Caregiver Burden and Psychoeducational Interventions in Alzheimer’s Disease: A Review

Beinart, Naomi; Weinman, John; Wade, Dorothy; Brady, Roseanna

doi:10.1159/000345777

Cited by 100 publications

(100 citation statements)

References 104 publications

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“…with response options: (1) very satisfactory, (2) satisfactory, (3) moderately satisfactory, (4) unsatisfactory, (5) very unsatisfactory (categorized as being satisfied [1][2][3] and being dissatisfied [4 and 5]). Support from closest ones was inquired about with ''Do you feel your closest ones understand your life situation?''…”

Section: Methodsmentioning

confidence: 99%

“…Support from closest ones was inquired about with ''Do you feel your closest ones understand your life situation?'' with response options: (1) they understand well, (2) moderately, (3) they do not understand (categorized as ''closest ones do not understand'' (3) and others ''closest ones understand'' [1 and 2]). …”

Section: Methodsmentioning

confidence: 99%

“…In Finland, these services include the following social and health care services: home aid, home nursing, house cleaning, meals-onwheels, physiotherapy, assistive devices, daycare, respite care, financial support, physicians' services. Satisfaction with these services was elicited with options: (1) very satisfied, (2) satisfied, (3) moderately satisfied, (4) unsatisfied, (5) very unsatisfied (categorized as not being satisfied [4 and 5] and being satisfied [1][2][3]). …”

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Psychological well-being of spousal caregivers of persons with Alzheimer's disease and associated factors

Raivio

Laakkonen

Pitkälä

2015

European Geriatric Medicine

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Psychological well-being of spousal caregivers of persons with Alzheimer's disease and associated factors

Raivio

Laakkonen

Pitkälä

2015

European Geriatric Medicine

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“…AD has a major impact on the quality of life (QoL) of both the patient and the caregiver [14,15,16]. Given the short life expectancy following a diagnosis of AD (median 3-8 years [17]), and the progressive nature of the disease, treatments that stabilise symptoms or delay their progression, even for 6-12 months, can have important benefits on QoL for patients and their caregivers [14,15].…”

Section: Treatment Adherence In Admentioning

confidence: 99%

Adherence to Cholinesterase Inhibitors in Alzheimer's Disease: A Review

Brady

Weinman

2013

Dement Geriatr Cogn Disord

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Background/Aims: Treatment adherence is a major problem in numerous medical conditions, and is a particular challenge in patients with Alzheimer's disease (AD). Methods: This non-systematic review summarises the current literature on factors that affect adherence to cholinesterase inhibitors, the mainstay of AD treatment. Articles listed on PubMed and published during the last 10 years were included. Results: Intentional factors affecting adherence include patient, caregiver and prescriber beliefs about therapies and the disease itself. Unintentional factors include tolerability, physical limitations of the patient and caregiver burden. Interventions aiming to improve adherence include educational programmes and new drug delivery methods. Conclusion: Due to the high level of caregiver involvement in the care of patients with AD, strategies that address caregiver concerns may improve adherence.

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“…[73][74][75][76][77][78][79][80][81] Six of these focused on carers of people with dementia, [73][74][75][76][77][78] two focused on carers of people with mental health problems 79,80 and one focused on carers of people with multiple conditions. 81 In terms of types of interventions and outcomes, the literature appeared broadly similar to that covered in medium-and high-quality reviews.…”

Section: Overview Of the Medium-quality Reviewsmentioning

confidence: 99%

Updated meta-review of evidence on support for carers

Thomas

Dalton

Harden

et al. 2017

Health Serv Deliv Res

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BackgroundPolicy and research interest in carers continues to grow. A previous meta-review, published in 2010, by Parkeret al.(Parker G, Arksey H, Harden M.Meta-review of International Evidence on Interventions to Support Carers. York: Social Policy Research Unit, University of York; 2010) found little compelling evidence of effectiveness about specific interventions and costs.ObjectiveTo update what is known about effective interventions to support carers of ill, disabled or older adults.DesignRapid meta-review.SettingAny relevant to the UK health and social care system.ParticipantsCarers (who provide support on an unpaid basis) of adults who are ill, disabled or older.InterventionsAny intervention primarily aimed at carers.Main outcome measuresAny direct outcome for carers.Data sourcesDatabase searches (including Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, MEDLINE, Applied Social Sciences Index and Abstracts and Social Care Online) for systematic reviews published from January 2009 to 2016.Review methodsWe used EndNote X7.4 (Thomson Reuters, CA, USA) to screen titles and abstracts. Final decisions on the inclusion of papers were made by two reviewers independently, using a Microsoft Excel®2013 spreadsheet (Microsoft Corporation, Redmond, WA, USA). We carried out a narrative synthesis structured by patient condition and by seven outcomes of interest. We assessed the quality of the included systematic reviews using established criteria. We invited a user group of carers to give their views on the overall findings of our review.ResultsSixty-one systematic reviews were included (27 of high quality, 25 of medium quality and nine of low quality). Patterns in the literature were similar to those in earlier work. The quality of reviews had improved, but primary studies remained limited in quality and quantity. Of the high-quality reviews, 14 focused on carers of people with dementia, four focused on carers of those with cancer, four focused on carers of people with stroke, three focused on carers of those at the end of life with various conditions and two focused on carers of people with mental health problems. Multicomponent interventions featured prominently, emphasising psychosocial or psychoeducational content, education and training. Multiple outcomes were explored, primarily in mental health, burden and stress, and well-being or quality of life. Negative effects following respite care were unsupported by our user group. As with earlier work, we found little evidence on intervention cost-effectiveness. No differences in review topics were found across high-, medium- and low-quality reviews.LimitationsThe nature of meta-reviews precludes definitive conclusions about intervention effectiveness, for whom and why. Many of the included reviews were small in size and authors generally relied on small numbers of studies to underpin their conclusions. The meta-review was restricted to English-language publications. Short timescales prevented any investigation of the overlap of primary studies, and growth in the evidence base since the original meta-review meant that post-protocol decisions were necessary.ConclusionsThere is no ‘one size fits all’ intervention to support carers. Potential exists for effective support in specific groups of carers. This includes shared learning, cognitive reframing, meditation and computer-delivered psychosocial support for carers of people with dementia, and psychosocial interventions, art therapy and counselling for carers of people with cancer. Counselling may also help carers of people with stroke. The effectiveness of respite care remains a paradox, given the apparent conflict between the empirical evidence and the views of carers.Future workMore good-quality, theory-based, primary research is warranted. Evidence is needed on the differential impact of interventions for various types of carers (including young carers and carers from minority groups), and on the effectiveness of constituent parts in multicomponent programmes. Further research triangulating qualitative and quantitative evidence on respite care is urgently required. The overlap of primary studies was not formally investigated in our review, and this warrants future evaluation.Study registrationThis study is registered as PROSPERO CRD42016033367.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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Caregiver Burden and Psychoeducational Interventions in Alzheimer’s Disease: A Review

Cited by 100 publications

References 104 publications

Psychological well-being of spousal caregivers of persons with Alzheimer's disease and associated factors

Psychological well-being of spousal caregivers of persons with Alzheimer's disease and associated factors

Adherence to Cholinesterase Inhibitors in Alzheimer's Disease: A Review

Updated meta-review of evidence on support for carers

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