331::aid-gps495>3.0.co;2-j

Cited by 276 publications

(143 citation statements)

References 22 publications

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“…-support in patient's care and availability of help: several studies [21,22] underlined that poor social support is frequently associated with higher caregiver's stress levels;…”

Section: Introductionmentioning

confidence: 99%

“…While some studies report a positive correlation between the patient's cognitive status and the caregiver's burden of distress [23][24][25][26], others did not find any association between the two variables [9, 15,22,[27][28][29]; -behavioural disorders: Donaldson et al [6] found that non-cognitive features of Alzheimer's disease, such as psychotic symptoms, depressive features and behavioural disturbances were the most stressful manifestations for carers, resulting in feeling of burden. Yet, Zarit et al [27] reported that the severity of behavioural problems was not associated with high levels of burden; -patient's functional impairment: Braithwaite [30] found that the caregiver's workload (in the form of bathing, household activities, supervision and decision-making) was unrelated to burden, though a large proportion of carers experienced burden in relation to being constantly on call, being unable to get household chores completed, and having to change plans at the last minute.…”

Section: Introductionmentioning

confidence: 99%

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The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies

et al. 2008

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Objective: Previous studies have shown that taking care of elderly, demented patients carries a high cost to caregivers' health, and is associated with negative consequences on physical and mental health. The aim of this study is to investigate which socio-demographic and clinical variables are significantly associated with higher levels of distress in caregivers, and the relationship between caregivers' levels of distress and the coping strategies they adopt. Patients and participants: The study samples 112 caregivers of demented patients, consecutively admitted to the Department of Neurology of San Raffaele-Turro Hospital (Milan, Italy). Measurements and results:Caregivers were asked to complete the CBI and the Italian version of the COPE.The main result is that caregivers with the highest levels of distress are characterised by an impaired physical health status. It was also found that avoidance coping may represent a risk factor associated with higher levels of distress; conversely, an active and problem-focused approach to stressful situations may act as a protective factor.Keywords: Dementia, Caregiver, Burden of Illness, Coping Behavior 3 Riassunto Obiettivo: In letteratura è documentato che prendersi cura di un anziano affetto da demenza comporta per il caregiver un prezzo molto elevato da pagare, e si associa a conseguenze negative sul piano della salute fisica e psichica. Obiettivo della presente ricerca è stato quello di valutare quali variabili socio-demografiche e cliniche possano essere significativamente associate ad elevati livelli di stress nel caregiver stesso, e la relazione esistente tra i livelli di stress del caregiver e il ricorso alle strategie di coping. Pazienti e partecipanti: Lo studio ha coinvolto 112 caregiver di altrettanti pazienti dementi consecutivamente ammessi presso il Reparto di Neurologia dell'Ospedale San Raffaele Turro di Milano. Risultati: I caregiver hanno compilato il CBI e la versione italiana del COPE. I risultati indicano che i caregiver soggetti ad elevati livelli di stress si caratterizzano per uno stato compromesso di salute fisica. Uno stile di coping centrato sull'evitamento delle situazioni problematiche può costituire un fattore di rischio per elevati livelli di stress nel caregiver; il ricorso a strategie attive focalizzate sulla risoluzione del problema può configurarsi come fattore protettivo. 4 IntroductionThere is ample evidence that taking care of dependent elderly people comes at a very high cost to caregivers' health; more specifically, caregiving affects their physical and psychological health both directly and indirectly [1,2].In Italy, family members are the principal caregivers to elderly, non self-sufficient people. Caregivers are mostly spouses or daughters who decided to take care of the patients in a direct way, that is by living with them [3]. On average, three quarters of their daytime is spent responding to the patients' needs; the amount of time devoted to the patient is inexorably destined to increase as the illness worsens [1].Pr...

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“…-support in patient's care and availability of help: several studies [21,22] underlined that poor social support is frequently associated with higher caregiver's stress levels;…”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies

et al. 2008

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“…Sete estudos (50,0%) sugeriram que a sobrecarga estava associada ao comprometimento das atividades da vida diária do paciente, enquanto um estudo 13 relatou não haver relação entre essas duas variáveis. Quatro artigos (28,5%) não detectaram piora do impacto em relação à gravidade do quadro demencial, mas outros três (21,4%) encontram exatamente o contrário.…”

Section: Resultsunclassified

Distúrbios de comportamento em pacientes com demência: impacto sobre a vida do cuidador

Garrido

Almeida

1999

Arq. Neuro-Psiquiatr.

