Caregiver Attitudes Regarding Utilization and Usefulness of Respite Services for People with Alzheimer's Disease

Msw, Danylle J. Rudin

doi:10.1300/j083v23n01_06

Cited by 16 publications

(18 citation statements)

References 23 publications

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“…Many of the research studies (Barnes, Given, & Given, 1992;Kosloski & Montgomery, 1994;Rudin, 1994) have focused attention on predicting service utilization based on caregivers' various characteristics (e.g., depression, stress level, perceived burden, health). A few researchers (Bass, Noelker, & Rechlin 1996;Weinberger et al, 1993) have focused on whether the use of these services is effective in relieving caregivers from the strain of the caregiving experience.…”

Section: Discussionmentioning

confidence: 99%

Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views

Caron

Bowers

2003

Qual Health Res

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Using grounded theory, the authors explore informal caregiving and develop the beginnings of a substantive caregiving theory explaining some of the decision making involved in providing care to an older family member. Sixteen caregivers (CGs) participated in the study. Line-by-line and dimensional analyses reveal various purposes of caregiving for an older family member. These purposes influence whether and how CGs continue to provide the care or decide to share or relinquish caregiving to health care providers. This study suggests that a broader conceptualization of caregiving is needed to illuminate fully the complexity involved in providing care to older adults.

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Section: Discussionmentioning

confidence: 99%

Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views

Caron

Bowers

2003

Qual Health Res

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“…Nolan et al. (1995 ) argued the need for nurses to help family carers undertake ‘informed anticipatory care’ by providing them with the necessary information to make informed choices about future respite needs, including things like local availability of different types of respite, eligibility criteria, proximity to public transport, quality of service, cost, funding criteria and waiting lists ( Steele 1992, Griffith 1993, Rudin 1994, Salvage 1995, Nolan et al. 1996b ).…”

Section: Discussion Of Key Findingsmentioning

confidence: 99%

“…A common reason for under‐utilization highlighted within the respite care literature is failure of the service to be geared towards the family carers’ caregiving styles and beliefs ( Griffith 1993, Nolan & Grant 1993, Rudin 1994, MacDonald et al. 1996 ).…”

Section: Literature Reviewmentioning

confidence: 99%

Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan‐European nursing research project

Hanson

Tetley

Clarke

1999

Journal of Advanced Nursing

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This paper provides a concept analysis of respite care for frail older people and their family carers. The authors re-examine the broader conceptualization of respite care delineated by Nolan & Grant, namely, users' needs for information, education and support about respite care, based on a review of recent literature and on a user focus group study. This work was undertaken by the Sheffield arm of the ACTION Project research team. ACTION is a 36-month project (1997-1999), involving Northern Ireland, The Republic of Ireland, Portugal, Sweden and England and is the largest nurse-led project to have received funding from the European Union TIDE sector (DGXIII Telematics Applications Programme, Disabled and Elderly). The authors discuss the key elements of respite and, more specifically, how they can be successfully used so that the potential of respite may be realized fully by family carers. Recommendations within the context of the ACTION research project are put forward to enable family carers and the persons they care for to make informed choices about respite care.

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“…Other variables that may influence the degree of optimism or pessimism about use of formal community services include perception of service affordability (Brody et al 1989; Gwyther 1989; Gwyther et al 1990; Liken & King 1995; Beisecker et al 1996; Hamilton et al 1996), availability (Aronson & Lipkowitz 1981; Caserta et al 1987; Lawton et al 1991; Kosloski & Montgomery 1993) and utility (Kosloski & Montgomery 1993; Rudin 1994). For example, the cost of service may be a factor early in the course of a prolonged and potentially expensive illness such as dementia and, thus, may be a barrier to the early introduction of formal services (Gwyther et al 1990).…”

Section: A Proposed Model For Understanding Formal Community Service mentioning

confidence: 99%

Explaining the use and non‐use of community‐based long‐term care services by caregivers of persons with dementia

Markle‐Reid

Browne

2001

Evaluation Clinical Practice

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The purpose of this paper is to synthesize and critically evaluate the current literature that explains the use and non-use of formal community-based long-term care services by caregivers of persons with dementia. There are four issues related to formal community service use by caregivers: reluctance to initiate formal services; under-utilization of available services; delayed utilization of services; and inappropriate utilization of services. Despite substantial research efforts to understand these issues, the reasons for low rates of community service use by this population remains unclear. Common methodological problems and limitations in the underlying theoretical assumptions in the literature, as they relate to caregivers of persons with dementia, have limited the usefulness of the current research for informing practice and policy. A conflict-theory model of decision-making is proposed as an alternative theoretical framework for understanding the particularity and complexity of the decision-making process leading up to the initiation of formal service use. Utilization of formal services is a result of a complex and subjective decision-making process that is unrelated to objective circumstances. The proposed conflict theory model of decision-making can inform policy and practice regarding the development of appropriate, timely and individualized interventions to facilitate the use of formal services by caregivers of persons with dementia.

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Caregiver Attitudes Regarding Utilization and Usefulness of Respite Services for People with Alzheimer's Disease

Cited by 16 publications

References 23 publications

Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views

Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views

Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan‐European nursing research project

Explaining the use and non‐use of community‐based long‐term care services by caregivers of persons with dementia

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