Caregiving in Dementia and its Impact on Psychological Functioning and Health-Related Quality of Life: Findings from a Colombian Sample

Moreno, Jhon Alexander; Nicholls, Elizabeth; Ojeda, Natalia; Reyes-Aragón, Carlos José De los; Rivera, Diego; Arango‐Lasprilla, Juan Carlos

doi:10.1007/s10823-015-9270-0

Cited by 27 publications

(23 citation statements)

References 77 publications

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“…After adjusting for socio-demographic variables and FIS scores, those with depressive symptoms were significantly associated with lower QOL across all four domains of physical health, psychological, social relationships and environment while those with symptoms of anxiety were only significantly associated with low social relationships domain. This was in line with Moreno et al who found significant correlations between caregivers’ mental health and QOL among informal caregivers of patients with dementia in Colombia [46]. In particular, caregivers with higher levels of self-reported depressive symptoms reported lower vitality and worse general health (health related QOL as measured by the SF-36).…”

Section: Discussionsupporting

confidence: 88%

Psychological status and quality of life among primary caregivers of individuals with mental illness: a hospital based study

Jeyagurunathan

Sagayadevan

Abdin

et al. 2017

Health Qual Life Outcomes

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BackgroundThis study aimed to explore the psychological status and quality of life among primary caregivers of individuals suffering from various mental illnesses including early psychosis, chronic schizophrenia, depressive disorders, anxiety disorders and dementia.MethodsA total of 350 primary caregivers with relatives seeking treatment at a tertiary psychiatric hospital were recruited for this study. Socio-demographic data was obtained and the brief version of the World Health Organisation Quality of Life instrument was used to assess caregiver’s quality of life (QOL). Psychological status among primary caregivers was assessed using the General Anxiety Disorder - 7 item (GAD-7) and Patient Health Questionnaire - 9 item (PHQ-9) scales. Family Interview Schedule (FIS) was used to assess the impact of caregiving relating to social problems, interpersonal strain among family members, work related problems and financial difficulties as a result of their relative’s illness. The socio-demographic and clinical correlates of QOL, PHQ-9 and GAD-7 were examined using multiple linear and logistic regression analyses. Associations between QOL domains and psychological status was examined using multiple linear regression analyses.ResultsThe mean age of the primary caregivers was 49.7 years (SD = 13.2), ranging from 21 to 82 years, with a preponderance of females (67.6%), aged 50–64 years old (45.7%). Majority were of Chinese ethnicity (57.5%), had secondary level education (43.1%), were married (65.2%), and employed (64.9%). 18.3% of primary caregivers had symptoms of depression (based on PHQ-9 cut-off point of 10 or greater) while 12.7% had symptoms of anxiety (based on GAD-7 cut-off point of 10 or greater). Multiple linear and logistic regression analyses revealed that primary caregivers aged between 35-49 years and 50–64 years, unemployed, living with others, providing care to those diagnosed with dementia and who had higher FIS scores were significantly more likely to report symptoms of depression whilst those who cared for their son/daughter were less likely to be associated with symptoms of depression. Primary caregivers who had lower education, were living with others, were single or divorced/separated, were unemployed and with higher FIS scores were associated with lower QOL domain scores. Those with symptoms of depression were significantly associated with low QOL across all four domains, whilst those with symptoms of anxiety were significantly associated with low QOL in the social relationships domain.ConclusionPsychological status of caregivers in the current study was associated with the various domains of QOL. In particular, caregivers’ symptoms of depression were significantly associated with lower QOL across all four domains of QOL whereas symptoms of anxiety were associated with lower scores in the social relationships domain. The study suggests a need to provide caregivers with social support and psycho-education to improve the QOL as well as aid in developing healthy coping strategies.

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Section: Discussionsupporting

confidence: 88%

Psychological status and quality of life among primary caregivers of individuals with mental illness: a hospital based study

Jeyagurunathan

Sagayadevan

Abdin

et al. 2017

Health Qual Life Outcomes

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“…Caregivers with high life satisfaction scores scored lower for depression than dissatisfied life individuals. This finding is consistent with findings in literature, as verified by a study by Moreno et al 13 Among the 102 caregivers evaluated, those who scored high for depression scored low for life satisfaction. Hansen and Slagsvold 8 evaluated 2,553 caregivers of spouses and reported similar data.…”

