2018
DOI: 10.1590/2177-9465-ean-2017-0368
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Being adolescent with chronic renal failure: a view through existential phenomenology

Abstract: Objective: To understand adolescent's experiences with chronic renal failure disease, attended in a pubic teaching hospital at São Paulo state. Method: Phenomenological study, based on the philosophical reference of Martin Heidegger, with six adolescents interviewed by the following question: "What is it like to be an adolescent with chronic renal failure?" Results: Three ontological categories emerged: feeling different; experiencing renal insufficiency through renal replacement therapy; seeking normality. Co… Show more

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Cited by 5 publications
(10 citation statements)
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“…A categoria "Sentindo-se diferente dos outros adolescentes", considerada a causa da categoria central, foi também observada em outra pesquisa nacional com adolescentes diagnosticados com doença renal crônica. (15) Esta categoria foi sustentada por "Percebendo o crescimento e o desenvolvimento alterados", "Passando por problemas clínicos", "Comparando-se a outros adolescentes" e "Sendo diferente devido às restrições".…”
Section: Discussionunclassified
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“…A categoria "Sentindo-se diferente dos outros adolescentes", considerada a causa da categoria central, foi também observada em outra pesquisa nacional com adolescentes diagnosticados com doença renal crônica. (15) Esta categoria foi sustentada por "Percebendo o crescimento e o desenvolvimento alterados", "Passando por problemas clínicos", "Comparando-se a outros adolescentes" e "Sendo diferente devido às restrições".…”
Section: Discussionunclassified
“…Estes, ao identificarem que seus colegas e amigos são mais altos e mais robustos, percebem que esses marcos em sua vida são diferentes dos demais adolescentes. Além disso, o adoecimento crônico causa mudanças físicas, explícita ou implicitamente, (15) como as úlceras de pernas e icterícia, que afetam diretamente a imagem corporal, causando preocupações, tristeza, isolamento e depressão. (15,16) Este confronto com a doença crônica é iniciado quando o adolescente percebe haver diferenças entre a sua rotina diária e a de seus amigos e familiares, tais como não poder brincar.…”
Section: Discussionunclassified
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“…Adolescents begin to neglect important aspects concerning other spheres of their lives, such as school activities, and this situation occurs due to frequent hospitalizations, generating changes especially in their schooling process. 15 The disease interferes with the therapy and the side effects of medication, when attending classes, demotivating them and hindering their school adaptation, as was the case of adolescent A1, who made clear in her speech the need to leave school due to treatment, causing delay and impairment of learning, and impairment in their social environment. It is further described that, despite not being explicitly verbalized by the interviewees, the literature also points out that the adolescent still goes through internal conflicts that involve telling colleagues about their health DISCUSSION J Nurs UFPE on line.…”
Section: • Feelings Of the Adolescent Associated With The Disease Anmentioning
confidence: 99%
“…The epidemiological change is noteworthy due to the increase in chronic non-communicable diseases (NCDs) compared to the reduction in parasitic-infectious diseases. 1,2 The World Health Organization (WHO) defines that NCDs are long-term, progressive and irreversible pathologies, which can be controlled but not curable. 3 Recently, the literature has appropriated the CSHCN terminology to refer to children and adolescents who need special health care and includes those who live with chronic conditions and/or have some type of limitation or disability.…”
Section: Introductionmentioning
confidence: 99%