Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemics in South Korea

Kim, Min Ah; Yi, Jaehee; Sung, Jimin; Hwang, Shinyeong; Howey, Whitney; Jung, Sang Mi

doi:10.1016/j.dhjo.2021.101120

Cited by 16 publications

(20 citation statements)

References 35 publications

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“…In fact, our search at that time yielded zero research studies related to the impact of COVID-19 on people with DD. While many studies on the impact of COVID-19 on people with DD have since been published (Doody & Keenan, 2021;Kim et al, 2021;Lake et al, 2021;Rosencrans et al, 2021;Totsika et al, 2021), as of July 2021, we have found no other empirical research studies related to the impact of COVID-19 from the lens of the DD nurse. Furthermore, we have found no empirical research studies of DD nurses' experiences during other public health crises, including SARS, H1N1 or other influenza outbreaks, or during major disasters such as Hurricane Katrina.…”

mentioning

confidence: 69%

“We Were Absolutely in the Dark”: Manifest Content Analysis of Developmental Disability Nurses’ Experiences During the Early COVID-19 Pandemic

Desroches

Fisher

Ailey

et al. 2021

Global Qualitative Nursing Research

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People with developmental disabilities (DD) are devastatingly impacted by COVID-19, yet no studies have explored the experiences of developmental disability nurses during the pandemic. In April 2020, as part of a multiple method study, we used manifest content analysis to evaluate nurses' 287 open-ended responses to our online survey question: "What is the experience of being a developmental disability nurse while encountering challenges to meeting basic care needs during the early COVID-19 pandemic?" We identified four themes: living with fear and stress, helping others to understand and cope, navigating a changing landscape, and being left out. Findings reinforce the need for accessible health information for people with developmental disability, guidelines relevant to developmental disability nursing settings, emotional support for developmental disability nurses, and education of health care professionals about the contribution of the developmental disability nurse in supporting the holistic well-being of people with DD.

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mentioning

confidence: 69%

“We Were Absolutely in the Dark”: Manifest Content Analysis of Developmental Disability Nurses’ Experiences During the Early COVID-19 Pandemic

Desroches

Fisher

Ailey

et al. 2021

Global Qualitative Nursing Research

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“…We are unaware of previous literature examining the impact of the COVID-19 pandemic on device-based sedentary time or MVPA in adolescents with IDD. However, qualitative data from the UK and South Korea suggest that adolescents with IDD became more sedentary during the pandemic (Kim et al 2021;Theis et al 2021). Future research is needed to assess additional environmental factors (e.g.…”

Section: Discussionmentioning

confidence: 99%

“…However, qualitative data from the UK and South Korea suggest that adolescents with IDD became more sedentary during the pandemic (Kim et al . 2021; Theis et al . 2021).…”

Section: Discussionmentioning

confidence: 99%

Intrapersonal, interpersonal and environmental correlates of moderate to vigorous physical activity and sedentary time in adolescents with intellectual and developmental disabilities

