Cocreated Smartphone App to Improve the Quality of Life of Adolescents and Young Adults with Cancer (Kræftværket): Protocol for a Quantitative and Qualitative Evaluation

Elsbernd, Abbey; Hjerming, Maiken; Visler, Camilla; Hjalgrim, Lisa Lyngsie; Niemann, Carsten Utoft; Boisen, Kirsten A; Pappot, Helle

doi:10.2196/10098

Cited by 32 publications

(45 citation statements)

References 51 publications

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“…Kraeftvaerket used certain algorithms to determine the severity of symptoms reported by patients. Then in case of emergencies, alarm sent automatically and patient received recommendations for symptom management [50].…”

Section: Measuring and Reporting Symptoms To Cliniciansmentioning

confidence: 99%

“…), iCan Cope with Pain, Kraeftvaerket and Oncology Family App were designed to assist patients in understanding various aspects of their disease. For example, Kraeftvaerket provides practical and clinical information in order to support and enhance the QOL of children and adolescents with cancer [50]. The target user of these studies divided into two groups; (1) patients with cancer (children and adolescents) (2) Parents, family members and caregivers.…”

Section: Provision Of Information and Educationmentioning

confidence: 99%

“…Furthermore, Elsbernd et al developed Kraeftvaerket app that emphasized the role of social supports in improving quality of life in patients and families, thus establishing a communication and support network among users. This network includes all users who can send and share ideas and pictures about their disease or treatment [50]. Furthermore, studies on the role of smartphone apps for provide social support, show that they offer the chance of receiving support from other users through sharing experiences related to the disease and care for the child with cancer, while also decreasing financial and social burdens and stress by linking families to organizations and resources offering support and social services [6,50].…”

Section: Social Support and Communication With Other Patientsmentioning

confidence: 99%

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Smartphone apps to help children and adolescents with cancer and their families: a scoping review

et al. 2019

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Introduction: Considering the importance of empowering patients and their families by providing appropriate information and education, it seems smartphone apps provide a good opportunity for this group. The purpose of this review was to identify studies which used smartphone apps to help children and adolescents with cancer and their families. Method: Arksey and O'Malley's framework was employed in this review. To examine the evidence on the design and use of smartphone apps for the target group, PubMed, Embase, Scopus and Web of Science databases were searched from 2007 to November 2018. Results: Twenty-four articles met the inclusion criteria, with 33% being conducted in the USA and 21% in Canada. Moreover, in 20 studies (83%), app was specifically designed for children and adolescents, with only three studies (13%) for parents and one study (4%) for both. The main modules of smartphone apps in these studies included symptom assessment (90%), provision of information and education (74%), communication with caregivers (57%), social support (30%) and calendar and reminder (21%). Conclusions: Due to the easy access to smartphones without a costly infrastructure compared to landline phones, the use of mobile health (m-Health) has become a suitable method of providing healthcare services, especially for cancer. Use of smartphone apps, increases patient and families' access to reliable and suitable education and information regarding the disease. Thus, healthcare policy-makers in developing or underdeveloped countries can exploit the health-related potentials of m-Health following the experience of developed countries.

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Section: Measuring and Reporting Symptoms To Cliniciansmentioning

confidence: 99%

Section: Provision Of Information and Educationmentioning

confidence: 99%

Section: Social Support and Communication With Other Patientsmentioning

confidence: 99%

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Smartphone apps to help children and adolescents with cancer and their families: a scoping review

et al. 2019

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“…By this process, the Kræftværket app was completed for utilization both during and after cancer treatment on both iOS and Android platforms. The final prototype has been moved to pilot testing and evaluation, with results expected in future publications [27].…”

Section: Resultsmentioning

confidence: 99%

“…Currently the app prototype is under evaluation via ongoing pilot testing and an implementation test evaluating quality of life via the European Organization for the Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (Figure 4) [27,34]. The hypothesis for the Kræftværket app is that in the long term, the app can serve as a patient support tool and assist in meeting many patient needs, including side-effect and late-effect management, handling existential and practical concerns, and confronting daily life with cancer in a supportive community of peers.…”

Section: Discussionmentioning

confidence: 99%

Using Cocreation in the Process of Designing a Smartphone App for Adolescents and Young Adults With Cancer: Prototype Development Study

Elsbernd¹,

Hjerming²,

Visler³

et al. 2018

JMIR Formativ Res

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BackgroundAdolescent and young adult (AYA) oncology and hematology is a developing field of medicine, focusing on a population that faces many challenges throughout medical treatment and beyond. Mobile health (mHealth) interventions provide exciting new opportunities for improvement of health-related quality of life (HRQoL) in AYAs with cancer. Many smartphone apps are currently available for AYAs with cancer; however, for AYAs with cancer, very few apps have been designed with direct input from AYAs themselves or have demonstrated their effectiveness and benefit.ObjectiveThe objective of this project was to develop the prototype of a smartphone app for AYAs with cancer through the process of cocreation, with the active input of AYAs who have received treatment for cancer directly impacting content and design.MethodsPatients were recruited from a population of Danish AYAs who had received treatment for cancer between the ages of 15 and 29 years. The cocreation process was completed over the course of 3 workshops and intermittent ad hoc meetings, where the recruited AYAs worked in coordination with 1 nurse, 1 doctor, and 2 representatives from a digital agency and app developer. During each workshop, participants prioritized their goals for the app. After new app content was developed, feedback was requested from the participants, and changes were made accordingly. This iterative process continued until consensus on final product features and design were achieved. Health care professionals provided minimal input and primarily performed observational roles in the workshops, with direct interaction limited to introducing the project and explaining measurement features of the app in development.ResultsThree key features to be included in the prototype app were identified from the cocreation workshops: (1) a community forum; (2) an information library; and (3) a symptom and side-effect tracking tool. Bright, warm colors were selected for the app by the participating AYAs. The final prototype will be launched for pilot testing and implementation testing in February of 2018.ConclusionsThe process of cocreation is a user-involved process that can create an end product that is useful and customized for the target population. This process, as such, is a beneficial process to utilize when addressing the specific needs of AYAs with cancer. The results of the here described app prototype will be evaluated in more detail in the near future. However, this description of the cocreation process in app development can be utilized for the creation of other mHealth interventions.

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L’oncologue radiothérapeute, un des acteurs du parcours du patient après cancer. Surveillance après cancer de la prostate

Brassart

Basson

Olivier

et al. 2019

Cancer/Radiothérapie

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Cocreated Smartphone App to Improve the Quality of Life of Adolescents and Young Adults with Cancer (Kræftværket): Protocol for a Quantitative and Qualitative Evaluation

Cited by 32 publications

References 51 publications

Smartphone apps to help children and adolescents with cancer and their families: a scoping review

Smartphone apps to help children and adolescents with cancer and their families: a scoping review

Using Cocreation in the Process of Designing a Smartphone App for Adolescents and Young Adults With Cancer: Prototype Development Study

L’oncologue radiothérapeute, un des acteurs du parcours du patient après cancer. Surveillance après cancer de la prostate

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