Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients

Dunger, Christine; Higginson, Irene J; Gysels, Marjolein; Booth, Sara; Simon, Steffen T.; Bausewein, Claudia

doi:10.1017/s147895151300120x

Cited by 19 publications

(37 citation statements)

References 26 publications

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“…These characteristics have previously been associated with variations in breathlessness experience [26,27]. Variability in sample size prevented statistical comparison between the BIS, CHAFF and FAB studies.…”

Section: Quantitative Analysismentioning

confidence: 99%

Contributions of a hand-held fan to self-management of chronic breathlessness

et al. 2017

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This study explored the benefits of a hand-held fan as perceived by patients with chronic breathlessness and their carers.A secondary multimethod analysis was conducted of interview data collected in three clinical trials. Two researchers independently coded level of benefit qualitatively reported by each patient. Univariate and multivariate statistics were used to explore perceived benefit as a factor of sex, age and diagnosis. Qualitative analysis used an integrative method.133 patients commented on the fan, of whom 72 had a carer. Diagnoses included nonmalignant (n=91, 68.4%) and malignant (n=21, 15.8%) conditions. Of 111 patients who provided codable data, four (3.6%) perceived no benefit, 16 (14.4%) were uncertain, 80 (72.0%) perceived some benefit and 11 (10.0%) perceived very substantial benefit. Multivariate analysis was inconclusive. Benefit was described in terms of shorter recovery time, especially after activity. 10 (7.5%) patients said the fan reduced their need for home oxygen or inhaled β-agonist medications. Negative perceptions of a few included dislike of the cooling sensation and embarrassment in public.Findings suggest that a hand-held fan is a portable intervention with few disadvantages from which most patients with chronic breathlessness will derive benefit alongside other nonpharmacological and pharmacological strategies. Research is needed to optimise guidance on fan administration.

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Section: Quantitative Analysismentioning

confidence: 99%

Contributions of a hand-held fan to self-management of chronic breathlessness

et al. 2017

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“…During domestic activities of daily living, patients with COPD experience task-related breathlessness [14]. A common strategy to avoid exercise-induced breathlessness is to avoid triggers of breathlessness, and thus avoiding exertion [11]. So, physical activity is impaired by breathlessness [15].…”

Section: Behavioural Responses To Breathlessness: the Influence On Damentioning

confidence: 99%

“…So, physical activity is impaired by breathlessness [15]. This results in deterioration of functional status [11]. A study including patients with COPD or lung cancer showed worse functional status in patients with more severe breathlessness [9 && ].…”

Section: Behavioural Responses To Breathlessness: the Influence On Damentioning

confidence: 99%

“…Even personal care, such as going to the toilet or brushing teeth, was experienced as an exertion [15,16 & ]. The loss of independence and loss of social activities impacts the patient's self-perception [11]. (Fig.…”

Section: Behavioural Responses To Breathlessness: the Influence On Damentioning

confidence: 99%

“…Breathlessness may occur during exertion or even at rest and can increase during exacerbations of the disease [1]. Patients often live for years with breathlessness [11,12]. This has major consequences for patients as well as their family caregivers.…”

Section: Introductionmentioning

confidence: 99%

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Psychosocial consequences of living with breathlessness due to advanced disease

Janssen¹,

Wouters

Spruit³

2015

Current Opinion in Supportive &Amp; Palliative Care

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The consequences of living with breathlessness are multidimensional and arise in all aspects of daily life of patients, their family caregivers and their social environment. Multidimensional treatment programmes should become widely available to support patients with advanced disease and their family caregivers in coping with the functional, psychological and social consequences of living with breathlessness.

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Qualitative Evidence in Chronic Obstructive Pulmonary Disease

Pooler

2016

Handbooks in Health, Work, and Disability

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Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients

Abstract: Breathlessness leads to crises in patients with advanced disease. Although experiences of patients are similar, reactions and coping mechanisms vary and are more related to the disease and the stage of disease.

Cited by 19 publications

References 26 publications

Contributions of a hand-held fan to self-management of chronic breathlessness

Contributions of a hand-held fan to self-management of chronic breathlessness

Psychosocial consequences of living with breathlessness due to advanced disease

Qualitative Evidence in Chronic Obstructive Pulmonary Disease

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