Built for Dementia

Su, Jason

doi:10.31979/etd.2s5z-359b

Cited by 3 publications

(1 citation statement)

References 12 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…En esta relación de los parámetros de salud, de bienestar o de calidad de vida con los factores de diseño, también existen estudios que resaltan la importancia del contexto en el que la persona con demencia vive y el uso de los distintos recursos y estrategias de superación que podrá desarrollar y utilizar para mantener la continuidad con su vida a medida que vayan produciéndose cambios en sus capacidades o comportamientos (Górska et al, 2018), para lo cual es fundamental que exista un entorno que ofrezca un abanico amplio de posibilidades para satisfacer las necesidades que progresivamente y de forma heterogénea van apareciendo (Alzheimer's Disease International, 2017;Day et al, 2000). Al respecto, las recomendaciones sobre espacio público que se incorporan en las guías de comunidades amigables con las personas con demencia incorporan también un listado de elementos que en muchos casos trascienden la accesibilidad, identificando parámetros que generan bienestar y tienen en cuenta los factores asociados con la demencia previamente descritos (Gordon et al, 2016;Pham, 2009;Su, 2013b;Wolfe, 2017), así como consideraciones relevantes sobre la necesidad de planificar de forma transversal las ciudades pensando en las personas, los espacios y los procesos, para que sean entornos amigables con la demencia, incorporando también sectores como el transporte público; los comercios, tiendas, negocios y servicios; el ocio y las actividades culturales; y los servicios sociosanitarios y de emergencia (BSI, 2015).…”

Section: Espacios Interiores Y Exterioresunclassified

La ciudad para personas con demencia : metodología para integrar el diseño y la calidad de vida en las ciudades europeas

Menéndez¹

View full text Add to dashboard Cite

Ten siempre a Ítaca en tu mente.Llegar allí es tu destino. Mas no apresures nunca el viaje.Mejor que dure muchos años y atracar, viejo ya, en la isla, enriquecido de cuanto ganaste en el camino sin aguantar a que Ítaca te enriquezca.Konstantino Kavafis, Viaje a Ítaca. AGRADECIMIENTOSEsta tesis es el resultado de un camino elegido tras una crisis consciente que ha permitido un crecimiento personal siguiendo la intuición, pero que no hubiera sido posible sin el apoyo y guía de tantas personas a las que les agradezco profundamente su compañía en este viaje.En primer lugar, a mi abuela Felisa Fidalgo, mi eterna musa, que nos dejó a los pocos días de cerrar el primer borrador de este trabajo. A mi directora de tesis, la profesoraEster Higueras García, por su confianza, apoyo y guía durante estos cuatro años y todas las oportunidades que me ha brindado para aprender y participar en múltiples proyectos profesionales y académicos. Gracias a toda mi familia, especialmente a mi padre, hermana y hermanos, por toda su motivación, ánimos, su paciencia y comprensión durante estos años. También a Alicia y Daniel, quienes me han enseñado lo fácil que puede ser todo afrontándolo con valor y energía; y a Raúl, por sus cuidados, apoyos constantes y ayuda en las distintas etapas de esta carrera de fondo.A mi madre y familia materna, por recordarme que el olvido puede ser parte de mi futuro, y la importancia que tiene un entorno social y físico favorable.A Lucía, por todos los pasos dados desde que nos hemos encontrado y por los retos que nos ayudan a seguir creciendo, y a Laura, por enseñarme el valor del tiempo y allanar el camino para la recta final de esta tesis.

show abstract

Section: Espacios Interiores Y Exterioresunclassified

La ciudad para personas con demencia : metodología para integrar el diseño y la calidad de vida en las ciudades europeas

