Being in the Patient Position: Experiences of Health Care Among People With Irritable Bowel Syndrome

Håkanson, Cecilia; Sahlberg‐Blom, Eva; Ternestedt, Britt‐Marie

doi:10.1177/1049732310369914

Cited by 47 publications

(59 citation statements)

References 43 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…15 Cuando la enfermedad es diagnosticada, los afectados deben buscar información acerca de la misma, [16][17][18] lo que crea en ellos una sensación de abandono que podría resolverse si dispusieran de una mayor información sobre la enfermedad con la que tienen que lidiar el Conociendo la experiencia de vida de las personas afectadas por EC se descubre cuáles son sus preocupaciones más inmediatas, sus miedos y sobre todo la forma que tienen de afrontar su día a día. Varios estudios 23,[38][39][40][41] proponen la creación de un equipo multidisciplinar para cubrir las necesidades de los afectados, dándoles voz desde el inicio de la enfermedad. Por ello, los temas y subtemas que aparecieron tras el análisis de la experiencia vivida pueden aportar luz a la comprensión del fenómeno social de la EC, especialmente para los responsables del diseño y ejecución de políticas y programas sanitarios.…”

Section: Discussionunclassified

Enfermedad de Crohn: experiencias de vivir con una cronicidad

et al. 2016

View full text Add to dashboard Cite

Section: Discussionunclassified

Enfermedad de Crohn: experiencias de vivir con una cronicidad

et al. 2016

View full text Add to dashboard Cite

“…A patient-centred approach is crucial to optimize patients" treatment choices and treatment outcomes in modern welfare states, where complex and growing unofficial health care systems and change in patients" health strategies based on e.g. various modes of embodiment are important elements in the landscape of health care (Baarts & Pedersen, 2009;Bodeker, Kronenberg, & Burford, 2007;Coulter & Ellins, 2007;Håkanson, Sahlberg-Blom, & Ternestedt, 2010).…”

mentioning

confidence: 99%

Modes of Embodiment in Breast Cancer Patients Using Complementary and Alternative Medicine

2012

View full text Add to dashboard Cite

3 AbstractBreast cancer patients are frequent users of complementary and alternative medicine (CAM). They often have complex reasons for, and experiences from, their use of CAM.Bodily experiences are important and almost unexplored elements in CAM use. Our aim was to explore the meaning and importance of bodily experiences among breast cancer patients who were using CAM as a supplement or an alternative to conventional treatment (CT). Our findings based on qualitative interviews with 13 women suggest that bodily experiences were particularly important when positioned outside conventional health care prior to medical diagnosis and as user of CAM as alternative to CT. We introduce three central modes of embodiment related to CAM use: the right to one"s body, the body used as a gauge, and the body used as a guide. Patients" positioning between treatment systems should be further explored from a bodily perspective to safeguard and optimize patients" treatment choices. Keywordscancer, breast; embodiment/bodily experiences; health care, alternative and complementary; illness and disease, experiences; knowledge construction; safety, patient 4The most common cancer worldwide is breast cancer, representing 16% of all cancer diagnoses in women (World Health Organization, 2008). Breast cancer patients experience many physical and psycho-social challenges during their breast cancer continuum (Arman, Rehnsfeldt, Lindholm, Hamrin, & Eriksson, 2004;Bredin, 1999;Carter, 1993;Thomas-MacLean, 2004), and an increasing number of breast cancer patients in Western countries choose to use complementary and alternative medicine (CAM) to strengthen their health and well-being (Boon, Olatunde, & Zick, 2007;Kremser et al., 2008; Lengacher et al., 2002;Molassiotis et al., 2006;Nahleh & Tabbara, 2003). An international review revealed that the prevalence of CAM use varied between 63 % and 83 % among breast cancer patients using at least one type of CAM (Di Gianni et al., 2002).There is, however, a great variation in these rates, depending on the definition of CAM used in each study, the setting of the study and the sample size.In this article we will describe use of CAM among breast cancer patients in a Norwegian and Danish health care context. In these countries, breast cancer counted for 23% (Cancer Registry of Norway, 2009) No applicable official definition of CAM exists in Denmark, but the situation is quite similar to Norway. CAM in a Danish context can be defined as therapies that go beyond the treatments offered by the state-financed health system (Baarts & Pedersen, 2009). In general, the prevalence of CAM use in Scandinavia is higher among women, individuals with higher education, and people with poor self-reported health (Hanssen et al., 2005).In Denmark, patients with breast and gynecological cancer seem to be more likely to seek CAM treatments than patients with all other types of cancer (Kimby, Launsø, Henningsen, & Langgaard, 2003), and breast cancer patients using CAM seem to be healthier and more likely to hav...

show abstract

“…Despite the increase in medical attention that patients with IBS receive, many patients experience difficulties and problems with their healthcare encounters (Ringstrom, Sjovall, Simren & Ung, 2013). Patients with IBS have reported unsupportive encounters with their healthcare providers, shaped by experiences of humiliation, insignificance, and abandonment (Hakanson, Sahlberg-Blom & Ternestedt, 2010). An additional burden of IBS falls on those who live with or care for people with the disorder; studies report adverse effects on the quality of life of partners of IBS patients (Canavan, West & Card, 2014).…”

Section: Epidemiology and Burden Of Diseasementioning

confidence: 99%

Irritable Bowel Syndrome

Weaver

Melkus²,

Henderson

2017

AJN, American Journal of Nursing

View full text Add to dashboard Cite

Irritable Bowel Syndrome (IBS) is a common, chronic gastrointestinal condition defined by disturbances in bowel habits and abdominal pain, in the absence of known organic pathology. IBS reduces patients’ quality of life, and exerts a substantial, negative impact on financial resources of patients and society at large. The diagnosis of IBS is made according to a symptom based classification system, the Rome Criteria, with updated guidelines, Rome IV, recently released. Physiological and psychological variables have been identified as playing a role in the etiology and perpetuation of symptomatology, highlighting the cross-talk between the brain and the gut in patients living with IBS. Although research investigations have made gains in understanding the pathophysiology of IBS, therapeutic interventions remain symptom driven, with both pharmacological and non-pharmacological approaches in the treatment arsenal. The purpose of this review is to summarize the epidemiology, pathophysiology, diagnosis, and treatment of IBS, and to discuss implications for clinical nursing practice.

show abstract

Being in the Patient Position: Experiences of Health Care Among People With Irritable Bowel Syndrome

Cited by 47 publications

References 43 publications

Enfermedad de Crohn: experiencias de vivir con una cronicidad

Enfermedad de Crohn: experiencias de vivir con una cronicidad

Modes of Embodiment in Breast Cancer Patients Using Complementary and Alternative Medicine

Irritable Bowel Syndrome

Contact Info

Product

Resources

About