2021
DOI: 10.3389/fnhum.2021.642195
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Changes in Patients’ Desired Control of Their Deep Brain Stimulation and Subjective Global Control Over the Course of Deep Brain Stimulation

Abstract: Objective: To examine changes in patients’ desired control of the deep brain stimulator (DBS) and perception of global life control throughout DBS.Methods: A consecutive cohort of 52 patients with Parkinson’s disease (PD) was recruited to participate in a prospective longitudinal study over three assessment points (pre-surgery, post-surgery months 3 and 6). Semi-structured interviews assessing participants’ desire for stimulation control and perception of global control were conducted at all three points. Qual… Show more

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Cited by 7 publications
(2 citation statements)
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“…This includes patients wanting to achieve goals that were not discussed preoperatively or that medical professionals indicated were unattainable [e.g., “(The patients) shift the goalposts a little” DBS Nurse] ( Thomson, 2020 ). Patients’ desired level of control over their DBS stimulator can also alter as they adjust to living with the device ( Merner et al, 2021 ). Families can also develop an increased expectation that adjustment of the DBS settings will resolve any issue they observe in the patient ( Klein et al, 2016 ), a perception that can be frustrating and invalidating for the patient themselves.…”
Section: Discussionmentioning
confidence: 99%
“…This includes patients wanting to achieve goals that were not discussed preoperatively or that medical professionals indicated were unattainable [e.g., “(The patients) shift the goalposts a little” DBS Nurse] ( Thomson, 2020 ). Patients’ desired level of control over their DBS stimulator can also alter as they adjust to living with the device ( Merner et al, 2021 ). Families can also develop an increased expectation that adjustment of the DBS settings will resolve any issue they observe in the patient ( Klein et al, 2016 ), a perception that can be frustrating and invalidating for the patient themselves.…”
Section: Discussionmentioning
confidence: 99%
“…Finally, we asked participants about post‐trial obligations, including what they thought should happen to the device at the end of a trial and how the costs associated with maintenance of the device should be managed. As discussed elsewhere, 18 interviews were analyzed using thematic content analysis to iteratively identify themes in the data.…”
Section: Deep Brain Stimulation In Treatment‐refractory Obsessive‐com...mentioning
confidence: 99%