Caregiver- and Clinician-Reported Adaptive Functioning in Rett Syndrome: a Systematic Review and Evaluation of Measurement Strategies

Systematic review of reviews on Activities of Daily Living measures for children with developmental disabilities

“… Citations Target Construct (Population) Information Sources # of Included Studies # of Included Instruments Ferre-Fernández et al. (2020) Motor and functional skills (for children with cerebral palsy) Pubmed/MEDLINE; ISI Web of Science; Science Direct; CINAHL; PEDro; Biblioteca Virtual de la Salud (BVS) 12 4 Semmel et al. (2019) Adaptive functioning (for individuals with Rett Syndrome) Pub-Med 23 7 Field et al.…”

“… Citation Title Abstract Introduction Methods Results Discussion Funding Rationale Objectives Protocol and registration Eligibility criteria Information sources Search Study selection Data collection process Data items Risk of bias in individual studies Summary measures Synthesis of results Risk of bias across studies Additional analyses Study selection Study characteristics Risk of bias within studies Results of individual studies Synthesis of results Risk of bias across studies Additional analysis Summary of evidence Limitations Conclusions Ferre-Fernández et al. (2020) + + + + + + + + + + - + - - - + + + + + - - + + + + - Semmel et al. (2019) + + + + - + - - + - + + - - - - + + + + - - - + + + ...…”

“…Within the results, nine articles provided details on the total numbers of studies screened, studies included in the review based on an eligibility assessment, and reasons for exclusions at each stage. Five articles presented a flow diagram delineating the inclusion and exclusion process of the studies ( Ferre-Fernández et al., 2020 ; Field et al., 2016 ; James et al., 2014 ; Semmel et al., 2019 ; Van der Linde et al., 2015 ). Thirteen articles reported characteristics for which data were extracted, with citations provided.…”

“…Half of the articles examined the structural validity of the measures. All articles except two ( Perenboom and Chorus, 2003 ; Semmel et al., 2019 ) examined the internal consistency and reliability of the measures. Three articles ( Ferre-Fernández et al., 2020 ; Field et al., 2016 ; Noonan et al., 2009 ) examined cross-cultural validity or measurement invariance, as well as measurement error of the measures.…”

“… Citations Instrument Development Content Validity Structural Validity Internal Consistency Cross-Cultural Validity/Measurement Invariance Reliability Measurement Error Criterion Validity Hypothesis Testing for Construct Validity Responsiveness Ferre-Fernández et al. (2020) − − + + + + + − + + Semmel et al. (2019) − − − − − − − − − − Field et al.…”