Ptomey

Helsel

White

et al. 2022

J intellect Disabil Res

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Background Although correlates of physical activity (PA) have been extensively examined in both children and adolescents who are typically developing, little is known about correlates of moderate to vigorous physical activity (MVPA) and sedentary time in adolescents with intellectual and developmental disabilities (IDD). Therefore, we examined intrapersonal, interpersonal and environmental factors and their association with device‐based MVPA and sedentary time in adolescents with IDD. Methods MVPA and sedentary time was assessed using a hip‐worn ActiGraph model wGT3x‐BT tri‐axial accelerometer across a 7‐day period in adolescents with IDD and one of their parents. Pearson and point‐biserial correlations were calculated to inspect the associations of PA (MVPA, sedentary time) with intrapersonal factors (demographic characteristic, BMI, waist circumference, motor ability, muscle strength, grip strength, cardiovascular fitness and self‐efficacy for PA), interpersonal factors (parent demographics, parent BMI, parent MVPA and sedentary time, family social support for PA, parent barriers and support for PA, parent's beliefs/attitudes towards PA and number of siblings), and environmental factors (meteorologic season and COVID‐19). Ordinary least squares regression was used to estimate the unique contributions of key factors to PA after controlling for participants' age, sex, race, waist circumference and total wear time. Results Ninety‐two adolescents (15.5 ± 3.0 years old, 21.7% non‐White, 6.5% Hispanic, 56.5% female) provided valid accelerometer data. Average sedentary time was 494.6 ± 136.4 min/day and average MVPA was 19.8 ± 24.2 min/day. Age (r = 0.27, P = 0.01), diagnosis of congenital heart disease (r = −0.26, P = 0.01) and parent sedentary time (r = 0.30, P = 0.01) were correlated with sedentary time. BMI (r = −0.24, P = 0.03), waist circumference (r = −0.28, P = 0.01), identifying as White (r = −0.23, P = 0.03) and parent MVPA (r = 0.56, P < 0.001) were correlated with MVPA. After adjusting for the adolescent's age, sex, race, waist circumference, and total wear time, the association between parent and adolescent MVPA remained significant (b = 0.55, P < 0.01, partial η2 = 0.11). Conclusion The results of this study provide evidence that race, waist circumference and parental MVPA may influence the amount of MVPA in adolescents with IDD. The limited available information and the potential health benefits of increased MVPA highlight the need to evaluate the effectiveness of multi‐component interventions targeting both intrapersonal and interpersonal levels to promote increased PA in adolescents with IDD.

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“…In this study, no sign of increased stress levels or other behavior changes was observed (ibid.). A qualitative study from South Korea included 15 adults with mild or moderate ID, who lost access to community services during the pandemic and found negative impact on daily routines, family relationships and social life (Kim et al , 2021). However, the participants also developed new ways of adapting in a difficult situation (ibid.).…”

Section: Introductionmentioning

confidence: 99%

Community services during the COVID-19 pandemic in a Norwegian county: impact on users with multiple, complex needs and their service providers – a qualitative study

Hørsrud

Bakken

2022

AMHID

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Purpose The purpose of this paper is to investigate how users with particularly complex needs including intellectual disability (ID) reacted to the changes and restrictions during the COVID-19 pandemic in 2020. Design/methodology/approach As few studies of changes during the pandemic include users with ID and multiple, complex needs, the authors adopted a qualitative approach, using a semistructured interview guide. Ten participants were leading ID nurses in residential facilities in community settings. The interviews were taped, transcribed and analyzed using a thematic analysis. Findings The thematic analysis generated six main themes, including both user and staff perspectives: daily routines, activities, facilitation of tasks and well-being, from the users perspectives, and use of working hours and positive staff experiences, from the staff perspectives. Research limitations/implications Ten residential facilities constituted a convenience sample of services for users with multiple, complex needs. Thus, the authors do not know whether the findings are representative. Further research should include user opinions based on the findings of this study. Practical implications The users represented in this study appeared to experience less stress during the pandemic, contrary to the expectations of professional caregivers. The findings indicated more well-being among users. It was noted that receiving services at home, largely flexible schedules, staying in bed a little longer in the morning and avoiding stressful situations, such as travelling in minibuses, was appreciated by the users. Social implications Daily schedules with activities throughout the day should be considered for users as represented in this study. Stressful events should also be considered. Originality/value The knowledge about pandemic experiences of users with ID and additional complex conditions and hence comprehensive needs is still sparse. This study may add to this knowledge.

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Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemics in South Korea

Cited by 16 publications

References 35 publications

“We Were Absolutely in the Dark”: Manifest Content Analysis of Developmental Disability Nurses’ Experiences During the Early COVID-19 Pandemic

“We Were Absolutely in the Dark”: Manifest Content Analysis of Developmental Disability Nurses’ Experiences During the Early COVID-19 Pandemic

Intrapersonal, interpersonal and environmental correlates of moderate to vigorous physical activity and sedentary time in adolescents with intellectual and developmental disabilities

Community services during the COVID-19 pandemic in a Norwegian county: impact on users with multiple, complex needs and their service providers – a qualitative study

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