Caregivers and implications for home care

Abstract

This was a descriptive and exploratory study, qualitative in design. Its aims were to understand how caregivers experience the home care situation and the contribution of home care teams to continuity of care. The data were collected using a semi-structured interview with 10 caregivers in their homes. Their statements were subjected to thematic content analysis, which resulted in three thematic groups: caregiving decisions; care routine; and the social dimension of care in the context of the Home Care Program. The results indicated low income and education levels among caregivers, severe dependence of care receivers, and difficulties of home care teams to provide material resources. Moderate overload and moderate to severe overload were observed among 60% and 40% of caregivers, respectively, in addition to social life restrictions. Home care presented weak points and compromised domains due to conditions of a socioeconomic nature.

Sobrecargas física, emocional e social dos cuidadores informais de idosos

“…(6) With regard to the characteristics of care, the more daily hours are spent on the care activities for the elderly bedridden, the greater the caregiver's perceived burden. This finding supports other studies in different contexts in Brazil (27,28) and internationally. (19) In Canada, the evaluation of the caregiver burden of stroke survivors revealed that the burden of caring for a dependent person is greater for the perceived time spent than for difficulties in carrying out care activities for the relative.…”

“…There is a correct time for medication, bath time, mealtime, and thus the caregiver is restricted to the home, with much of his time spent on the activities with the elderly, being mostly a solitary activity. (27) The informal caregiver burden assessment questionnaire (QASCI), the instrument used, was easy to apply and permitted analyzing the physical, emotional and social aspects of the research construct. The method used, however, due to the cross-sectional design, did not allow for the establishment of the cause-and-effect relationships, which is the main limitation of this study.…”

Indicators of the Process of Transition to the Exercise of Family Caregivers of Elderly with Parkinson's Disease: A Qualitative Study

“…This reinforces the importance of implementing early interventions to prevent or lessen the burnout of caregivers [23,24].…”

“…Therefore, the family member is evaluated over time based on his ability to perceive, ability to adapt and to cope, essential conditions for providing care [24]. In addition, information should be provided to families regarding social services that may provide assistance at various stages of the disease [26].…”

Por Que É Melhor Em Casa? A Percepção De Usuários E Cuidadores Da Atenção Domiciliar

“…Para este tipo de paciente, a presença a atuação do cuidador é considerada fundamental. Na AD, o cuidador com vínculo familiar é o ator responsável por prover assistência no domicílio, em um modelo denominado de sistema informal de cuidados, que está associado ao vínculo cuidadorusuário (13)(14) . Esta relação de cuidado possui como característica a realização do cuidado não-profissional, exercido sem remuneração por pessoas da família e amigos para a execução das atividades (14)(15) .…”