Beyond a traumatic loss: The experiences of mourning alone after parental death during COVID-19 pandemic

Ethical Issues in Bereavement Research with Minors: A Scoping Review

“…Four studies were from Australia [ 14 , 31 , 32 , 33 ], eleven from the US [ 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 ], seven from Sweden [ 45 , 46 , 47 , 48 , 49 , 50 , 51 ], four from Norway [ 52 , 53 , 54 , 55 ], four from Denmark [ 56 , 57 , 58 , 59 ] four from the UK [ 60 , 61 , 62 , 63 ], and one from Canada [ 64 ]. There were five studies of non-western origins: two from South Africa [ 65 , 66 ] one from China [ 67 ], one from Iran [ 68 ], and one from the Philippines [ 69 ]. Four studies were published in the 2000s [ 41 , 42 , 52 , 53 ], 22 in the 2010s [ 31 , 35 , 36 , 37 , 38 , ...…”

“…There were five studies of non-western origins: two from South Africa [ 65 , 66 ] one from China [ 67 ], one from Iran [ 68 ], and one from the Philippines [ 69 ]. Four studies were published in the 2000s [ 41 , 42 , 52 , 53 ], 22 in the 2010s [ 31 , 35 , 36 , 37 , 38 , 39 , 40 , 43 , 47 , 48 , 49 , 54 , 55 , 57 , 58 , 60 , 61 , 62 , 63 , 64 , 65 , 66 ], and 14 from the 2020s [ 14 , 32 , 33 , 34 , 44 , 45 , 46 , 50 , 51 , 56 , 59 , 67 , 68 , 69 ]. Most studies were qualitative in design; there were also five quantitative [ 42 , 43 , 46 , 50 , 67 ], and five mixed-methods studies [ <...…”

“…Most studies identified multiple ethical issues, with the most common concerns regarding consent [ 31 , 32 , 33 , 37 , 40 , 46 , 56 , 57 , 63 , 64 , 67 , 68 , 69 ], potential risks and mitigation strategies [ 14 , 34 , 35 , 36 , 37 , 45 , 53 , 56 , 58 , 59 , 60 , 65 , 66 , 68 , 69 ], and privacy and confidentiality [ 34 , 38 , 41 , 45 , 46 , 52 , 56 , 59 , 60 , 63 , 65 , 68 ]. Table A2 in Appendix B details the study characteristics and the ethical issues found in the peer-reviewed studies.…”

“…Some researchers used intermediaries, such as support services or school counsellors, to recruit participants [ 46 , 67 , 68 , 71 , 73 , 74 , 78 , 86 , 88 ]. There were instances when permission from third parties such as government bodies was needed in order to access data [ 52 ].…”

“…Collaboration between researchers and other parties such as interventionists and healthcare professionals allowed for better monitoring of participants’ well-being [ 45 , 53 , 60 , 62 ]. Participants’ mental/emotional states were assessed after taking part in the study, and in some studies, there would be further follow-up [ 35 , 68 , 92 ]. Participants could also approach researchers, or they were offered references to professional support services should they experience distress during or after the research [ 36 , 37 , 62 , 66 , 69 , 72 , 73 , 75 , 78 , 86 , 92 ].…”