Section: Discussionsupporting

confidence: 92%

“…Life satisfaction is significantly associated with depressive symptoms, as shown by a study conducted by Moreno et al 13 . Caregivers with the greatest risk of developing depression are those who score lower for life satisfaction.…”

Section: Introductionmentioning

confidence: 80%

“…This data is consistent with findings in literature. Dahlrup et al 17 , Perrin et al 18 and Moreno et al 13 found that caregivers with high levels of life satisfaction also have high quality of life and, since both are directly associated and influence each other, some authors use measures of life satisfaction as a means of measuring the total quality of life of caregivers 29,30 .…”

Section: Discussionmentioning

confidence: 99%

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Variables associated with the life satisfaction of elderly caregivers of chronically ill and dependent elderly relatives

Caldeira

Néri

Batistoni

et al. 2017

Rev. bras. geriatr. gerontol.

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Objective: to compare the life satisfaction of family caregivers, taking into account their gender, age, time since starting care, health, religion, perceived burden and quality of life, and the level of physical and cognitive dependence of the elderly person receiving care, and to investigate the associations between these variables and low life satisfaction. Methods: a total of 148 caregivers in Indaiatuba and Campinas, in the state of São Paulo, Brazil, selected using the convenience method, were interviewed at home, in private medical clinics and outpatient units, using questionnaires about the sociodemographic characteristics, health conditions, time since starting care, scales of life satisfaction, religiosity, perceived burden and quality of life of the caregiver, and the physical and mental health of the elderly person receiving care. Descriptive, Multivariate and Univariate Logistic Regression analysis were used. Results: caregivers who exhibited low life satisfaction included more frail individuals, with three or more chronic diseases and depression, greater perceived burden and lower self-fulfillment and pleasure, and control and autonomy, scores, which are factors of the Perceived Quality of Life Scale. Elderly caregivers who scored low in self-fulfillment factor and pleasure (OR=101.29;) and who scored high in perceived burden (OR=5.89, CI=2.13 to 16.24) had a greater chance of having low life satisfaction scores. Conclusions: The assessment of caregivers of their satisfaction with life is more influenced by subjective than objective variables, and low satisfaction seems to be strongly associated with poor quality of life, high burden, and caregiver frailty.

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“…Another qualitative study reports the strategies that lesbian caregivers of an individual with dementia used to negotiate family issues in the context of their caregiving experience (Price, 2011). Universally, family caregivers of individuals with dementia are mainly women (Moreno et al, 2015). Surprisingly, the experience of lesbian family caregivers is seldom addressed and their contributions largely overlooked under the heterosexist lens.…”

Section: Dementia/hiv-related Dementiamentioning

confidence: 99%

Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people

Moreno

Laoch

Zasler

2017

NRE

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Abstract. BACKGROUND:There is an increasing interest in sexual and gender diversity in neurorehabilitation. Healthcare professionals wanting to improve their practice know the importance of understanding the needs and expectations of specific communities. OBJECTIVE: To critically review the literature about neurological disorders in people who identify as lesbian, gay, bisexual, transgender, queer, intersex, asexual, and people with other sexual orientations and forms of gender expression (LGBTQIA+). METHODS: Systematic search in electronic databases (CINAHL, EMBASE, Medline, PsycINFO, Scopus, and Web of Science) and identification of relevant studies. RESULTS: Quantitative and qualitative findings are summarized and reported by neurological disorders: a) neurodisability/epilepsy (17.7%), b) intellectual disability/autism spectrum disorders (19.6%), c) dementia/HIV-related dementia (39.2%), d) spinal cord injury (7.8%), and e) traumatic brain injury/stroke (15.7%). CONCLUSIONS:LGBTQIA+ people with neurodisabilities and their partners/families of choice can conceal their sexual orientation or gender identity for fear of diminished quality of care. Their invisibility translates into health disparities, lack of policies and services that meet their unique needs. Dementia is the most common neurodisability documented in LGBTQIA+ people. We provide recommendations to increase LGBTQIA+ cultural competency for clinical practice, research, and policy to help different stakeholders to promote a positive change in the culture of neurodisability.

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Caregiving in Dementia and its Impact on Psychological Functioning and Health-Related Quality of Life: Findings from a Colombian Sample

Cited by 27 publications

References 77 publications

Psychological status and quality of life among primary caregivers of individuals with mental illness: a hospital based study

Psychological status and quality of life among primary caregivers of individuals with mental illness: a hospital based study

Variables associated with the life satisfaction of elderly caregivers of chronically ill and dependent elderly relatives

Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people

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