Bridging the Patient Engagement Gap in Research and Quality Improvement Utilizing the Henry Ford Flexible Engagement Model

Olden, Heather; Santarossa, Sara; Murphy, Dana McDermott; Johnson, Christine Cole; Kippen, Karen Elizabeth

doi:10.17294/2330-0698.1828

Cited by 5 publications

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Potential participants were ascertained using a convenience sample of patients from HFH’s electronic medical records system, and a targeted email list of gynecological oncology patients at HFH’s Cancer Center. Nonprobability purposeful snowball sampling [ 8 ] was also used by HFH’s Patient Engaged Research Center [ 9 ] to identify potential participants. Potential participants received recruitment assets via email.…”

Section: Methodsmentioning

confidence: 99%

A patient perspective on applying intermittent fasting in gynecologic cancer

Redding,

Santarossa,

Murphy

et al. 2023

BMC Res Notes

Self Cite

View full text Add to dashboard Cite

Objective Researchers sought patient feedback on a proposed randomized controlled trial (RCT) in which gynecological cancer patients would modify their diets with intermittent fasting to gain insight into patients’ perspectives, receptivity, and potential obstacles. A convenience sample of 47 patients who met the inclusion criteria of the proposed RCT provided their feedback on the feasibility and protocols of the RCT using a multi-method approach consisting of focus groups (n = 8 patients) and surveys (n = 36 patients). Results Patients were generally receptive to the concept of intermittent fasting, and many expressed an interest in attempting it themselves. Patients agreed that the study design was feasible in terms of study assessments, clinic visits, and biospecimen collection. Feedback on what could facilitate adherence included convenient appointment scheduling times and the availability of the research team to answer questions. Regarding recruitment, patients offered suggestions for study advertisements, with the majority concurring that a medical professional approaching them would increase their likelihood of participation.

show abstract

Section: Methodsmentioning

confidence: 99%

A patient perspective on applying intermittent fasting in gynecologic cancer

Redding,

Santarossa,

Murphy

et al. 2023

BMC Res Notes

Self Cite

View full text Add to dashboard Cite

show abstract

Understanding the Context for Incorporating Equity into Quality Improvement Throughout a National Health Care System

2023

View full text Add to dashboard Cite

Purpose: Although health care systems aspire to deliver equitable care, practical tools that empower the health care workforce to weave equity throughout quality improvement (QI) processes are lacking. In this article, we report findings from context of use interviews that informed the development of a user-centered tool to support equity-focused QI. Methods: Semistructured interviews were conducted from February to April of 2019. Participants included 14 medical center administrators, departmental or service line leaders, and clinical staff involved in direct patient care from three Veterans Affairs (VA) Medical Centers within a single region. Interviews covered existing practices for monitoring health care quality (i.e., priorities, tasks, workflow, and resources) and explored how equity data might fit into current processes. Themes extracted through rapid qualitative analysis were used to draft initial functional requirements for a tool to support equity-focused QI. Results: Although the potential value of examining disparities in health care quality was clearly recognized, the data necessary for examining disparities were lacking for most quality measures. Interviewees also desired guidance on how inequities could be addressed through QI. The ways in which QI initiatives were selected, carried out, and supported also had important design implications for tools to support equity-focused QI. Discussion: The themes identified in this work guided the development of a national VA Primary Care Equity Dashboard to support equity-focused QI within VA. Understanding the ways in which QI was carried out across multiple levels of the organization provided a successful foundation upon which to build functional tools to support thoughtful engagement around equity in clinical settings.

show abstract

Interventions to improve system-level coproduction in the Cystic Fibrosis Learning Network

Gamel,

Albon,

Bandla

et al. 2024

BMJ Open Qual

View full text Add to dashboard Cite

BackgroundCoproduction is defined as patients and clinicians collaborating equally and reciprocally in healthcare and is a crucial concept for quality improvement (QI) of health services. Learning Health Networks (LHNs) provide insights to integrate coproduction with QI efforts from programmes from various health systems.ObjectiveWe describe interventions to develop and maintain patient and family partner (PFP) coproduction, measured by PFP-reported and programme-reported scales. We aim to increase percentage of programmes with PFPs reporting active QI work within their programme, while maintaining satisfaction in PFP-clinician relationships.MethodsConducted in the Cystic Fibrosis Learning Network (CFLN), an LHN comprising over 30 cystic fibrosis (CF) programmes, people with CF, caregivers and clinicians cocreated interventions in readiness awareness, inclusive PFP recruitment, onboarding process, partnership development and leadership opportunities. Interventions were adapted by CFLN programmes and summarised in a change package for existing programmes and the orientation of new ones. We collected monthly assessments for PFP and programme perceptions of coproduction and PFP self-rated competency of QI skills and satisfaction with programme QI efforts. We used control charts to analyse coproduction scales and run charts for PFP self-ratings.ResultsBetween 2018 and 2022, the CFLN expanded to 34 programmes with 52% having ≥1 PFP reporting active QI participation. Clinicians from 76% of programmes reported PFPs were actively participating or leading QI efforts. PFPs reported increased QI skills competency (17%–32%) and consistently high satisfaction and feeling valued in their work.ConclusionsImplementing system-level programmatic strategies to engage and sustain partnerships between clinicians and patients and families with CF improved perceptions of coproduction to conduct QI work. Key adaptable strategies for programmes included onboarding and QI training, supporting multiple PFPs simultaneously and developing financial recognition processes. Interventions may be applicable in other health conditions beyond CF seeking to foster the practice of coproduction.

show abstract

Bridging the Patient Engagement Gap in Research and Quality Improvement Utilizing the Henry Ford Flexible Engagement Model

Cited by 5 publications

References 0 publications

A patient perspective on applying intermittent fasting in gynecologic cancer

A patient perspective on applying intermittent fasting in gynecologic cancer

Understanding the Context for Incorporating Equity into Quality Improvement Throughout a National Health Care System

Interventions to improve system-level coproduction in the Cystic Fibrosis Learning Network

Contact Info

Product

Resources

About