Bringing Medicine to the Digital Age via Hackathons and Beyond

Walker, Angela; Ko, Naomi

doi:10.1007/s10916-016-0461-1

Cited by 30 publications

(19 citation statements)

References 5 publications

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“…In past years, healthcare ‘hackathons’ (i.e. an acronym of HACKers marATHONS) were organized to stimulate development and integration of medical devices and mobile device applications [218, 219]. However, many of these applications need rigorous scientific validation before they may be considered as outcome measures in clinical trials.…”

Section: Future Perspectivesmentioning

confidence: 99%

Outcome Measures in Clinical Trials for Multiple Sclerosis

2017

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Due to the heterogeneous nature of the disease, it is a challenge to capture disease activity of multiple sclerosis (MS) in a reliable and valid way. Therefore, it can be difficult to assess the true efficacy of interventions in clinical trials. In phase III trials in MS, the traditionally used primary clinical outcome measures are the Expanded Disability Status Scale and the relapse rate. Secondary outcome measures in these trials are the number or volume of T2 hyperintense lesions and gadolinium-enhancing T1 lesions on magnetic resonance imaging (MRI) of the brain. These secondary outcome measures are often primary outcome measures in phase II trials in MS. Despite several limitations, the traditional clinical measures are still the mainstay for assessing treatment efficacy. Newer and potentially valuable outcome measures increasingly used or explored in MS trials are, clinically, the MS Functional Composite and patient-reported outcome measures, and on MRI, brain atrophy and the formation of persisting black holes. Several limitations of these measures have been addressed and further improvements will probably be proposed. Major improvements are the coverage of additional functional domains such as cognitive functioning and assessment of the ability to carry out activities of daily living. The development of multidimensional measures is promising because these measures have the potential to cover the full extent of MS activity and progression. In this review, we provide an overview of the historical background and recent developments of outcome measures in MS trials. We discuss the advantages and limitations of various measures, including newer assessments such as optical coherence tomography, biomarkers in body fluids and the concept of ‘no evidence of disease activity’.

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Section: Future Perspectivesmentioning

confidence: 99%

Outcome Measures in Clinical Trials for Multiple Sclerosis

2017

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“…Hackathons have the potential to deliver solutions where there are health discrepancies among citizens and where resources are limited. They are seen as a valuable way of discovering innovation for health care (Walker & Ko, 2016). Chowdhury (2012) states that hackathons are a way for people (who would normally not be collaborating on a healthcare project) to collaborate and develop a solution, as a bottom-up form of change.…”

Section: The Nature Of Hackathonsmentioning

confidence: 99%

How do the design features of health hackathons contribute to participatory medicine?

Day

Humphrey

Cockcroft

2017

AJIS

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The Hackathon concept is attracting interest as a vehicle for participatory development in both Health and Information systems. Publically available datasets, cloud based data storage, and increasingly sophisticated analytical methods, combined with user friendly development tools for mobile devices are inspiring innovation in the participatory medicine space. This has the potential to disrupt traditional methods and deliver solutions more rapidly, and in a form more likely to meet requirements. In health applications this involves putting the patient and their supports at the centre of design. This work contributes to solving the challenges involved in bringing a diverse cohort of designers, developers, problem owners, healthcare providers, patients, and citizens together to solve user-driven self-care problems using technology. We use a descriptive case study approach focussing on two weekend-long hackathons dubbed "Health Hackathon: Solving Self-care". We gather thick data from multiple sources according to the process defined by Geertz (1994) first, to provide a rich picture of the role of hackathons in participatory medicine and second, to contribute evidence to the practise of running a hackathon. Some key originalities of our work include seeking more candid responses via selfserve interviews. Through this, controversially, we noted a marked emphasis on the creative process over concerns for privacy and ethics around the personal data cloud created by hackathon products. We build on existing theories of participatory medicine and emerging methodologies for conducting hackathons to provide evidence of the efficacy of the hacking approach both in terms of outcome and team dynamics. Through interviews, observation, twitter feeds and a pre-survey, we identify a number of success factors including (1) group size, (2) maturity of the idea, (3) level of involvement of a mentor, and (4) involvement of students. In addition we identify five skills identified by successful health hackathon participants; knowledge, patient focussed skills, analytical skills, software design skills and professional perspective. In common with previous studies we find that there are considerable social benefits that accrue in running a hackathon. Participants meet new people and learn first-hand of the challenges and opportunities provided by the skill sets and work environments of others. This work builds on the existing body of research concerning hackathons and in particular work in the context of participatory medicine

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“…A inovação é um aspecto central dessa metodologia, que busca mobilizar e desafiar seus participantes a apresentarem coletivamente respostas e soluções pioneiras, geralmente na área de programação e desenvolvimento de softwares [3][4][5][6] . A efetividade do fenômeno hackathon na inovação digital pode ser atestada por sua popularização em indústrias e instituições, públicas e privadas 2 , uma tendência manifesta na ampliação expressiva de sua realização ao longo dos anos 2000.…”

Section: Introductionunclassified

“…A efetividade do fenômeno hackathon na inovação digital pode ser atestada por sua popularização em indústrias e instituições, públicas e privadas 2 , uma tendência manifesta na ampliação expressiva de sua realização ao longo dos anos 2000. Nessa década, as maratonas hackers disseminaram-se como uma metodologia efetiva para rápido desenvolvimento de novos softwares e para identificação de áreas de inovação e investimento 3,4,6 . Nesse contexto, o Drupal e a MediaWiki são exemplos de plataformas que tiveram desenvolvimento potencializado por maratonas hackers 2 .…”

Section: Introductionunclassified

Maratonas hackers no Brasil com desafios no campo da Saúde

Guizardi

Santos

Lemos

et al. 2018

Interface (Botucatu)

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O objetivo deste estudo foi mapear a realização de maratonas hackers no Brasil, com desafios voltados para o campo da Saúde. Espera-se que a descrição e sistematização dos aspectos metodológicos dos eventos identificados, cotejados com informações advindas de levantamento bibliográfico, auxiliem na divulgação e aplicação da metodologia na saúde. De caráter exploratório e descritivo, o mapeamento foi realizado por meio de uma pesquisa web, com o buscador Google, e na base de dados Biblioteca Virtual da Saúde (BVS), abrangendo o período entre 2000 e 2016. Identificou-se a realização de 16 hackathons que abordaram desafios ou soluções na Saúde, sendo todos realizados a partir de 2012. Os resultados encontrados ressaltam o potencial da metodologia como fomento à criatividade e à inovação, a partir do trabalho colaborativo em equipe multiprofissional para soluções oportunas no campo da Saúde.

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Bringing Medicine to the Digital Age via Hackathons and Beyond

Cited by 30 publications

References 5 publications

Outcome Measures in Clinical Trials for Multiple Sclerosis

Outcome Measures in Clinical Trials for Multiple Sclerosis

How do the design features of health hackathons contribute to participatory medicine?

Maratonas hackers no Brasil com desafios no campo da Saúde

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