Building a Nyoongar work practice model for Aboriginal youth mental health: prioritising trust, culture and spirit, and new ways of working

Culbong, Tiana; Crisp, Nikayla; Biedermann, Britta; Lin, Ashleigh; Pearson, Glenn; Eades, Anne‐Marie; Wright, Michael

doi:10.1080/14461242.2022.2087534

Cited by 7 publications

(21 citation statements)

References 25 publications

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“…Through our shared commitment to tackle inequities in health and social care and disrupt damaging ideologies of deviance and infantilization, we were able to co-create an outreach intervention, whose cultural appropriateness and acceptability were later pilot tested in our local urban context (see Bungay et al, 2021 ). While the need for CBPR approaches is well recognized and the methodological expertise is growing, further scholarship regarding strategies to train and build capacity among researchers and communities to implement CBPR methodology is warranted ( Bell & Reed, 2021 ; Belone et al, 2016 ; Culbong et al, 2022 ; Switzer et al, 2019 ). Transparency and sharing about the real-world application of CBPR approaches can help to address such gaps ( Darroch et al, 2024 ).…”

Section: Discussionmentioning

confidence: 99%

“…Transparency and sharing about the real-world application of CBPR approaches can help to address such gaps ( Darroch et al, 2024 ). As noted by Culbong et al (2022) , the examination and reflection of community–academic partnerships allow us to explore what is possible and what can be achieved, thereby strengthening opportunities for community leadership, empowerment, and inclusion in the research process.…”

Section: Discussionmentioning

confidence: 99%

“…Attending to structural features such as discrimination in care encounters and unmet care needs due to compartmentalization of women's health and social concerns, creates opportunity for interventions that can reduce mistrust in care and attend to the complexity of women's lives thereby creating possibilities for enhanced health and well-being among women. It also enhances the ability of CBPR approaches to engage with and respond to community-identified priorities within the co-design process ( Bell & Reed, 2021 ; Culbong et al, 2022 ; Wallerstein et al, 2018 ). Community-identified priorities rarely emphasize individual behavior, but as our work illustrates, such priorities are embedded in the structural features of everyday life that contribute to structural disadvantage, which in our project is inclusive of GBV.…”

Section: Discussionmentioning

confidence: 99%

“…Defining Outreach: The Need for Epistemological Flexibility One of the teams' first tasks was to define outreach. We intentionally grappled with epistemological ideas about knowledge, noting the importance of recognizing, valuing, and integrating our team members' varied knowledge bases including research, subjective, and experiential knowledge (Bell & Reed, 2021;Culbong et al, 2022). We applied an iterative approach, moving back and forth between various knowledge sources to achieve our aims.…”

Section: Co-design Methods and Processmentioning

confidence: 99%

“…CBPR also seeks to redress the marginalization and exclusion of community members in the design and implementation of research ( Culbong et al, 2022 ; Switzer et al, 2019 ). Therefore, a community advisory committee (CAC) was created to facilitate authentic engagement with women who have expert knowledge of the everyday realities of women in their community.…”

Section: Co-design Methods and Processmentioning

confidence: 99%

See 4 more Smart Citations

Co-designing an Outreach Intervention for Women Experiencing Street-Involvement and Gender-Based Violence: Community–Academic Partnerships in Action

Bungay,

Dewar,

Schoening

et al. 2024

Violence Against Women

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Outreach is an important approach to improve health and social care for women experiencing street involvement (SI) or gender-based violence (GBV). Few studies have examined outreach approaches that incorporate SI and GBV. Drawing on feminist theories and principles of community-based research, we detail an inclusive co-design approach for an outreach intervention considering these interrelated contexts. Women with lived experience, researchers, and service leaders drew on research and experiential knowledge to define outreach engagement principles: tackling GBV, personhood and relational engagement, trauma-informed engagement, and harm reduction engagement. The resulting intervention integrates these principles to enable building and sustaining relationships to facilitate care.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Co-design Methods and Processmentioning

confidence: 99%

Section: Co-design Methods and Processmentioning

confidence: 99%

See 3 more Smart Citations

Co-designing an Outreach Intervention for Women Experiencing Street-Involvement and Gender-Based Violence: Community–Academic Partnerships in Action