Menéndez¹

View full text Add to dashboard Cite

show abstract

Getting People with Dementia onto the Map: Scaffolding Qualitative GIS

Brennan-Horley

Smith

Frost

et al. 2023

International Journal of Qualitative Methods

View full text Add to dashboard Cite

A deficit framing continues to surround the perceived capabilities of people with dementia to comprehend and engage with cartographic maps. While some people with dementia might experience issues with wayfinding and spatial orientation, this has frequently been unfairly extended to all people living with dementia. From the perspective of qualitative research, the potentials for how mapping might contribute methodologically to understanding how some people with dementia negotiate and experience place has yet to be fully realised. A nascent turn towards geographic concepts of space and place has seen social health and dementia researchers acknowledging the vitality of place and neighbourhoods for understanding how everyday life unfolds relationally for people with dementia. However, creative methods to capture these spatial experiences are needed. This paper describes the nature of the scaffolds that supported involvement of people with dementia into a qualitative GIS project. These scaffolds were essential for supporting participants to trace out their narratives, histories, connections and barriers to engagement in their familiar neighbourhoods. We demonstrate via an Australian example how scaffolded sketch mapping interviews and crowdsourced maps offer tangible and evocative means to pin their lived experiences to the map. For place-based dementia research, qualitative GIS offers two paths forward. First, with the relevant scaffolds in place, the imaginative power of the map can engage people with dementia in qualitative research about the places they know and frequent. Second, spatial visualisations are imbued with political agency, acting as a conduit toward meaningful change in their local communities.

show abstract

Web-Based Technologies to Support Carers of People Living With Dementia: Protocol for a Mixed Methods Stepped-Wedge Cluster Randomized Controlled Trial (Preprint)

Wilding¹,

Morgan²,

Greenhill³

et al. 2021

Preprint

View full text Add to dashboard Cite

BACKGROUND Informal carers play a significant role in supporting people living with dementia; however, carers in rural areas are often isolated, with limited access to support services. Although dementia-friendly communities provide valued support for carers, access to them is limited as they are few and geographically dispersed. OBJECTIVE This study’s aim was to increase support and services for rural informal carers of people living with dementia by using information and communication technologies accessed through an integrated website and mobile app—the Verily Connect app. The objective of this protocol is to detail the research design used in a complex study that was situated in a challenging real-world setting integrating web-based and on-ground technology and communication. Therefore, it is anticipated that this protocol will strengthen the research of others exploring similar complex concepts. METHODS A stepped-wedge, open-cohort cluster randomized controlled trial was conducted to implement Verily Connect across 12 rural Australian communities. The Verily Connect intervention delivered web-based, curated information about dementia, a localized directory of dementia services and support, group and individual chat forums, and peer support through videoconference. During the implementation phase of 32 weeks, Verily Connect was progressively implemented in four 8-weekly waves of 3 communities per wave. Usual care, used as a comparator, was available to carers throughout the study period. Participants and researchers were unblinded to the intervention. There were 3 cohorts of participants: carers, volunteers, and staff; participants were recruited from their communities. The primary outcome measure was perceived carer social support measured using the Medical Outcomes Study-Social Support Survey. Volunteers and staff provided feedback on their participation in Verily Connect as qualitative data. Qualitative data were collected from all cohorts of participants through interviews and focus groups. Process evaluation data were collected through interviews and memos written by research staff. Data on the costs of implementing Verily Connect were collected by the research team members and evaluated by a health economist. RESULTS Between August 2018 and September 2019, a total of 113 participants were recruited. There were 37 (32.7%) carers, 39 (34.5%) volunteers, and 37 (32.7%) health service staff. The study was complex because of the involvement of multiple and varied communities of carers, volunteers, health service staff, and research team members originating from 5 universities. Web-based technologies were used as intervention strategies to support carers and facilitate the process of undertaking the study. CONCLUSIONS The Verily Connect trial enabled the testing and further development of a web-based approach to increasing support for carers of people living with dementia across a diverse rural landscape in Australia. This protocol provides an example of how to conduct a pragmatic evaluation of a complex and co-designed intervention involving multiple stakeholders. CLINICALTRIAL Australian New Zealand Clinical Trials Registry ACTRN12618001213235; https://tinyurl.com/4rjvrasf INTERNATIONAL REGISTERED REPORT RR1-10.2196/33023

show abstract

Built for Dementia

Cited by 3 publications

References 12 publications

La ciudad para personas con demencia : metodología para integrar el diseño y la calidad de vida en las ciudades europeas

La ciudad para personas con demencia : metodología para integrar el diseño y la calidad de vida en las ciudades europeas

Getting People with Dementia onto the Map: Scaffolding Qualitative GIS

Web-Based Technologies to Support Carers of People Living With Dementia: Protocol for a Mixed Methods Stepped-Wedge Cluster Randomized Controlled Trial (Preprint)

Contact Info

Product

Resources

About