Breaking the taboo: qualitative analysis of the sexuality in people with acquired motor disability

Abstract

Background Globally 1 in 7 people experience some type of disability. In Latin America, as in other regions, there are programs focused on the protection of sexual and reproductive rights of this population group. However, to date, in Peru there are no programs, protocols or guidelines that include a specialist (sexologist or trained health professional) in the health system to improve the quality of life and well-being of this population. Therefore, the objective of this article is to qualitatively analyze the experience of sexuality in people with acquired motor disabilities. Methods We used the interpretative phenomenological approach and the semi-structured in-depth interview composed of 60 questions, which was applied to 7 people (4 women and 3 men) with acquired motor disabilities. Results Diversity in the experience of sexuality was observed. While some experience it without fear, others have annulled their sexual encounters, because in addition to physical limitations, they experience psychosocial limitations such as pain, functional alterations, depression, low self-esteem, discrimination, exclusion, stigmas and socio-environmental barriers, among others. Likewise, the study reflected the double discrimination suffered by women (for being a woman and having a disability), as well as the lack of education, counseling or sex therapy by specialized professionals, and the influence of religion, society and culture as factors that condition and limit their sexuality. This reflects the current situation in Peru and other countries in the region, where the sexuality of people with disabilities continues to be a complex and ambiguous issue. Conclusions It is concluded that for some participants it is possible to experience sexuality without fear, while others hold back their experiences for reasons other than physical, self-esteem, social discrimination, among others. The review of the profile and level of specialization of the health services professionals involved in the integral medical care of people with disabilities and their couples is required because of their need for adequate and specialized attention for their better adaptation to the new condition.

Sexual Disability in Low Back Pain: Diagnostic and Therapeutic Framework for Physical Therapists

“…Rehabilitation of LBP has been widely studied; however, counseling and management of LBP-related sexual disability are underestimated. It is confirmed by the current literature, which lacks complete guidance on the assessment and treatment of this condition [ 86 ], which the patient does not perceive as an uninteresting or secondary limitation but as an actual disability [ 87 ].…”

“…A tailored approach to sexual disability can help the patient in transferring motor abilities to a sexual relationship with his/her partner. On the other hand, a better relationship can reduce the fear of losing sexual identity and the perception of being a disabled person, finally facilitating positive thinking [ 87 ].…”

“…As recently outlined, people with motor disability require support for recovering and maintaining their sexual life [ 87 ], and healthcare professionals need appropriate training on this topic [ 90 ]. The barriers that may hinder the management of this condition can be cultural, social, religious, and educational [ 91 ], and they can concern both healthcare professionals and patients.…”

“…On the other hand, a better relationship can reduce the fear of losing sexual identity and the perception of being a disabled person, finally facilitating positive thinking [87].…”