Bungay,

Dewar,

Schoening

et al. 2024

Violence Against Women

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Anything goes for participant, patient and public involvement in youth mental health research

Bakermans‐Kranenburg,

van IJzendoorn

2024

JCPP Advances

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BackgroundParticipant and Public Involvement in youth mental health research aims at making research more responsive to the needs of youth struggling with mental health issues, their parents, and mental health professionals and other stakeholders. Do characteristics of Patient and Public Involvement (PPI) in youth mental health research align with transparency and replication prerequisites as necessary conditions for translation? Relatedly, the question is addressed whether co‐authorship should be assigned to youth involved in the study.MethodsHere we address these questions re‐visiting 50 PPI studies included in two recent systematic reviews of PPI on characteristics that are pertinent to questions about transparency, replicability, translatability, and co‐authorship in PPI research.ResultsAlmost two‐third of the studies on youth mental health incorporating PPI translate their results to policy or practice, mostly as recommendations but sometimes also by dissemination of (online) interventions. At the same time the authors of a substantial majority of the studies (70%) also suggest the need for further work on their results, for example, in randomized controlled trials to validate the outcome of their exploratory inquiry. Only a quarter of the studies using PPI met the conditions for replicability, thus a majority of the PPI studies suggest premature translation of results. Authorship to involved participants was assigned in 24% of the studies.Conclusions“Anything goes” for PPI in an exploratory stage to generate fruitful hypotheses. Translation of the findings of PPI studies however require a firm evidence base of replicated results. Radical merging of research and action in participatory action research seems incompatible with replicable and therefore translatable inquiry. Assigning co‐authorship to PPI representatives is often at odds with current guidelines for authorship. More evidence from randomized trials on the translational impact of PPI is needed before grant foundations should require PPI in grant proposals.

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No decision about me, without me: Collaborating with young people in mental health research

Lloyd,

Wu,

Lucas

et al. 2024

JCPP Advances

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Involving young people with lived experience in youth mental health research is important. In recognition of the value of collaborating with experts by experience, international funders are increasingly mandating that mental health research is developed by teams that include individuals from the population of study. Yet, research into how Patient Public Involvement, specifically co‐production and co‐design, is implemented in youth mental health research is limited to date. The current review examined this question and identified common practices for collaborating with experts by experience in young people's mental health research. Academic databases were systematically searched for studies that had involved young people in mental health research, had described these activities, and had reported some demographic information about the experts by experience. From a total of 2130 studies that were screened, 37 studies were eligible for inclusion. The use of co‐production and co‐design spanned a wide range of topics, including interventions, digital support tools and psychometric studies. Interactive workshops were the primary method of engaging experts by experience, although some studies utilised interviews or focus groups. From the reviewed studies we identified common methodological practices including: Scene setting, utilising a cyclical process, ensuring appropriate engagement and recognition of the cultural context. We draw on these findings to suggest common methods for conducting co‐production and co‐design activities, and emphasise the importance of ensuring experts by experience are respected and safeguarded throughout their collaboration in research. We also outline areas that deserve future attention and development, and include a response from two young people aged 16–18 and their suggestions for improving and extending co‐production methods.

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Building a Nyoongar work practice model for Aboriginal youth mental health: prioritising trust, culture and spirit, and new ways of working

Cited by 7 publications

References 25 publications

Co-designing an Outreach Intervention for Women Experiencing Street-Involvement and Gender-Based Violence: Community–Academic Partnerships in Action

Co-designing an Outreach Intervention for Women Experiencing Street-Involvement and Gender-Based Violence: Community–Academic Partnerships in Action

Anything goes for participant, patient and public involvement in youth mental health research

No decision about me, without me: Collaborating with young people in mental health research

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