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RESUMO -Diversos estudos indicam que o cuidado de pacientes com demência está associado a sobrecarga importante sobre a vida do cuidador. Há evidências crescentes de que esse desgaste está mais intimamente ligado à presença de sintomas não cognitivos (ou psiquiátricos). Este estudo tem como objetivo realizar revisão sistemática da literatura sobre esse assunto de todos os trabalhos listados no banco de dados MedLine, que incluíssem os seguintes unitermos: 'burden or impact or cost' e 'dementia or Alzheimer's disease' e 'carer or caregiver or caregiving or family'. Foram incluídos artigos impressos entre janeiro de 1990 e janeiro de 1998. Quatorze estudos preencheram os critérios de inclusão da revisão, dentre aqueles disponíveis nas bibliotecas das universidades de São Paulo. Estes revelaram que transtornos de comportamento em pacientes dementados são importantes causas de sobrecarga na vida do cuidador, porém um consenso sobre o conceito desses transtornos ainda não está totalmente estabelecido. Além disto, não está claro quais sintomas não cognitivos são os principais responsáveis por aumento do impacto. Futuras pesquisas devem abordar esses aspectos no sentido de elucidar quais os melhores métodos de intervenção para esses casos. PALAVRAS-CHAVE: demência, doença de Alzheimer, transtornos do comportamento, depressão, delírios, alucinações, psicose, burden, impacto, cuidador. Behavioural problems in patients with dementia and their burden on carersABSTRACT -Many studies have suggested that caring for patients with dementia may be associated with increased burden, particularly when subjects present with prominent behavioural problems. The present work aimed to review studies appearing on MedLine between 1990 and January 1998 that included the following keywords: 'burden or impact or cost' and 'dementia or Alzheimer's disease' and 'carer or caregiver or caregiving or family'. Only fourteen of the studies retrieved fulfilled the entry criteria for this review: crossectional or longitudinal studies looking at the association between behavioural problems in patients with dementia and burden of carers. All studies indicated that behavioural disturbances are an important cause of burden, although there was little consistency on the definition of 'behavioural disturbances'. As a consequence, it is still unclear which behavioural symptoms are more closely associated with increased burden of care. Future research in the area should aim to clarify these issues and develop management strategies to decrease burden on carers of patients with dementia.

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“…So zeigten verschiedene Autoren, dass Angehörige, die kognitiv Beeinträchtigte pflegen, höhere Werte in verschiedenen Belastungsindikatoren (Depressions-und Angstskalen, körperliche Beschwerden, subjektive Belastung) aufweisen als Angehörige von rein körperlich Erkrankten oder Nicht-Pflegende (Clipp & George, 1993;Houlihan, 1987;Sistler, 1989). Es sind jedoch nicht so sehr die kognitiven Defizite selbst, die mit Stresserleben assoziiert sind, sondern vielmehr die Verhaltensstörungen, die aus den kognitiven Beeinträchtigungen resultieren (Bédard, Molloy, Pedlar, Lever & Stones, 1997;Coen, Swanwick, O'Boyle & Coakley, 1997;Donaldson, Tarrier & Burns, 1997;Johannsen, 1994 Aktivitäten an als Angehörige nichtaphasischer Schlaganfallbetroffener (Denman, 1998).…”

Section: Art Der Erkrankungunclassified

Evaluation eines psychoedukativen Kurses für Angehörige von Schlaganfallpatienten

Heier

Lännler

Steinhagen‐Thiessen

2002

Zeitschrift für Neuropsychologie

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Zusammenfassung: In dem vorliegenden Artikel wurde ein psychoedukativer Kurs für Angehörige von Schlaganfallpatienten entwickelt und in einem Längsschnitt-Kontrollgruppen-Design mit 3 Messzeitpunkten evaluiert. Insgesamt wurden 85 Angehörige untersucht. Als Messinstrumente kamen Selbstratingskalen zu Depression, Angst und körperlichen Beschwerden zum Einsatz. Zusätzlich wurden die globale subjektive Belastung, das Schlaganfall-spezifische Wissen, die Nutzung psychosozialer Entlastungsangebote und der subjektiv erlebte Nutzen des Kurses erhoben. Die Kursteilnehmer zeigten im Gegensatz zur Kontrollgruppe eine signifikante Zunahme des Schlaganfall-spezifischen Wissens und nutzten mehr Entlastungsangebote. Die subjektive Belastung nahm nur bei den Kursteilnehmern im zeitlichen Verlauf ab. Der Nutzen des Kurses wurde als sehr hoch eingeschätzt. In den standardisierten Skalen zum psychischen und körperlichen Befinden konnten in keiner der beiden Gruppen signifikante Veränderungen im zeitlichen Verlauf festgestellt werden. Dies wird u. a. darauf zurückgeführt, dass emotionale Verarbeitungsmuster resistenter gegenüber Veränderungen sind, als Verhaltenskomponenten.

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Behaviour Disturbance and Other Predictors of Carer Burden in Alzheimer's Disease

Cited by 276 publications

References 22 publications

The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies

The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies

Distúrbios de comportamento em pacientes com demência: impacto sobre a vida do cuidador

Evaluation eines psychoedukativen Kurses für Angehörige von Schlaganfallpatienten

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