Caring for Daughters with Anorexia Nervosa: A Qualitative Study on Parents’ Representation of the Problem and Management of the Disorder

Carpinelli, Luna; Marinaci, Tiziana; Savarese, Giulia

doi:10.3390/healthcare10071353

Cited by 4 publications

(7 citation statements)

References 54 publications

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“…Although female subjects scored higher on average than males, they reported greater life satisfaction in general. From the analysis of the scienti c literature, numerous studies have revealed gender differences in caregiving (Carpinelli & Watzlawik, 2023;Carpinelli et al, 2022;Marinaci et al, 2021). Speci cally, activations of caregiving bonds have emerged in female caregivers compared to male caregivers.…”

Section: Discussionmentioning

confidence: 99%

Caregivers’ burden in Parkinson’s Disease: a study on related features and attachment styles

Carpinelli

Savarese

Russo

et al. 2023

Preprint

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Background: Parkinson's disease (PD) is a chronic progressive neurological disease clinically characterized bymotor and non-motor symptoms, with an increasing impact on quality of life not only for the patient, but also for the caregivers. Methods: Twenty-six primary caregivers (female= n°19; mean age= 57.04, SD= 10.64) of PD patients were consecutively recruited. Several psychological aspects were verified through clinical screening tests: EQ-5D and PQoL CARER for quality of life, Hospital Anxiety and Depression Scale(HADS), Caregiver Burden Inventory(CBI), Family Strain Questionnaire(FSQ), Adult Attachment Questionnaire. Results: We found that the burden was generally higher in cohabiting female caregivers of patients with dementia as compared with not cohabiting caregivers. Severe burden emerged in 7.7% of the participants according to the PQoL. The mean score of this scale was higher in cohabiting caregivers. Finally, according to the CBI, 19.2% of the participants suffered from severe burden, with mean scores of the CIB-S and CIB-E subscales higher in cohabitants. Conclusions: Our study highlights the need to investigate more thoroughly the burden of caregivers of PD patients and its associated factors, and to pay more attention to the physical and psychological health of caregivers to improve their quality of life.

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Section: Discussionmentioning

confidence: 99%

Caregivers’ burden in Parkinson’s Disease: a study on related features and attachment styles

Carpinelli

Savarese

Russo

et al. 2023

Preprint

Self Cite

View full text Add to dashboard Cite

show abstract

“…Although female subjects scored higher on average than males, they reported greater life satisfaction, in general. From the analysis of the scientific literature, numerous studies have revealed gender differences in caregiving (Carpinelli & Watzlawik, 2023;Carpinelli et al, 2022;Marinaci et al, 2021). Specifically, activations of caregiving bonds have emerged in female caregivers compared to male caregivers.…”

Section: Discussionmentioning

confidence: 99%

Caregivers’ Burden in Parkinson’s Disease: A Study on Related Features and Attachment Styles

et al. 2023

Self Cite

View full text Add to dashboard Cite

Parkinson’s disease (PD) is a chronic progressive neurological disease clinically characterized by motor and non-motor symptoms, with an increasing impact on the quality of life not only for the patient but also for the caregivers. Twenty-six primary caregivers (female = 19; mean age = 57.04, SD = 10.64) of PD patients were consecutively recruited. Several psychological aspects were verified through clinical screening tests: EQ-5D and PQoL CARER for quality of life, Hospital Anxiety and Depression Scale (HADS), Caregiver Burden Inventory (CBI), Family Strain Questionnaire (FSQ), and Adult Attachment Questionnaire. We found that the burden was generally higher in cohabiting female caregivers of patients with dementia as compared with not cohabiting caregivers. Severe burden emerged in 7.7% of the participants according to the PQoL. The mean score of this scale was higher in cohabiting caregivers. Finally, according to the CBI, 19.2% of the participants suffered from severe burden, with mean scores of the CIB-S and CIB-E subscales higher in cohabitants. Our study highlights the need to investigate more thoroughly the burden of caregivers of PD patients and its associated factors, and to pay more attention to the physical and psychological health of caregivers to improve their quality of life.

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“…In remarks to interviewers, these parents described how they were facing a "dreadful monster" and a "living nightmare" [22]. Existing qualitative 3 of 12 findings from interview studies with parents showed that despite their struggles, parents developed sophisticated explanations about their child's eating disorder [23].…”

Section: Introductionmentioning

confidence: 99%

Anorexia Nervosa in Adolescence: Parental Narratives Explore Causes and Responsibilities

Carpinelli

Watzlawik

2023

IJERPH

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Background: Anorexia nervosa (AN) is a serious mental disorder with a multifactorial etiopathogenesis, adolescent girls being especially vulnerable. Parents can be a resource and occasionally a burden when their children suffer from AN; thus, parents play a key role in recovery. This study focused on parental illness theories of AN and how parents negotiate their responsibilities. Methods: To gain insights into this dynamic, 14 parents (11 mothers, 3 fathers) of adolescent girls were interviewed. Qualitative content analysis was used to provide an overview of the parents’ assumed causes for their children’s AN. We also looked for systematic differences in the assumed causes among different groups of parents (e.g., high versus low self-efficacy). A microgenetic positioning analysis of two mother–father dyads provided further insight into how they viewed the development of AN in their daughters. Results: The analysis stressed the overall helplessness of parents and their strong need to understand what was going on. Parents differed in stressing internal and external causes, which influenced whether they felt responsible and how much they felt in control and able to help. Conclusions: Analysing the variability and dynamics shown can support therapists, especially those working systemically to change the narratives within families for better therapy compliance and outcomes.

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Caring for Daughters with Anorexia Nervosa: A Qualitative Study on Parents’ Representation of the Problem and Management of the Disorder

Cited by 4 publications

References 54 publications

Caregivers’ burden in Parkinson’s Disease: a study on related features and attachment styles

Caregivers’ burden in Parkinson’s Disease: a study on related features and attachment styles

Caregivers’ Burden in Parkinson’s Disease: A Study on Related Features and Attachment Styles

Anorexia Nervosa in Adolescence: Parental Narratives Explore Causes and Responsibilities

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